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Author Topic: Transplant went well yesterday!  (Read 4649 times)
AtlantaPatient
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« on: April 20, 2011, 01:56:56 AM »

My beautiful sister in law Katie donated a kidney to me tues morning and we are both doing well so far.   :clap;  :thumbup; She is recovering about 4 roooms down the hall and I'm planning to walk down there today to give her another hug.

My doctors were very pleased with how it went. The urine is flowing like wine. My creatine dropped from about 10.8 to 8 within about 5 hours of getting out of surgery and they'll do another lab in a couple of hours.  I have an incision about 6" long, diaganol, just below my belt line.  It's painful, but manageable with the pain pump. If I'm just laying here and not stretching around, it's just like a dull ache. Katie was in a little more pain yesterday but able to post on facebook, talk on the phone, etc.

I haven't slept much, thus why I'm posting at 4 a.m.  Some of it is due to the pain, but they are also checking my vitals every hour, blood sugar about every 2 hours, and I have some inflatable contraptions on my lower legs that inflate and deflate constantly to keep blood flow and avoid clots.  And the fluid pump makes a constant noise.  It's too painful to roll and stay on my side and I rarely sleep on my back so that doesn't help either. But I feel pretty good and it's sinking it that it finally took place! :bandance;

Anyway, just wanted to pass on the good news and thank everyone hear again for all the information and support! I read a lot more than I posted - I'm not typically superstitious, but I just felt like if I talked about a transplant myself it was not going to happen - weird.

Lastly, a local Atlanta new station 11 Alive is doing a special this week about paired donation as I think they have 3 couples donating to each other starting today.  If you don't live locally, you should be able to see the preview and the stories on www.11alive.com.  My wife met one of the recipients yesterday. There was a potential snag on surgery day and think they had to push it back a day.
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Polycystic Kidney Disease diagnosed 2000
Added to UNOS waiting list for kidney 8/07.
Started in-center HemoD June, 2009; nocturnal until 12/09.
NxStage hhd since 12/09.
4/19/11 - Living Unrelated Donor Kidney Transplant from my wife's sister Katie at Emory Hospital!
Had a few post transplant issues, but seem to have addressed them and doing well as of 5/7/11.
Chris
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« Reply #1 on: April 20, 2011, 03:06:29 AM »

 :thumbup;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
willowtreewren
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My two beautifull granddaughters

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« Reply #2 on: April 20, 2011, 04:48:08 AM »

Awesome!!!!

Sorry you are having so much pain. My husband was lucky with that. He was walking a mile+ two days after surgery. His pain was mostly from the gas. Walking helped that.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
monrein
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Might as well smile

« Reply #3 on: April 20, 2011, 05:42:26 AM »

 :yahoo;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Brightsky69
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« Reply #4 on: April 20, 2011, 06:10:27 AM »

 :bandance; :bandance;  Great news!!
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Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
Sax-O-Trix
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« Reply #5 on: April 20, 2011, 06:20:20 AM »

Congartulations!!!  You will feel even better when you home...  I am 22 days out and never want to be an in-patient again, lol. 
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Preemptive transplant recipient, living donor (brother)- March 2011
carol1987
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« Reply #6 on: April 20, 2011, 08:07:56 AM »

 :flower; :flower; :flower; wonderful!!!
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Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #7 on: April 20, 2011, 10:14:59 AM »

Great to hear the news! (I am a little superstitious that way too.)  :secret;
I think you're the first IHD member to get a transplant in April!
I added you to the list http://ihatedialysis.com/forum/index.php?topic=4927.0
Best wishes for a speedy recovery for you and Katie - LIVING DONORS ROCK!
 :bandance;

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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
jbeany
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Cattitude

« Reply #8 on: April 20, 2011, 10:32:10 AM »

 :bandance; :bandance; :bandance;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

Jie
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« Reply #9 on: April 20, 2011, 11:09:24 AM »

Congratulation! It may be hard to sleep due to steroid too.
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Cordelia
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« Reply #10 on: April 20, 2011, 12:53:47 PM »

Congrats! :waving; :thumbup; I'm so excited and happy for you! I hope things continue to progress well! :beer1;
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
AtlantaPatient
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« Reply #11 on: April 20, 2011, 03:46:50 PM »


Thanks to everyone for sharing my joy in this news. Quick update: Katie is off the morphine and switched to percocet. She has walked around some and feeling better if not great yet.  She skyped with her children today also - she lives in Illinois so in addition to the great gift she has given me, is away from her family for about 2 1/2 weeks. 

As for me, creatinine down to 5.7 as of this morning. Switched from pain pump to percocet.  Have gotten up twice to do some walking - they have a dry erase board in the hallway with patient's name and "laps completed." Now that I've seen that, It's On!  Walking actually did help me feel better afterwards, but no way I could have walked a mile today; that's impressive.  I generally feel pretty good and doctors are happy with the progress.  Hoping to get the catheter out tomorrow and take a shower :clap;, more walking, and go home on Friday. When I'm on my home computer I'll post a pic of the wonderful Katie. 

