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Author Topic: Hated dialysis for Almost 40 Years  (Read 3341 times)
wj13us
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Paul's ride 2011
« on: January 17, 2011, 06:51:01 AM »
I came across this site while searching for a copy of the documentary narrated by Edwin Newman about the lack of dialysis machines in 1965.

I was on dialysis for 11 months in the 70's and hated every second of it.  I had to be dialyzed for 5 hours 3X per week, could not take the standard 6 hours.  I got really sick each and every time.  Fortunately my Uncle steeped up and donated one of his kidneys.  That was 1973.  I'm now (cough cough) 51 years old and will soon celebrate by 38th anniversary with the same transplant.  If anything I think it is my hate for dialysis that made my transplant last so long.

Bill
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #1 on: January 17, 2011, 08:39:29 AM »
congratulations on your enduring transplant.   
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
peleroja
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I have 16 hats, all the same style!
« Reply #2 on: January 17, 2011, 09:25:03 AM »
38 years; I think that''s the longest transplant I've heard of.  Many pats on the back to whatever you are doing that it has lasted so long.  Welcome to the group. 
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galvo
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« Reply #3 on: January 17, 2011, 05:01:06 PM »
G'day, Bill and  :welcomesign;.
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Galvo
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will of the healthy makes up the fate of the sick.
« Reply #4 on: January 17, 2011, 05:08:28 PM »
welcome!
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Sax-O-Trix
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« Reply #5 on: January 17, 2011, 05:20:41 PM »
38 years!  I like to hear stats like that!  :clap; :welcomesign;
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Preemptive transplant recipient, living donor (brother)- March 2011
Zog
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« Reply #6 on: January 17, 2011, 05:37:19 PM »
Wow.  Welcome.
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My wife is JDHartzog. In 1994 she lost her kidneys to complications from congenital VUR.
1994 Hydronephrosis, Double Nephrectomy, PD
1994 1st Transplant
1996 PD
1997 2nd Transplant
1999 In Center Hemo
2004 3rd Transplant
2007 Home Hemo with NxStage
2008 Gave birth to our daughter (the first NxStage baby?)
looneytunes
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Wishin' I was Fishin'
« Reply #7 on: January 17, 2011, 09:49:38 PM »
Hi Bill and welcome to IHD!  The longevity of your transplant will be an inspiration to a lot of folks here.  Glad to have you join.   :welcomesign;
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"The key to being patient is having something to do in the meantime" AU
Poppylicious
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« Reply #8 on: January 18, 2011, 09:36:48 AM »
Wowsers! That's some kidney you have there! 

 ;D
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- wife of kidney recepient (10/2011) -
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Everything was beautiful, and nothing hurt.
cariad
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What's past is prologue
« Reply #9 on: January 18, 2011, 03:36:07 PM »
Hey Bill! 

:welcomesign; from another 70s transplant veteran and former dialysis child. My first transplant lasted 34 years almost to the day, and I had a (for all intents and purposes) preemptive transplant last March. I too hated every second of dialysis, though I was only on for a month, and I think I had a total of 16 sessions. Then I had 5 runs in the week before my transplant using a tunneled line and it was just as miserable as I remembered. :P

My theory for myself is that non-adherence contributed to the long life of my transplant. I like yours, too - hate is a powerful motivator when used correctly.

Anyhow, good to have you here and I hope you'll be visiting us often.
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Kay
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« Reply #10 on: January 18, 2011, 03:54:47 PM »
Really fabulous news. Welcome to IHD - here's to your next thirty years - God bless you and keep you well!
Kay
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DrMoskowitz
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My goal is to make the world dialysis-free by 2015

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« Reply #11 on: February 19, 2011, 08:30:11 AM »
Hi Bill,

You're unusually lucky with the life of your transplant. Normally they last around 5-7 years before you need a new one.

Given that, the waiting list for a new kidney is absurdly long. The easiest way to shorten it is to prevent most new cases of dialysis. Fortunately, the paper showing how to prevent 90% of dialysis has already been published. Unfortunately, the renal community has kept it out of the media by the simple expdient of refusing to endorse it.

After 8 1/2 years of trying to find a single righteous nephrologist (details are at http://tinyurl.com/healthcrime), I'm now appealing to patients who know how God-awful dialysis truly is to help me get word out about my paper. Could you call up a local newspaper or TV health reporter and tell him/her to contact me? Could you do it to keep others off the kidney machine? Could you do it so you'd be able to get a new cadaver kidney in no time, in case you needed one again?

Best regards,

Dave Moskowitz MD FACP
CEO & Chief Medical Officer
GenoMed (www.genomed.com)
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David W. Moskowitz, MD, MA(Oxon.), FACP
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GenoMed, Inc.
"The public health company(TM)"
 
9666 Olive Blvd., Suite 310
St. Louis, MO 63132
website: www.genomed.com

Cell phone 314-378-7864
Office phone 314-983-9938
FAX 314-754-9772
email: dwmoskowitz@genomed.com
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BillSharp
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rock 'n roll will never die
« Reply #12 on: February 19, 2011, 10:46:06 AM »
Quote from: wj13us on January 17, 2011, 06:51:01 AM
I came across this site while searching for a copy of the documentary narrated by Edwin Newman about the lack of dialysis machines in 1965.

I was on dialysis for 11 months in the 70's and hated every second of it.  I had to be dialyzed for 5 hours 3X per week, could not take the standard 6 hours.  I got really sick each and every time.  Fortunately my Uncle steeped up and donated one of his kidneys.  That was 1973.  I'm now (cough cough) 51 years old and will soon celebrate by 38th anniversary with the same transplant.  If anything I think it is my hate for dialysis that made my transplant last so long.



Wow! I thought I was pretty lucky to have had my transplant last 20 years. Congratulations on 38 years and counting. I'll bet you are totally compliant with your medications and doctor ordered life style events. I was. I should have had more kids -- LOL.

Bill
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Started passing stones at age 14 (Cystinuria)
Transplant in 1989 at age 50
Transplant failed in 2009 at age 70
Hemo and transplant list
Cadaver Transplant 7/1/2011 at age 72 (zero mismatch)
paris
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« Reply #13 on: February 19, 2011, 06:55:58 PM »
38 years!  Tell us your secret and what you did to help keep your transplant for so long??!!   I am almost 6 months post transplant and reading your post gives me inspiration!  I'm going to do anything and everything I need to do to be just like you!!   Congratulations.  I am so glad you joined this site.  It has wonderful members who help each other everyday.   Post often and share more of your incredible story.  Welcome to IHD.



paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
lola
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I can fly!!!
« Reply #14 on: February 19, 2011, 06:59:46 PM »
 :welcomesign; and WOW!!!!!!!
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Ang
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« Reply #15 on: February 19, 2011, 07:17:43 PM »
 :welcomesign;

38 + Years is what we all strive for with a transplant :thumbup;
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