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Author Topic: New to IHD  (Read 3101 times)
PD Wife
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« on: July 24, 2008, 03:21:01 PM »
I'm not sure if this is the screen where I'm supposed to introduce myself but can't find any other place so here goes:  I am female, 55 years old and recently became fulltime caregiver to my 57 year old husband who has been on PD for 2.5 years.  He did very well for the first year but has declined in the last year or so and now is weak, barely able to walk with a cane and can't take care of himself.  I'm looking for a site where I can find other caregivers to talk to  in more or less "real time" and not have to wait hours or days for a response.
Well, here goes.  I'll see if this hits the "introduce yourself" screen:
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Kate in Dallas
paris
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« Reply #1 on: July 24, 2008, 03:49:57 PM »
 :welcomesign;  This is a great place for caregivers.  Many can really relate to your situation.  It is a great group and everyone is always ready to help with answers and support.  Glad you joined us.  Looking forward to hearing more about you and your husband.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
monrein
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Might as well smile
« Reply #2 on: July 24, 2008, 03:54:33 PM »
 :welcomesign;  to IHD and I'm pretty confident in saying that you'll find lots of support, answers as well as really nice people on this forum.  It sounds as though you've both been having a rough time and if we can help to make it any easier we sure will try.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
flip
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« Reply #3 on: July 24, 2008, 03:57:50 PM »
 :welcomesign;  you are in the rightplace  :grouphug;
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That which does not kill me only makes me stronger - Neitzsche
pelagia
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« Reply #4 on: July 24, 2008, 04:33:39 PM »
 :welcomesign;  I hope you and your husband will benefit from the experiences of others in the IHD community.  There are many knowledgeable folks here.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
G-Ma
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« Reply #5 on: July 24, 2008, 04:34:47 PM »
 :welcomesign;  Great site and people
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #6 on: July 24, 2008, 04:50:01 PM »
Welcome to our community!   You are right two times!  You are in the right place - IHD, and you posted your intro in the right place!  We are so glad you found us.  so sorry to hear that things are not so good right now with your husband.  My caring thoughts and prayers are with you both.  By the way we are contemporaries.  i am 58.
This is a great place to be.  There is loads of information, lots of support, bales of humour, tons of caring, oodles of sharing.   You can go wrong here.  Really, this is family.   :grouphug; :grouphug; so read and read and post and post.  Keep us up to date always with how your husband is doing.  (and how you are doing too)  There is a great section for caregivers and loved ones of patients so check it out.  A lot of caring people are waiting there for you.


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
rsood2004
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Me and my baby Kyle
« Reply #7 on: July 24, 2008, 05:01:31 PM »
 :welcomesign; My name is Laurie and my husband is a RN and also my caregiver. I'm sure he would be able to speak with you if you were interested. This site is wonderful and I think you will love it here! I know I do.   :grouphug;
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Laurie
“I am not afraid…I was born to do this.”
“There is nothing wrong with being afraid---but there is nothing more wrong than allowing that to be your master.”
“What we do for ourselves dies with us. What we do for others and the world remains and is immortal.”-Joan of Arc
Ang
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« Reply #8 on: July 24, 2008, 05:09:41 PM »
 :welcomesign;
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live  life  to  the  full  and you won't  die  wondering
Romona
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« Reply #9 on: July 24, 2008, 08:03:45 PM »
 :welcomesign;
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PD Wife
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« Reply #10 on: July 25, 2008, 05:03:54 AM »
Thank you all for responding so quickly.  I never expected to hear from so many so soon.  Does anyone have experience with PD patient who exhibits Parkinsons or MS symptoms: weakness, difficulty walking, memory/thought lapses? ???
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Kate in Dallas
willieandwinnie
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« Reply #11 on: July 25, 2008, 05:54:26 AM »
:welcomesign; PD Wife. I've been a full time caregiver to my almost 60 year old husband for over 7 years. We were home hemo patient until 9/07 when he received a kidney transplant. I don't really know anything about PD but I'll gladly be here for support and any information I can provide for you. Bless your heart and you'll be told many time here, to take some time for yourself. Again, welcome.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
cookie2008
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« Reply #12 on: July 25, 2008, 06:03:38 AM »
 :welcomesign;
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
Ohio Buckeye
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« Reply #13 on: July 26, 2008, 11:53:19 AM »
 :welcomesign; to the IHD Family!
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If I must do this to live, I must strive to live
while I am doing this.
MyRenalRomance
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« Reply #14 on: August 05, 2008, 12:10:08 PM »
 :welcomesign;  Welcome to the community PD Wife!

I've been enjoying seeing your posts, but did not realize you were a new member!  Glad you're here.  This is such a wonderful community, as I'm sure you have realized, already!
Nice to meet ya!  :waving;

My best wishes to you, and your husband.  :cuddle;
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Kidneys damaged by hypertension/scleroderma 1987
In-center Hemodialysis:  May 2007 - October 2007
Switched to Manual PD October '07 - January '08
Switched to PD Nighttime Cycler January '08
Kidney transplant from living related donor June 2008
boxman55
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« Reply #15 on: August 05, 2008, 12:53:04 PM »
Welcome PD Wife, we have a number of caregivers and we also have a caregiver category to post in. Please look around

Boxman, Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
lola
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I can fly!!!
« Reply #16 on: August 05, 2008, 12:57:13 PM »
 :welcomesign; I also am a caregiver but my husband does home-hemo
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www.caringbridge.org/visit/ottomachado
PD Wife
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« Reply #17 on: August 05, 2008, 04:59:18 PM »
Quote from: MyRenalRomance on August 05, 2008, 12:10:08 PM
:welcomesign;  Welcome to the community PD Wife!

I've been enjoying seeing your posts, but did not realize you were a new member!  Glad you're here.  This is such a wonderful community, as I'm sure you have realized, already!
Nice to meet ya!  :waving;

My best wishes to you, and your husband.  :cuddle;


RenalRomance - thank you for the welcome.  I've enjoyed your posts, too.  This site has been a godsend for me as I'm pretty much housebound with hubby and two dogs and I also tend to be up in the middle of the night or get up way too early in the morning!
Nice to meet you!
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Kate in Dallas
napala turki
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Have to plan for living
« Reply #18 on: August 06, 2008, 06:53:11 AM »
Be strong, stay with us.... and welcome, Im from Malaysia.
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PD Wife
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« Reply #19 on: August 06, 2008, 07:13:54 AM »
Quote from: napala turki on August 06, 2008, 06:53:11 AM
Be strong, stay with us.... and welcome, Im from Malaysia.

Thank you.  My parents used to live in Singapore and went to Malaysia many times.  I never had the chance to get over there - that was 20+ years ago when I was starting my family.
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Kate in Dallas
napala turki
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Have to plan for living
« Reply #20 on: April 04, 2011, 09:22:13 PM »
Been 5 yrs on dialysis... life must go on... and always be :yahoo;
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galvo
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« Reply #21 on: April 05, 2011, 03:17:14 AM »
G'day, PD Wife, and  :welcomesign;.  :ausflag;
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Galvo
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