Cheers From Vancouver

[Kash597]

Hi Guys,
My name is Kash, I have been reading IHD for a while now as a guest but then i decided to join and share a bit of my story aswell. Well im not a dialysis patient but my fiance is, and let me tell you as much as i see and try to feel and be there, but it is still unbelievably not comparable with the pain and suffering you guys are going through trying to fight it.
 
  My fiance lives in Calgary and i'm in Vancouver. We got separated because of her work and my school (UBC). it was a good idea since she was making good money so we could save some until i finish my school. Then in July she caught a very bad cold and we found out that its called "swine flu" ! She was sick for a week or so and according to doctors ( after some numerous tests and shots) everything was dealt with and under control...pheww boy were we happy that was over ! she never had any health issues nothing what so ever. then she got sick again in Aug with a bad ache in the back area ! so we're off to the doctors ! After a couple of tests (again!) here goes the doctor saying both of her kidneys are infected and one of them is almost dead ! we were shocked why they couldn't diagnose it before... i mean we were at the Doctors every week and she had taken every tests you can imagine, Blood, urine, etc.

 I'm Sure most of you still remember how you felt when you heard sucha news...well we were no better. after a couple of visits the Doctor suggested that if we take one of the kidneys out the other one witch is not badly infected would power up and everything is going to be fine... I mean he was so confident and didn't care at all. it was like its just a simple headache to him I almost thought i was a fool crying my eyes out for that past days and nights. long story short, we had the surgery and what do you know, it hasn't worked at all. Now hes talking about dialysis and We don't have any other choices do we? Her creatinine level was 8 at that time.

 So she started dialysis in September and had done it three times a week since...Her creatinine level has come down to around 3.6 and overall kidney function has improved from 15 to 23 percent.the Doctor says we could stop dialysis when it reaches 26 but i dont know if i can trust him after all this. during the proses she has got kidney stones and liver stones aswell. I dont know whats going to happen next but i'm trying not to loose my hope.
 
 I hope I didn't talk too much. I tried to be as short as possible. I have read some of your stories and boy Once again I hope every single one of you guys fight it off, feel better and the damn doctors can find a real solution for kidney disease.
Cheers.

[boswife]

WoW!  and    What a road you have been down!  And.......... you didnt talk to much!  It's really good to get an introduction like yours.  I am wife cargiver to hubby, and it's a real team thing this dialysis.  I really want to respond correctly to your post, but im super tired tonight so will just give you my best welcome, and please come often and vent, and ask all you can.  Lots of great info here..  blessings

[galvo]

G'day kash and  .

[looneytunes]

Hi Kash and welcome to IHD.    Glad you came out of the shadows to join in.   We have several Canadians as members here so you'll feel right at home.  How blessed your fiance' is to have you with her through this.  As Boswife said, it really is a team event.  I also am a caregiver to my hubby.   It at times is a full time job just being quality control for the medical professionals.  Great intro and I hope to see you on the boards. 

[Poppylicious]

  Kash!  How awful for it to be so sudden.  My Blokey (husband) is the one on dialysis; it's horrid to have to watch our loved ones go through such pain and whatnot, eh?  I really hope the doc is right and that things work out for your fiancee.

[Kash597]

Thank you Guys making me feel welcomed. One of the best decisions i have made for a while to join IHD. Its a great feeling to see you are not alone, and there are such wonderful people in here with kind hearts willing to help each other and take some of you pain away is just unbelievable.

[Rerun]

Hello Kash and welcome to IHD.  You are doing the right thing by reading up on dialysis and what all to look for and ask.  The doctors hate it when we know what we are talking about.  You guys have had a rough road.  It is possible for her kidney function to return to a level where she will be off dialysis for a time.....  But, you need to try to get her listed for a transplant. 

So glad you joined.

Rerun, Moderator         

[Kash597]

  It is possible for her kidney function to return to a level where she will be off dialysis for a time.....  But, you need to try to get her listed for a transplant. 

So glad you joined.

Rerun, Moderator         

Hi Rerun,
Thank you for your reply. I personally hope you are not right (u possibly a doctor? lol ) although you might be right.  But why wont they say so ? he says were not allowed to list her till her kidney function has gone down under 15% ! its like " i can't help you untill you're almost dead !".  She is from IRAN and as you probably know she could have gotten her transplant within a week in there... so i mean why go through all this if its not going to work ? we have spent every penny we had saved. Once i thought i have more money in may bank than my proff at school, now i have hard time paying rent lol !

[paris]

Welcome Kash,  You wrote a very informative intro.  What an incredible road you two have been on.  I am so sorry that your girlfriend has had such a rough time.  The swine flu can be very bad for some people.   You will never be alone again -- you now have us     There is great information here, but the support is unbelievable.  It is comforting to talk to others who completely understand kidney failure.  It is a very hard disease for the whole family.   Keep reading, learning and asking questions.  I look forward to reading more of your posts.   Welcome to IHD   



paris, Moderator

[Cordelia]

Welcome to the forum! Glad to meet a fellow Canadian!

[rsudock]

hi kash have you considered getting another medical opinion and switching docs? sounds like your doc is to cavalier about taking peoples' kidneys out!