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I Hate Dialysis Message Board
Dialysis Discussion
Dialysis: Home Dialysis - NxStage Users
Homedialysis.com INTERVIEWED me, thought you guys might like to take a look.
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Topic: Homedialysis.com INTERVIEWED me, thought you guys might like to take a look. (Read 4805 times)
Epoman
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Homedialysis.com INTERVIEWED me, thought you guys might like to take a look.
«
on:
January 05, 2007, 07:00:24 PM »
Homedialysis.com is where I learned a lot about the NxStage machine, in fact they were the reason I pursued NxStage as an option. I was DEAD-SET AGAINST "Daily Dialysis" when I first joined. But the folks over there talked me into it. And here I am on Home Dialysis and loving my FREEDOM. I hate finding pictures of myself to give to media outlets as I have a bad self-image. That's why I gave them a picture with Epokid and Epowife to distract people from my ugly mug.
Here is a link to my "Patient Profile" as they call it. (Interview).
http://www.homedialysis.org/v1/profiles/profiles/halcomb.shtml
Let me know what you think.
- Epoman
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- Epoman
Owner/Administrator
13+ Years In-Center Hemo-Dialysis. (NO Transplant)
Current NxStage & PureFlow User.
Please help us advertise, post our link to other dialysis message boards. You
Zach
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"Still crazy after all these years."
Re: Homedialysis.com INTERVIEWED me, thought you guys might like to take a look.
«
Reply #1 on:
January 05, 2007, 07:38:36 PM »
Great article!
Patient information=Empowerment
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant. Not yet, anyway. Only decided to be listed on 11/9/06. Inactive at the moment.
I make films.
Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat 5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600; Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -): 2,450 Calories, 84 grams Protein/day.
"Living a life, not an apology."
Sluff
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Re: Homedialysis.com INTERVIEWED me, thought you guys might like to take a look.
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Reply #2 on:
January 05, 2007, 07:47:14 PM »
That was an awesome article because it was a short description of your experiences on dialysis, your downs, and yet it ended on a positive tone plus credit was given for your past support sites and IHD.
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Black
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Re: Homedialysis.com INTERVIEWED me, thought you guys might like to take a look.
«
Reply #3 on:
January 05, 2007, 08:35:13 PM »
I think it is terrific and the pic is adorable of all three of you!!
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Lorelle
Husband Mike Diagnosed with PKD Fall of 2004
Fistula Surgery 1/06
Fistula Revision 11/06
Creatinine 6.9 1/07
Started diaysis 2/5/07 on NxStage
charee
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Re: Homedialysis.com INTERVIEWED me, thought you guys might like to take a look.
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Reply #4 on:
January 05, 2007, 08:51:06 PM »
That was a great article
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Home Hemo 18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia
Live donors rock
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten
Re: Homedialysis.com INTERVIEWED me, thought you guys might like to take a look.
«
Reply #5 on:
January 06, 2007, 01:32:55 AM »
Just read it. Great article!! Epoman, you are quite a celebrity now in renal circles!! What's next? Oprah?
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"
I LOVE my IHD family!
Joe Paul
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Re: Homedialysis.com INTERVIEWED me, thought you guys might like to take a look.
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Reply #6 on:
January 06, 2007, 02:11:07 AM »
Good reading.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
jbeany
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Re: Homedialysis.com INTERVIEWED me, thought you guys might like to take a look.
«
Reply #7 on:
January 06, 2007, 05:28:04 AM »
Great interview, epo!
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"Asbestos Gelos" (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter". A term used by Homer for invincible laughter in the face of death and mortality.
anja
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Re: Homedialysis.com INTERVIEWED me, thought you guys might like to take a look.
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Reply #8 on:
January 06, 2007, 11:57:03 AM »
It is wonderful that you are able to get so much information out there to the public and never hurts any to make people aware of this great site that has been so helpful to so many!!!!!
Keep up the PR, you're a PRO!
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okarol
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Photo is Jenna - after Disneyland - 1988
Re: Homedialysis.com INTERVIEWED me, thought you guys might like to take a look.
«
Reply #9 on:
January 06, 2007, 12:23:12 PM »
I think your story is a good one (although your introduction on IHD is more fun to read!)
and the picture is really nice. I think you have accomplished a lot - and this site is a good example of that!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
https://www.facebook.com/WantedKidneyDonor
Please watch her video:
http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock!
http://www.livingdonorsonline.org
-
News video:
http://www.youtube.com/watch?v=J-7KvgQDWpU
glitter
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Re: Homedialysis.com INTERVIEWED me, thought you guys might like to take a look.
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Reply #10 on:
January 06, 2007, 08:16:59 PM »
good article,this is a really great site,you have done a good job...
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER
caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
jedimaster
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Stainboy is....alive!!!
Re: Homedialysis.com INTERVIEWED me, thought you guys might like to take a look.
«
Reply #11 on:
January 06, 2007, 08:23:32 PM »
Great article. I donñt see why you have a bad self image...we look the way we look...that is what make us all different and interesting.
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Jill D.
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Re: Homedialysis.com INTERVIEWED me, thought you guys might like to take a look.
«
Reply #12 on:
January 07, 2007, 10:43:24 AM »
Nice article, Epoman! I'm so happy that NxStage has improved your day to day life!
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Diagnosed with FSGS in1990.
Started hemodialysis in April 2006.
Received a new kidney from my sister on Dec. 5, 2006.
Transplant rejection in March, 2009
Approved for second transplant in May 2009
Sister-in-law approved as donor in Dec 2009
Rerun
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Going through life tied to a chair!
Re: Homedialysis.com INTERVIEWED me, thought you guys might like to take a look.
«
Reply #13 on:
January 07, 2007, 08:30:57 PM »
Great article. You are thinking about "nocturnal" dialysis? You really have changed your tune.
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