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Author Topic: Introducing myself  (Read 2228 times)
partj
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« on: December 21, 2010, 08:57:30 AM »

Hi! My name is Turner and I started dialysis April of this year. I am currently doing home Hemo dialysis as of yesterday. Just found this board to be a lifesaver so much information you need and they do not tell you. Fascinating! I am currently scheduled to go on a cruise in europe for 12 days and an extra 3 days in Barcelona. Any info any of you may have as to tips would be appreciated. I will also post this in Travel.

Turner
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YLGuy
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« Reply #1 on: December 21, 2010, 09:01:39 AM »

 :welcomesign; Welcome Turner. Yes, this site is loaded with great information and there are some pretty great people here too.
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Bill Peckham
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« Reply #2 on: December 21, 2010, 12:13:23 PM »

Welcome!!


How did your first home treatment go?
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
sbrown2459
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« Reply #3 on: December 21, 2010, 01:06:03 PM »

My mother took a cruise earlier this year to Alaska. She was going to ask me to go with her on the cruise until she checked out how much more it would be for a person on dialysis. The cuise line said they accepted people on dialysis and could treat them on the ship, but it would cost something like $1200 a day extra!! The extra cost must have something to do with liability in case something goes wrong. Anyway, that was too prohibitive...hope your cruise line has a more reasonable approach. Have fun.
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galvo
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« Reply #4 on: December 21, 2010, 08:54:57 PM »

G'day Turner and  :welcomesign;.
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Galvo
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« Reply #5 on: December 22, 2010, 12:14:02 AM »

   :welcomesign;  to IHD Turner and I hope you have a great time on your cruise.
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One day at a time, thats all I can do.
Desert Dancer
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« Reply #6 on: December 22, 2010, 06:37:57 AM »

Hi, Turner!  :welcomesign; What kind of home hemo do you do?
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
Rerun
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Going through life tied to a chair!

« Reply #7 on: December 23, 2010, 03:55:01 AM »

Hi Turner and welcome to IHD.  I'm so glad you found us!  It sounds like you are doing well.  I hope home treatment goes well for you.  Tell us how the cruise goes.

Rerun, Moderator       :welcomesign;
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rsudock
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will of the healthy makes up the fate of the sick.

« Reply #8 on: December 23, 2010, 05:32:29 PM »

hello and welcome!!
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
kellyt
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« Reply #9 on: December 23, 2010, 05:46:27 PM »

An older gentleman friend of mine took a dialysis cruise and had no issues that I'm aware of.  Have a great time and stay away from people who even look like they might be sick.  :)   Enjoy your cruise!  My husband and I went on a short cruise just months before I transplanted, but I wasn't on dialysis.  We both slept the entire time.   :clap;

Welcome!!!   :waving;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Poppylicious
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« Reply #10 on: December 24, 2010, 03:01:57 AM »

 :welcomesign; Turner!
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
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