The irony of the day so far: being told I'll be on phosphorus supplements when I'm home initially. All that time avoiding yogurt, cheese, milk, bananas, and beer, and now I won't get enough of the stuff.  I just had to laugh.

Cheers.
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Polycystic Kidney Disease diagnosed 2000
Added to UNOS waiting list for kidney 8/07.
Started in-center HemoD June, 2009; nocturnal until 12/09.
NxStage hhd since 12/09.
4/19/11 - Living Unrelated Donor Kidney Transplant from my wife's sister Katie at Emory Hospital!
Had a few post transplant issues, but seem to have addressed them and doing well as of 5/7/11.
Brightsky69
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« Reply #12 on: April 20, 2011, 04:07:53 PM »

I totally missed cheese too...with the transplant I ate it 24/7. Now I am kinda sick of it.....but not really. ;D
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Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
RightSide
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« Reply #13 on: April 20, 2011, 06:06:15 PM »

AtlantaPatient,

that's fantastic!  I'm amazed you can surf the Internet and post here--I was so zonked from the pain meds that I just slept through most of the first two days post-op!

Based on my own experience, I do have two pieces of advice: 

If anyone is coming to visit you, ask them to bring you some earplugs and eye shades.  That will block out the noise and light and help you sleep.  (I brought those with me when I was admitted to the hospital, and they sure helped.)

Ask your nurses to get you plenty of prune juice (and maybe vegetable juice) and some laxatives too.  All those pain meds slowed down my bowel and gave me a bad case of constipation for nearly a week--which hurt as bad as the surgery. And with abdominal surgery, you don't want to be straining on the toilet anyway.
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kellyt
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« Reply #14 on: April 20, 2011, 10:19:19 PM »

 :yahoo;   Congratluations!!!!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
galvo
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« Reply #15 on: April 20, 2011, 10:34:12 PM »

Great to hear.
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Galvo
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« Reply #16 on: April 20, 2011, 11:02:11 PM »

congrats :thumbup;

those contraptions on your legs are there to keep the blood flowing around cause your spending most of your day in bed,when you get mobile they'll give you the stockings
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live  life  to  the  full  and you won't  die  wondering
AtlantaPatient
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« Reply #17 on: April 21, 2011, 05:43:55 AM »

Creatinine down to 2.99 this morning. Go kidney go! :bandance;
Slept much better and getting catheter out today. More walking around and home tomorrow.  My donor is going home today!
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Polycystic Kidney Disease diagnosed 2000
Added to UNOS waiting list for kidney 8/07.
Started in-center HemoD June, 2009; nocturnal until 12/09.
NxStage hhd since 12/09.
4/19/11 - Living Unrelated Donor Kidney Transplant from my wife's sister Katie at Emory Hospital!
Had a few post transplant issues, but seem to have addressed them and doing well as of 5/7/11.
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« Reply #18 on: April 21, 2011, 06:54:34 AM »

This is fantastic news!  Congratulations!  And huzzah! for Katie!

 ;D
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
billybags
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« Reply #19 on: April 21, 2011, 11:21:11 AM »

That is brilliant, you take care.
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AtlantaPatient
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« Reply #20 on: April 22, 2011, 05:38:08 PM »

I came home from the hospital today. Still pretty sore around the incision when getting up or sitting down or walking, but no problem when sitting or laying down.  Despite the soreness, I really feel like my general energy level is starting to exceed what I felt like pre-transplant. It will be easier to assess in another week or two I imagine.

I tried to transition from percocet to just tylenol this morning and it wasn't enough, so still taking 1 percocet every 4-5 hours for now.  Creatinine was down to 2.59 this morning.  It's great to be home with my wife and baby and start getting into a groove of taking my meds and hopefully getting stronger each day.  For the first 4 weeks, I'll be going back every Monday for labs, and every thursday for in-clinic visits.  I can't wait to have the dialysis clinic come pick up the machine and supplies I have left over.
Logged

Polycystic Kidney Disease diagnosed 2000
Added to UNOS waiting list for kidney 8/07.
Started in-center HemoD June, 2009; nocturnal until 12/09.
NxStage hhd since 12/09.
4/19/11 - Living Unrelated Donor Kidney Transplant from my wife's sister Katie at Emory Hospital!
Had a few post transplant issues, but seem to have addressed them and doing well as of 5/7/11.
carol1987
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« Reply #21 on: April 22, 2011, 05:42:25 PM »

 :clap; :clap; :clap; wonderful!!!  i wish you all good things!!!  :beer1;
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Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
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