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Author Topic: Pre-dialysis patients'perceived autonomy, self-esteem and labor participation  (Read 1561 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: December 08, 2010, 09:31:45 AM »

Pre-dialysis patients'perceived autonomy, self-esteem and labor participation: Associations with illness perceptions and treatment perceptions. A cross-sectional study

Compared to healthy people, patients with chronic kidney disease (CKD) participate less in paid jobs and social activities. The aim of the study was to examine a) the perceived autonomy, self-esteem and labor participation of patients in the pre-dialysis phase, b) pre-dialysis patients'illness perceptions and treatment perceptions, and c) the association of these perceptions with autonomy, self-esteem and labor participation.

Methods: Patients (N=109) completed questionnaires at home.

Data were analysed using bivariate and multivariate analyses.

Results: The results showed that the average autonomy levels were not very high, but the average level of self-esteem was rather high, and that drop out of the labor market already occurs during the pre-dialysis phase. Positive illness and treatment beliefs were associated with higher autonomy and self-esteem levels, but not with employment.

Multiple regression analyses revealed that illness and treatment perceptions explained a substantial amount of variance in autonomy (17%) and self-esteem (26%). The perception of less treatment disruption was an important predictor.

Conclusions: Patient education on possibilities to combine CKD and its treatment with activities, including paid work, might stimulate positive (realistic) beliefs and prevent or challenge negative beliefs.

Interventions focusing on these aspects may assist patients to adjust to CKD, and ultimately prevent unnecessary drop out of the labor market.

Author: Daphne JansenDiana GrootendorstMieke RijkenMonique HeijmansAd KapteinElisabeth BoeschotenFriedo DekkerPrepare-2 Study Group
Credits/Source: BMC Nephrology 2010, 11:35

http://7thspace.com/headlines/366304/pre_dialysis_patientsperceived_autonomy_self_esteem_and_labor_participation_associations_with_illness_perceptions_and_treatment_perceptions_a_cross_sectional_study.html
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
paul.karen
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« Reply #1 on: December 08, 2010, 10:38:59 AM »

The first sentence answers all the questions?

Do people get money to do such studies?

 :secret;  people who are sick dont do as well as healthy people.
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
KarenInWA
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« Reply #2 on: December 08, 2010, 10:55:56 AM »

I am pre-D, and hope to be pre-D for a very long time.  My main goal as my kidneys fail is to hold onto my job.  Not only does it provide me a paycheck, it also is my lifeline with the incredible medical insurance benefits I am lucky to receive.  Also, I rather like RichardMEL's philosophy on working: it makes life normal, and gives one something other than one's disease to think about and focus on! 

KarenInWA
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1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
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