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Author Topic: Blood Pressure  (Read 1728 times)
Jess21
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« on: April 20, 2011, 12:06:54 AM »

Does anyone know how low transplant centers will consider your BP "low"?
I'm still on a high dose of BP meds, and was told they want my BP to be as low as possible "without getting dizzy or passing out". 
I went for my annual heart echo in February and my BP was 115 (can't remember any bottom numbers).  At my cardiologist appointment the next month it was 110.  I went to to my primary care doc a few weeks ago (who's tried to kill me twice..) and it was 90.  He came in and asked if I was dizzy and I said no.  But he's not allowed to change my BP meds anyway...(one of the times he tried to kill me...).
So everyone, how low is "low"?  I'm an odd person.  I don't notice being "out of sorts" ever (which explains the 32 creatinine when I was first sick  :banghead; ).  I walked out of dialysis with a BP of 50 before (hey, I got the techs to release me! won't talk about the time I got to the waiting room without having to sit down...LOL).  So if we go off my "low" I'll be in trouble.  I occasionally get light headed but never dizzy.
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Hospitalized w/ renal failure- Nov. 2007
Diagnosed w/ ESRD w/ unknown cause- Jan 2008
Lower arm AV Fistula created- March 2008
On IL transplant list- Oct. 8th, 2008
On WI transplant list- June 25th, 2009
Pediatric 2 kidney transplant- July 6th, 2009 (3/6 antigen match)
Chris
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« Reply #1 on: April 20, 2011, 12:33:31 AM »

I am not sure either. but sounds like you need a new gp. I have had similar experiences with the lows at D and walking out ( luckily I parked close). As for the lightheaded ness, it can be a sign and it can't. When I was on CellCept, that did it to me when outyside in bright light. I would ask the doctor who told you they wanted it lower.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Jess21
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« Reply #2 on: April 20, 2011, 12:39:23 AM »

I wasn't really planning on going back to him.  However my transplant neph called him and told him he needed to see me (but I'll tell THAT story in another topic, LOL)
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Hospitalized w/ renal failure- Nov. 2007
Diagnosed w/ ESRD w/ unknown cause- Jan 2008
Lower arm AV Fistula created- March 2008
On IL transplant list- Oct. 8th, 2008
On WI transplant list- June 25th, 2009
Pediatric 2 kidney transplant- July 6th, 2009 (3/6 antigen match)
Bruno
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« Reply #3 on: April 20, 2011, 02:29:49 AM »

Depends on whereabouts you are, I reckon. Before I went on dialysis (ie before my kidneys carked it) I was using heaps of BP medication and we thought anything under 150 was good. We were using so much I nearly passed out a couple of times with BP of around 100.
Now I'm on dialysis we've cut out most drugs and kept one only (Avapro) and that is on half the previous dose.
Now (on dialysis) 150 is high, and 120 the norm and I've been as low as 70 and not passed out but that was because of too much fluid out too quickly.
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