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Author Topic: New to IHD but not new to hating Dialysis!  (Read 1734 times)
Ldy
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« on: January 12, 2011, 05:15:36 PM »
Hi All,

I am the wife and caregiver of Bob (1sickbob). As the subject says we are new here and fairly new to dialysis (6 months this time 6 weeks several years ago) and YES we hate it already! But what ya gonna do? Better than the alternative huh? As Bob said in an earlier post we were expecting this so we had already planned home hemo. We use the NXStage with Pure FLow 6 nights a week approximately 3.25 hours a night. Going in tomorrow for the 2nd fistula surgery since the 1st one is not playing nice after only 5 months of use. We're looking forward to getting to know people here and sharing stories with people who understand what we are going through.

See you all soon!
Monica
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rsudock
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will of the healthy makes up the fate of the sick.
« Reply #1 on: January 12, 2011, 05:26:58 PM »
welcome!!!

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Rerun
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Going through life tied to a chair!
« Reply #2 on: January 12, 2011, 05:48:34 PM »
Welcome Ldy.  I'm glad you are both on here!  I hope you get comfortable with NxStage soon. 

Looking foreward to your posts.

Rerun, Moderator     :welcomesign;
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galvo
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« Reply #3 on: January 12, 2011, 07:09:23 PM »
G'day Monica and  :welcomesign;.
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Galvo
looneytunes
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Wishin' I was Fishin'
« Reply #4 on: January 13, 2011, 06:28:40 AM »
Hello Ldy and I also welcome you to IHD.  I think it's great that you both have joined!   :welcomesign;
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"The key to being patient is having something to do in the meantime" AU
1sickbob
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« Reply #5 on: January 14, 2011, 12:35:14 PM »
Welcome Sweetheart!!!...no everyone I dont go around calling everyong sweetheart...just my wife.  LOL
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Waiting for the call...can't come soon enough!
MooseMom
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« Reply #6 on: January 14, 2011, 12:37:13 PM »
Oh cool!  Both of you have joined!  Brilliant!  I'll be looking to you two for some advice!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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