Johns Hopkins

paris

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Johns Hopkins

« on: December 31, 2006, 12:13:31 PM »

Yesterday, via Fed Ex, my son and I both received blood draw kits from Johns Hopkins to have drawn and sent back to JH. Great - they have had all my records for 7 months, all my sons medical tests, and during that time I received one email saying my case was in "nurses review". So, all of a sudden we get this, but with no letter or explanation. Of course, we are going to do it - this is what we have been waiting for. But, it has been a strange week - Thursday a call from Carolinas Med Center assigning me a transplant co-ordinator in their positive crossmatch program and now this with Johns Hopkins. Did they all check their calendars and realize they need to start planning for 07? Not complaining -- I will just see how everything plays out. May the best (quickest) hospital win! But, as always, I contain my excitement -- we all have fallen too many times -- so I just wait and see now.


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Ohio Buckeye

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Re: Johns Hopkins

« Reply #1 on: December 31, 2006, 03:28:25 PM »

well, at least things are happening.
hope things move forward for you.
best wishes for the coming year.


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kitkatz

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Re: Johns Hopkins

« Reply #2 on: December 31, 2006, 04:16:30 PM »

As I keep saying to myself over and over, instead of screaming into the phone at a transplant coordinator: "Everything takes time!"


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Sluff

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Re: Johns Hopkins

« Reply #3 on: December 31, 2006, 04:51:23 PM »

Though the fight is tough, the end result is great.


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Sluff

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Re: Johns Hopkins

« Reply #4 on: February 20, 2007, 05:02:26 PM »

Paris did anything ever become of the testing?


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renal30yrs

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Re: Johns Hopkins

« Reply #5 on: February 21, 2007, 12:17:09 AM »

John Hopkins is certainly the nation's top kidney transplant facility. They've pioneered the practice of swapping the donors from different ABO groups.


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paris

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Re: Johns Hopkins

« Reply #6 on: February 21, 2007, 09:49:02 AM »

My son and I are on round two of blood work with Johns Hopkins. He is a great match, which makes for fewer plasmapheresis treatments. All communication is thru my son, the potential donor. Also, have a full day of appointments at Carolina Medical Center next week. Again, not getting my hopes up, but maybe one of these hospitals will accept me in their sensitized transplant programs.

Thanks for asking Sluff! You are always on top of everything!


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