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Author Topic: Pretty content in Pensacola  (Read 3783 times)
Danish
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« on: February 20, 2011, 09:14:19 AM »
I always felt that I was extremely healthy until I was diagnosed with pulmonary fibrosis and emphysema.  I then ended up in the operating room having triple bypass surgery and then found myself having dialysis.  Instead of being healthy, I was a train wreck!!!!  However, I am adjusting to this new way of life and am thankful for the kind and skillful staff at the clinic that I go to.
I have been having dialysis since August and just started using my fistula although my catheter is still in place.

The renal diet has been tricky and have tried to "be good" but there are times when I dream of a hot fudge sundae and a plate of spaghetti with a rich sauce. 

I used to read and work puzzles but since using my fistula have played with my Ipad (I know I'm really lucky to have one)and while away the time playing scrabble and working jigsaw puzzles. 

It is nice to have found a place where we all have dialysis in common.  Life is good!
« Last Edit: February 21, 2011, 07:16:43 AM by Danish » Logged
peleroja
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I have 16 hats, all the same style!
« Reply #1 on: February 20, 2011, 10:04:54 AM »
Welcome to the group.  Lots of good information and friends here.  Glad you found us!
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Zach
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"Still crazy after all these years."
« Reply #2 on: February 20, 2011, 10:16:34 AM »
It's good to have you here!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
looneytunes
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Wishin' I was Fishin'
« Reply #3 on: February 20, 2011, 05:47:20 PM »
Welcome Danish!   :welcomesign;
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"The key to being patient is having something to do in the meantime" AU
Rerun
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Going through life tied to a chair!
« Reply #4 on: February 20, 2011, 06:00:23 PM »
Hi Danish and welcome to IHD.  Yes, I want an IPAD but our center will not get wifi.  They say it is not a secure system with wifi.  That is about as stupid as saying cell phones might mess up the machine.  That is what they use to say but now everyone uses them including the staff.  So, I guess someday they will catchup with technology.  I'm glad things are going OK for you right now.

Stay tuned at IHD........

Rerun, Moderator             :welcomesign;
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Marsh
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« Reply #5 on: February 20, 2011, 06:19:34 PM »
Welcome from Clearwater! :cheer:
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rsudock
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will of the healthy makes up the fate of the sick.
« Reply #6 on: February 21, 2011, 06:49:32 AM »
hello and welcome!!!
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Danish
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« Reply #7 on: February 21, 2011, 08:29:04 AM »
Thanks for all the warm welcomes.  Frankly, I am having trouble navigating on IHD; in example, how do I post a picture?   I found something that said press the attach picture button in the additional options link but where the heck is it?   Help!!
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Poppylicious
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WWW
« Reply #8 on: February 21, 2011, 09:15:51 AM »
 :welcomesign; Danish!
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
monrein
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Might as well smile
« Reply #9 on: February 21, 2011, 10:38:27 AM »
 :welcomesign;  to IHD.  I live in Toronto, Canada, but my brother and his wife who gave me a kidney two years ago live in Navarre, not far from where you live.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Danish
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« Reply #10 on: February 21, 2011, 05:11:59 PM »
Quote from: Rerun on February 20, 2011, 06:00:23 PM
Hi Danish and welcome to IHD.  Yes, I want an IPAD but our center will not get wifi.  They say it is not a secure system with wifi.  That is about as stupid as saying cell phones might mess up the machine.  That is what they use to say but now everyone uses them including the staff.  So, I guess someday they will catchup with technology.  I'm glad things are going OK for you right now.

Stay tuned at IHD........

Rerun, Moderator             :welcomesign;
 
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Danish
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« Reply #11 on: February 21, 2011, 05:18:25 PM »
Quote from: monrein on February 21, 2011, 10:38:27 AM
:welcomesign;  to IHD.  I live in Toronto, Canada, but my brother and his wife who gave me a kidney two years ago live in Navarre, not far from where you live.

Yes, Navarre is only a few miles down the road; a lovely beach area.  Thanks for the welcome.
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Danish
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« Reply #12 on: February 21, 2011, 05:20:44 PM »
Quote from: Rerun on February 20, 2011, 06:00:23 PM
Hi Danish and welcome to IHD.  Yes, I want an IPAD but our center will not get wifi.  They say it is not a secure system with wifi.  That is about as stupid as saying cell phones might mess up the machine.  That is what they use to say but now everyone uses them including the staff.  So, I guess someday they will catchup with technology.  I'm glad things are going OK for you right now.

Stay tuned at IHD........

Rerun, Moderator             :welcomesign;


Your clinic's reasoning in re wifi makes no sense to me.  Hope the light dawns soon and you can get your Ipad.
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Henry P Snicklesnorter
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« Reply #13 on: February 21, 2011, 05:44:15 PM »
.
« Last Edit: October 23, 2013, 12:13:32 AM by Henry P Snicklesnorter » Logged
Henry P Snicklesnorter
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« Reply #14 on: February 21, 2011, 05:58:49 PM »
.
« Last Edit: October 23, 2013, 12:12:37 AM by Henry P Snicklesnorter » Logged
karrye
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If Life give you Limes, make lemonade instead.
« Reply #15 on: February 23, 2011, 08:53:54 AM »
Welcome Danish!!! Huge hugs btw too!  You have found a very good site filled with caring and supporting people.  Each of which I am grateful for!
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Caregiver to husband:
Had surgery April 25, 2011 to bring fistula nearer to top of the skin.
Had staples removed from surgery on fistula May 3, 2011
Who started dialysis 1st week of December 2010.
Complete kidney failure November 30, 2010.
Surgery for 95% blockages in his right carotid and jugular February 22, 2011
Heart attack -- January 24, 2011
Chemotherapy -- September 2009 to April 2010
Colon Cancer -- April 2009
Colon removed --August 2009
Diagnosed with diabetes, Summer of 1996.
monrein
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Might as well smile
« Reply #16 on: February 23, 2011, 12:26:42 PM »
So Danish, if you have any pets and need a good vet, my brother owns and operates the Wynn Haven Animal Clinic. 

 http://www.wynnhavenanimalhospital.com/Wynn_Haven_Animal_Hospital/Welcome.html
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
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