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Author Topic: Hello from India  (Read 2305 times)
kumar
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« on: February 20, 2011, 10:25:44 AM »
Hello everybody,
                      I am kumar from india and am here for my sister.

She is 40, was diagnosed with neurogenic bladder around 14 years back and the back pressure gradually took a toll on her kidneys.
We started hemo 2 and half years ago(home hemo) and i now understand why it is such a stressful experience.
I am a doc by profession and that is both a blessing and curse cause docs are horrible patients.
 I am not used to writing much, so excuse my short introduction.
Looking forward to making some friends and sharing experience with you guys.

Love,
kumar.
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Zach
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"Still crazy after all these years."
« Reply #1 on: February 20, 2011, 10:28:28 AM »
Welcome Kumar, glad to have you join our community!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
monrein
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Might as well smile
« Reply #2 on: February 20, 2011, 11:20:54 AM »
 :welcomesign; to IHD Kumar.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
murf
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« Reply #3 on: February 20, 2011, 01:37:54 PM »
What government support do you receive? In other words, how much does dialysis cost in India. What happens if s patient cannot afford dialysis? TIA.
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Started Hemodialysis Anzac Day 2005
Patiently waiting for a transplant
Started PD New Year 2010
Taken off transpalnt list, Jan 211
willowtreewren
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My two beautifull granddaughters

WWW
« Reply #4 on: February 20, 2011, 02:30:42 PM »
Welcome, Kumar!

 :waving;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
looneytunes
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Wishin' I was Fishin'
« Reply #5 on: February 20, 2011, 05:44:03 PM »
Hi Kumar and welcome!  :welcomesign;  Bless you for being there for your sister. 
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"The key to being patient is having something to do in the meantime" AU
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #6 on: February 21, 2011, 06:48:18 AM »
hello Kumar! I am half Indian :)
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
peleroja
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I have 16 hats, all the same style!
« Reply #7 on: February 21, 2011, 07:57:35 AM »
Welcome to the group, Kumar.  I think it's great you want to know more about your sister's dialysis.  Glad you found us!
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kumar
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« Reply #8 on: February 21, 2011, 10:55:50 AM »
Hello,
      Thank you everybody for such a warm welcome.

Murf, Hemo facilities are present in state run medical colleges which provide dialysis at a negligible cost.
Govt run hospitals which have a well maintained water treatment system and regular technicians are found in select few cities(eg.mumbai) and they are already packed to capacity.
So, frankly the govt does very little for dialysis patients.
Dialysis is way down on the priority list of the health department.
Sadly,infectious diseases still eat up a lot of resources here.

The poor are helped to a certain extent by some private hospitals which receive funds from some non government organisations and such.
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galvo
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« Reply #9 on: February 22, 2011, 04:54:47 AM »
G'day, Kumar, and  :welcomesign;.
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Galvo
karrye
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If Life give you Limes, make lemonade instead.
« Reply #10 on: February 23, 2011, 08:30:34 AM »
Greetings and welcome to IHD!
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Caregiver to husband:
Had surgery April 25, 2011 to bring fistula nearer to top of the skin.
Had staples removed from surgery on fistula May 3, 2011
Who started dialysis 1st week of December 2010.
Complete kidney failure November 30, 2010.
Surgery for 95% blockages in his right carotid and jugular February 22, 2011
Heart attack -- January 24, 2011
Chemotherapy -- September 2009 to April 2010
Colon Cancer -- April 2009
Colon removed --August 2009
Diagnosed with diabetes, Summer of 1996.
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