Starting IVIG with hopes to lower my 97% antibodies

okarol

Administrator
Member for Life

Offline

Gender: Female

Posts: 100933

Photo is Jenna - after Disneyland - 1988

Re: Starting IVIG with hopes to lower my 97% antibodies

« Reply #25 on: February 27, 2011, 12:58:14 PM »

Wow thank goodness they checked your heart. It must be very hard to have to wait but as you say, you may have avoided a serious heart attack. Take care


	Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU

phyl1215

Full Member

Offline

Gender: Female

Posts: 162

Re: Starting IVIG with hopes to lower my 97% antibodies

« Reply #26 on: February 28, 2011, 07:17:04 AM »

I am more disappointed than I realized to not be able to hopefully get the transplant. I am weepy the last couple of days, guess it has all caught up with me. My heart Dr. was shocked, as the stress test in Oct. didn't show any of this, that is why it is why heart attacks are called the silent killer. Guess it all works out for the best.


	Logged

PD 3 yrs.
TX list 4 yrs.
Deceased donor PERFECT MATCH Kidney transplant July 8, 2012

Learning To Dance In The Rain

rsudock

Elite Member

Offline

Gender: Female

Posts: 1351

will of the healthy makes up the fate of the sick.

Re: Starting IVIG with hopes to lower my 97% antibodies

« Reply #27 on: February 28, 2011, 12:00:22 PM »

I know it must be disappointing but the transplant is on hold, not off the table altogether. I am so happy that they found the problems in your heart and were able to fix them. Hang in there!!

xo,
R


	Logged

Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?

phyl1215

Full Member

Offline

Gender: Female

Posts: 162

Re: Starting IVIG with hopes to lower my 97% antibodies

« Reply #28 on: February 28, 2011, 02:13:15 PM »

Thank you for the support ladies.


	Logged

PD 3 yrs.
TX list 4 yrs.
Deceased donor PERFECT MATCH Kidney transplant July 8, 2012

Learning To Dance In The Rain

-Lady Noir-

Full Member

Offline

Gender: Female

Posts: 416

Where's your will to be weird?

Re: Starting IVIG with hopes to lower my 97% antibodies

« Reply #29 on: March 20, 2011, 02:10:04 PM »

Thinking of you!


	Logged

Expose yourself to your deepest fear. After that, fear has no power, and the fear of freedom shrinks and vanishes. You are free

..Nik..

Fiancee to Mike
Mikes 'history'....
Born September 12 1983
Seizure July 2003 [Unrelated to kidney]
Diagnosed with 'Polycystic Kidney Disease' July 2003 (Wrong diagnosis)
Diagnosed with IgA Glomerulonephritis April 2004
On active transplant waiting list 2006
Hyperparathyroidism developed gradually
Parathyroidectomy May 2009 (Affected kidney function)
Hospitalized for hyperkalemia June 2009
Catheter inserted June 2009

Started CAPD June 2009
Stared APD September 2009

ABO Incompatible transplant 01 December 2010
Donor = Mikes father Greg

phyl1215

Full Member

Offline

Gender: Female

Posts: 162

Re: Starting IVIG with hopes to lower my 97% antibodies

« Reply #30 on: March 28, 2011, 09:20:50 AM »

Thank you, I am going in tomorrow to set up my schedule for cardiac rehab, 3 months, 3 x's/week. I am hoping this will get me in much better physical shape and I will be ready to do the more aggressive treatments in the fall.


	Logged

PD 3 yrs.
TX list 4 yrs.
Deceased donor PERFECT MATCH Kidney transplant July 8, 2012

Learning To Dance In The Rain

okarol

Administrator
Member for Life

Offline

Gender: Female

Posts: 100933

Photo is Jenna - after Disneyland - 1988

Re: Starting IVIG with hopes to lower my 97% antibodies

« Reply #31 on: March 28, 2011, 12:11:33 PM »

I hope you are able to get through the rehab just fine and can make progress toward the treatments again!


	Logged

Pages: 1 [2]

« previous next »