ready to give up...

[RichardMEL]

Franky2222 - I respect your decision - it is your body and your life and yours to decide what  to do with it.

The only thing I would say, having done 4 and a half years of incentre hemo (5 hour shifts), is that it seems to me that part of your fear is based on a worst case scenario of what MIGHT happen, not what WILL. I was never in a wheelchair, I was able to work almost full time while doing dialysis, and I had enough energy to exercise and enjoy a reasonable quality of life within the restrictions.

Now yes I know not everyone is like that, but there are many members on this site who have been on dialysis far longer than that and do all kinds of things with their lives and do not let dialysis run them.

You complain about the treatment (or lack of it) you're getting in centre, what if you organised to do hiome training so you could manage it all yourself? Would that be an option? Then you'd be sure of how you were being treated?

You said you changed centers 3 times - why? Were they ALL that bad?

Again I can only go on from what I read here that you've posted so maybe I am making some unrealistic assumptions or connections, but again I think you're focusing on outcomes that may never actually occur to you. Dialysis doesn't have to be a slow spiral downwards. The whole idea is to keep you at a stable and functional level. If you aren't getting that you need to talk to your neph about that and get it sorted. Dialysis is to assist you to LIVE. Many examples here exist of those who DO live with dialysis - and live well (way better than I did!).

Again I respect your decision, I am just voicing my opinion which can be taken with a grain of salt or three.

[FRANKY2222]

YES, they were ALL that bad!!!!!
And I didn't give ALL the details cause it's hard 4me2type because m legally blind

[FRANKY2222]

It is now a full week since I stopped HD ,and I feel great!

[looneytunes]

Sullidog, I asked our home hemo nurse about your question regarding placement of needles and she said it was not a good thing but sometimes necessary until an acess problem is taken care of.  Please keep pushing for them to fix the problem and not just deal with it.   

[Tracy]

I am sure that we all have had those feelings before, I know I have.  It is the hardest thing I've ever done, just to keep on keeping on.  My prayers are with you.  May God give you strength to put one foot in front of the other to get to dialysis and that all will work out for you.

[Des]

Well now they are putting my needles very very close together just to get a good bloodflow rate, but isn't needles putting very close together bad for your treatment?

Troy,

My needles have been VERY close to each other for 10 months now as my fistula is still developing. Just ensure that you get a K/tv higher than 1. This is not ideal but at least it is better than nothing.

Hang in there my friend.

[Des]

It is now a full week since I stopped HD ,and I feel great!

Franky, I am thinking of you and wishing you well.  My prayers are with your.

[carol1987]

Genlando
Thank you 4taking the time 2write2me.
I have complained over & over,problem is TOO FEW do complain...they r too tired!   
I've lived a good life until I met ESRD and the HELL of treatment centers .
Take care ,my friend. C u in the next adventure,!

I wrote you  a private message. 

Hi everyone!  I missed you all.  I'll make a post to explain.
donna

Hi Donna!!!