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Dialysis Discussion
Dialysis: Home Dialysis - NxStage Users
Just as we get settled.....
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Topic: Just as we get settled..... (Read 2596 times)
lawphi
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Just as we get settled.....
«
on:
April 13, 2011, 06:21:00 PM »
Today is our two month anniversary of having our machine home. We get the call that Hopkins has found a kidney for Hammett and the procedure will take place in a week and a half. He leaves Tuesday or Wednesday to prepare for plasmapheresis. He would be inpatient on Saturday and have the transplant on Monday.
Should we take the machine or return to in center while in Baltimore? We would be flying and do not have a case. Our center ordered a case to loan to patients, but it is on back order.
I also am trying to research the rate immunosuppression will dialyzize out on daily home hemo verses in center.
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Girl meets boy with transplant, falls in love and then micromanages her way through the transplant and dialysis industry. Three years, two transplant centers and one NxStage machine later, boy gets a kidney at Johns Hopkins through a paired exchange two months after evaluation. Donated kidney in June and went back to work after ten days.
willowtreewren
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My two beautifull granddaughters
Re: Just as we get settled.....
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Reply #1 on:
April 13, 2011, 06:29:14 PM »
Those are questions best answered by your transplant team and your dialysis center.
When Carl got his kidney the transplant team told us to hang onto our NxStage machine, but our clinic needed it back for training a new couple. So a week after TX, the clinic picked it up.
And CONGRATULATIONS!!!!!!
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011.
boswife
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us and fam easter 2013
Re: Just as we get settled.....
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Reply #2 on:
April 13, 2011, 06:50:21 PM »
Congratulations!! wow! such great news
Keep us informed
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
looneytunes
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Wishin' I was Fishin'
Re: Just as we get settled.....
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Reply #3 on:
April 14, 2011, 04:43:43 AM »
Great news on the transplant!
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"The key to being patient is having something to do in the meantime" AU
lawphi
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Re: Just as we get settled.....
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Reply #4 on:
April 14, 2011, 04:44:54 PM »
Hopkins suggested in center. We will have to bring our own blunt needles on the plane. It depends on the flow cross match which day we need to go and how many pheresis treatments he will need. He will be inpatient on Saturday.
NxStage was not very helpful regarding fluid. Our center has fluid on hand if we got in a bind.
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Girl meets boy with transplant, falls in love and then micromanages her way through the transplant and dialysis industry. Three years, two transplant centers and one NxStage machine later, boy gets a kidney at Johns Hopkins through a paired exchange two months after evaluation. Donated kidney in June and went back to work after ten days.
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