shona
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Posts: 2
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« on: March 10, 2011, 07:08:57 AM » |
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I don't know if i am on the right page, it is looking all confusing to me lol...am i in the correct place to post?? help..anyone arghhh
EDITED: Merged topics - Rerun, Moderator
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« Last Edit: March 15, 2011, 05:40:44 AM by Rerun »
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peleroja
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« Reply #1 on: March 10, 2011, 07:13:53 AM » |
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Welcome to the group, shona. Lots of good information and friends here. Glad you found us!
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Rerun
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« Reply #2 on: March 10, 2011, 07:29:14 AM » |
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Hi Shona and yes you were in the right place to introduce yourself. Come back and do that...... Rerun, Moderator  |
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shona
Newbie
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Posts: 2
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« Reply #3 on: March 10, 2011, 07:40:20 AM » |
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Hello everyone, my name is Shona, i am 45yrs old..diagnosed in 2003 with ASPKD (autosomal polycystic kidney disease)..i had a peritoneal catheter inserted in early 2007 as i was hoping to do home dx so i could stay in employment..anyways, i ended up with peritonitis and had to have the catheter removed, that ended that option...i had a permcath for a while as i had a fistula formed, the 1st fistula never worked from the day and hour i came out of surgery..The 2nd fistula is working great after a few hiccups..i currently do dx 3x weekly in the Queen Margaret Hospital in Dunfermline Scotland..i have no children (thats another story lol)..i am looking forward to getting to know every one on here...sometimes you just need to vent and talk to people that know exactly what you are going through... i hope i haven't rambled on and bored you all lol...i love to talk to people so....what's keepin ya x
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YLGuy
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« Reply #5 on: March 10, 2011, 08:37:14 AM » |
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Welcome to IHD Shona. Your introduction was great! There are plenty of people here who are going through similar situations. There is a lot of great information here.
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willowtreewren
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« Reply #6 on: March 10, 2011, 09:20:09 AM » |
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You have found the right place to vent!  And there is lots of good information here, too. Aleta |
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Wife to Carl, who has PKD. Mother to Meagan, who has PKD. Partner for NxStage HD August 2008 - February 2011. Carl transplanted with cadaveric kidney, February 3, 2011.  |
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monrein
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« Reply #7 on: March 10, 2011, 01:27:57 PM » |
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to IHD. Look forward to getting to know you here.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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chook
Sr. Member
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Gender: 
Posts: 774
Born to be a Granma!
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« Reply #8 on: March 10, 2011, 03:53:39 PM » |
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I was half way through your intro and lost it - I'm not great at using the net on my phone. But I found it again. It seems so often that dialysis has lots of hurdles. Welcome. Wishing that you find the same sense of belonging and support that IHD has brought to me.
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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
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looneytunes
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« Reply #9 on: March 10, 2011, 08:50:37 PM » |
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Hi Shona and welcome to IHD! Loved the intro! |
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"The key to being patient is having something to do in the meantime" AU
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sammiejo23
Full Member
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Posts: 145
Quand la vie devient dure, deviens plus dure.
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« Reply #10 on: March 10, 2011, 10:12:29 PM » |
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Hi Shona! Welcome, welcome, welcome! |
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01/05/2011-Full Right Nephrectomy (Malignant Tumors)
01/24/2011-Permacath Placed; Dialysis Started
01/28/2011-Fistula Placed
Current: In-Center Hemodialysis/3x a week
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peleroja
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« Reply #11 on: March 11, 2011, 08:26:51 AM » |
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Welcome to the group, Shona. Lots of good information and friends here. Glad you found us!
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texasstyle
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« Reply #13 on: March 11, 2011, 02:12:51 PM » |
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You came to the right place! I vent all the time. We're aloud to here. At home we'd be "nagging" lol. My husband is on D almost 4 years now as a result of untreated diabetes and mostly severe hypertensive high blood pressure left untreated. It's hard on the caregiver too. Sometimes I thinkwe know almost as much as the dialysis patient does lol. There always pleanty to learn though.
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caregiver to husband using in-center dialysis 4 years
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PreciousJeni
Newbie
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Posts: 10
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« Reply #14 on: March 11, 2011, 02:20:58 PM » |
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Im here if you need me. 
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Jennifer L Galloway on facebook
PreciousJeni on twitter
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galvo
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« Reply #15 on: March 11, 2011, 10:06:58 PM » |
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G'day, Shona and . |
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Galvo
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Rerun
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« Reply #16 on: March 12, 2011, 08:15:39 AM » |
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rsudock
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« Reply #17 on: March 12, 2011, 01:07:07 PM » |
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What's you story Shona? WELCOME!!
xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
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Hazmat35
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« Reply #18 on: March 12, 2011, 01:44:21 PM » |
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SO, what's your story!!!!!! This is a good website to get info and make new friends!!!! YOU  ME! See how easy it is!
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Brother Passed away - 1990 - Liver Disease Diagnosed w/ Polycystic Kidney Disease - 1998 Mother passed away - Feb. 1999 - PKD Sister passed away - Feb. 2006 - PKD AV Fistula / Upper Left Arm - September 2009 Father passed away - September 2009 In-Center Hemo Dialysis - April 2010 Broken Knee Cap - January 2015 Diagnosed w/ A-Fib October 2017 Surgery to repair Hiatal Hernia 2018 Multiple Fistula Grams / Angioplasty's since then! Hating Dialysis since Day 1 and everyday since then!!!! |
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gallagherrose
Newbie
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Posts: 5
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« Reply #19 on: March 13, 2011, 07:26:39 PM » |
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I FIND IT ALL VERY CONFUSSING DONT KNOW WERE TO INTRODUCE MYSELF HELP  |
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Des
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« Reply #20 on: March 14, 2011, 03:51:09 AM » |
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Welcome Shona!!! Tell us a bit more about yourself. We are dying to get to know you. I FIND IT ALL VERY CONFUSSING DONT KNOW WERE TO INTRODUCE MYSELF HELP
You click on Home Scroll down to introduce yourself on the right hand side of the screen you will see something like "new topic" and you click on that and you can do an introduction. |
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...
South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
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