Hello

cytoxin

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Hello

« on: January 25, 2011, 07:57:56 PM »

Hi, new to the board. First diagnosed with kidney disease approx 10 years ago, waited till kidney function dropped to 3% to start dialysis, as I'm very physically active and didnt feel any bad side effects till then. I'm 39 and work from home doing consulting and am also a personal trainer and aerobic group fitness instructor.


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ACE Certified Personal Trainer
YMCA Group Fitness Instructor

Chris

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Re: Hello

« Reply #1 on: January 25, 2011, 11:08:42 PM »

Hello cytoxin,
Now I'm trying to remember medical terms on what cyto means in latin.

Keep upwith being physical, I think that helped me. When I got adjusted to dialysis, I would walk or ride my mountain bike to my center that was only 6 miles away.


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Diabetes - age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
   -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
   - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures - Priceless

No two day's are the same, are they?

galvo

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Re: Hello

« Reply #2 on: January 26, 2011, 02:05:45 AM »

G'day cytoxin and


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Galvo

rsudock

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will of the healthy makes up the fate of the sick.

Re: Hello

« Reply #3 on: January 26, 2011, 03:03:19 AM »

hi glad u r here!!!

xo,
R


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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?

Cordelia

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Posts: 2012

Re: Hello

« Reply #4 on: January 26, 2011, 06:44:33 AM »

Hello and


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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs, Mom to 3 kids to twin daughters (One that has PKD) and a high-functioning Autistic son

Poppylicious

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Re: Hello

« Reply #5 on: January 26, 2011, 07:29:34 AM »

cytoxin!


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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.

peleroja

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Posts: 1585