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WishIKnew
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« on: February 25, 2011, 06:37:33 AM » |
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I'm snowed in and bored so let's get creative - What good similes can we come up with? I'll start.
Being on dialysis is like being put on hold and listening to the same muszak over and over and over and over.....
Being on dialysis is like flying away on a great vacation but just circling above airport and never landing at your destination. You're on your way to somewhere you want to be but you don't know when you'll land and you may run out of fuel while you're waiting.
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paul.karen
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« Reply #1 on: February 25, 2011, 07:48:02 AM » |
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Being on dialysis is like a recurring nightmare. The ending never changes yet it comes night after night after night.
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Curiosity killed the cat
Satisfaction brought it back
Operation for PD placement 7-14-09
Training for cycler 7-28-09
Started home dialysis using Baxter homechoice
8-7-09
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chook
Sr. Member
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Posts: 774
Born to be a Granma!
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« Reply #2 on: March 05, 2011, 08:39:27 AM » |
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Being on dialysis is something that always comes as a shock, even if you've been expecting it to happen for years.
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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
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rsudock
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« Reply #3 on: March 05, 2011, 08:54:32 AM » |
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Being on dialysis is like when you are really starving for a particular type of food and you are really really craving it. Well you go in for the first mouth watering bite and you drop your fork on the ground! What a disappointment!!!
xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
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Henry P Snicklesnorter
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« Reply #4 on: March 05, 2011, 09:42:46 AM » |
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« Last Edit: October 22, 2013, 03:48:33 PM by Henry P Snicklesnorter »
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peleroja
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« Reply #5 on: March 05, 2011, 12:35:02 PM » |
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Being on dialysis is like having your spine pulled out through the top of your head. And I'm not even to the hard part yet with the needles, still have a permacath.
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Stoday
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« Reply #6 on: March 05, 2011, 06:21:17 PM » |
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Being on dialysis is like a 1960's horror film. The most horrible thing they could think of was Dracula, the vampire. Sucking blood of his victims was the epitomy of horror. Now my blood is sucked three times a week by an electromechanical vampire. And I have the tooth marks in my arm to show for it. And it lasts for four hours a time.  |
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Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
Started hemo July 2010
Heart Attacks June 2005; October 2010; July 2011
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galvo
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« Reply #7 on: March 05, 2011, 09:19:02 PM » |
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Being on dialysis is like sitting in God's waiting room attached to a machine.
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Galvo
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okarol
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« Reply #8 on: March 06, 2011, 02:34:52 AM » |
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Jenna said - being on dialysis is like waiting for a bus.
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kamar55
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« Reply #9 on: March 06, 2011, 04:20:40 AM » |
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Jenna said - being on dialysis is like waiting for a bus.
I agree and when the dialysis session is over you feel like you've been run over by a bus... |
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Want unconditional love? Want a friend for life? Adopt an animal from your local shelter. It's a win, win situation!!
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kamar55
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« Reply #10 on: March 06, 2011, 04:22:04 AM » |
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Being on dialysis is like a 1960's horror film.
The most horrible thing they could think of was Dracula, the vampire. Sucking blood of his victims was the epitomy of horror.
Now my blood is sucked three times a week by an electromechanical vampire. And I have the tooth marks in my arm to show for it. And it lasts for four hours a time.
LOL perfect way to put it  |
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Want unconditional love? Want a friend for life? Adopt an animal from your local shelter. It's a win, win situation!!
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sammiejo23
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Quand la vie devient dure, deviens plus dure.
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« Reply #11 on: March 06, 2011, 06:50:37 AM » |
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Being on dialysis is like the itch you can't scratch. You know you have it, but can't do a damn thing about it!
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01/05/2011-Full Right Nephrectomy (Malignant Tumors)
01/24/2011-Permacath Placed; Dialysis Started
01/28/2011-Fistula Placed
Current: In-Center Hemodialysis/3x a week
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Hazmat35
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« Reply #12 on: March 06, 2011, 08:44:37 AM » |
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. . . is like having one foot on a banana peel and the other in the grave!  And by the way, who gave you permission to eat that BANANA!!!!!!! LOTS OF POTASSIUM!!!! Take you binder! |
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Brother Passed away - 1990 - Liver Disease Diagnosed w/ Polycystic Kidney Disease - 1998 Mother passed away - Feb. 1999 - PKD Sister passed away - Feb. 2006 - PKD AV Fistula / Upper Left Arm - September 2009 Father passed away - September 2009 In-Center Hemo Dialysis - April 2010 Broken Knee Cap - January 2015 Diagnosed w/ A-Fib October 2017 Surgery to repair Hiatal Hernia 2018 Multiple Fistula Grams / Angioplasty's since then! Hating Dialysis since Day 1 and everyday since then!!!!  |
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FindingNeverland
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Cancer Survivor/Young Idealist
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« Reply #13 on: March 06, 2011, 01:42:39 PM » |
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Being on dialysis is like watching reruns of a television show you absolutely hate.
Being on dialysis is like hearing the same song played over and over again.
Being on dialysis is like being caught in a revolving door, you want to leave for good but you find yourself coming back.
Being on dialysis is like tethered swimming, you can kick and flail about all you want but you're still stuck there.
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~*Laughter is the Language of the Soul*~
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iketchum
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« Reply #14 on: March 06, 2011, 04:19:40 PM » |
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Being on dialysis is like being a pin cushion three days a week.
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chook
Sr. Member
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Born to be a Granma!
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« Reply #15 on: March 06, 2011, 04:24:28 PM » |
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Being on dialysis is like being in a fridge for 4 hours.Brrr! But a fridge with music, thanks to my iPOD.
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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
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Tracy
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Loved the Movie!
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« Reply #16 on: March 07, 2011, 07:40:29 AM » |
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Being on Dialysis i like having forced tv time 3 times a week.
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9/1990 Found out I have Type 1 Diabetes
7/2008 Told I have GFR 30
2/2009 Kidney/Pancreas Transplant
5 days later, both removed due to massive rejection
Back on List
2/26/10 Fistula placed
3/11/10 Told GFR 9
5/14/10 Started in center Hemo
Waiting on another Transplant
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Brightsky69
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« Reply #17 on: March 07, 2011, 12:59:47 PM » |
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Being on dialysis is like being in limbo.
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Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
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willowtreewren
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« Reply #18 on: March 07, 2011, 02:04:36 PM » |
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Wife to Carl, who has PKD. Mother to Meagan, who has PKD. Partner for NxStage HD August 2008 - February 2011. Carl transplanted with cadaveric kidney, February 3, 2011. |
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chook
Sr. Member
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Born to be a Granma!
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« Reply #19 on: March 07, 2011, 11:17:37 PM » |
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It's good to have some positive thoughts mixed in here, too.
I'll try.
Being on dialysis brought me to IHD and a whole new circle of cyber-friends!
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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
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Des
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« Reply #20 on: March 08, 2011, 02:49:00 AM » |
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is like living life under a big shady tree - every now and again the sun shines through and life don't seem so bad any more.  |
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...
South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
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