Bad day

[qmdono]

  Has dialysis ever made you have a bad day ? Well it has for me I'm 20 years and I get to spend my prime years doing dialysis that really pisses me off ,changing bags, setting up machines, making sure every thing is clean !. It can all kiss my  , in truth this is kind of a stupid question I'm sure all of you have had bad days on dialysis, who hasn't besides people who aren't  on it . So tell me about your bad days ! 

[cattlekid]

I just started dialysis a little over a month ago and I agree that dialysis can make for some bad days.  I've pretty much figured out that I can't go over 3 k for fluid removal....anything over that and I cramp, get really low blood pressure, dizziness, nausea, the whole nine yards.  I hate that two nights out of the week, I go home and am worthless.  It just aggravates me that I feel like part of my life is gone.  But this is also why I like in-center hemo - get it done away from home and then come home to being "normal".

What kind of dialysis are you on?

[rsudock]

I do in center D 3 times a week and my worse day was having an allergic reaction to the dialyzer! Yikes couldn't breathe, tongue numb and tingly, eyes all blood shot...then I started puking and pooping all at the same time! Good grief that was the pits...thankfully it hasn't happen again!!

xo,
R

[jojosmommy]

I can tolerate dialysis most days for myself.  What makes me have a bad day is when my 5 year old daughter is in tears, telling me how much she misses me when I'm gone to dialysis, and how much she wishes she could have our "old" life back.  It's heart breaking. 

Otherwise, I have bad days when this one particular nurse does stupid things that cause me problems.  Grrrr!!!! I hate that!

[chook]

My bad days will pale into insignificance following jojosmommy's post - that would have to be so hard. I'm glad my girls are all grown up. It must be so hard to deal with renal failure and manage a young family as well. Hats off to those that do.

I had two weeks of bad days on haemodialysis - blown vein, other health complications and little things that made me overanxious. I was already anxious with a capital A. In 6 weeks of haemo I've had the heparin delivered incorrectly, a litre of saline run through in error and been cannulated with the wrong size needles. This is in an excellent D unit with staff that care. How easy it is for things to get mucked up. I try to be watchful and learn but as HD is temporary for me it is a steep learning curve. Apart from the blown vein, none of things impacted on me too much. Never, ever want another blown vein though. That was the worse and such a shock. No-one's fault, just very new fistula and newbie patient.

[Stoday]

A bad D day for me is when the nurse hits the nerve that runs alongside my fistula. A sharp pain shoots down my arm right down to my fingertips and I can't help but yell out.

Last week a woman who is currently on a catheter but is having a fistula put in told me she was being put off by my screams  .

But my bad day is a mere nothing compared with poor rsudock. I got similar symptoms from cinacalcet (sensipar in the US), but I was at home, so not as bad as in a clinic