I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
November 23, 2024, 11:03:11 PM

Login with username, password and session length
Search:     Advanced search
532606 Posts in 33561 Topics by 12678 Members
Latest Member: astrobridge
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Off-Topic
| |-+  Off-Topic: Talk about anything you want.
| | |-+  Family rant
0 Members and 2 Guests are viewing this topic. « previous next »
Pages: [1] Go Down Print
Author Topic: Family rant  (Read 2259 times)
Deanne
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1841


« on: November 19, 2010, 08:32:30 AM »

Rant mode on:

I was on sabbatical from work this fall (two months of paid time off). Everyone in my family knew for several months that I had my sabbatical time scheduled. They live in Minnesota, I live in Oregon. I went to visit my family in May.

Before my sabbatical started, my younger sister emailed with a suggestion that we meet up someplace. I jumped at the opportunity with a resounding "YES!" and gave her some suggestions. She never responded.

I spent my whole sabbatical time working on my house. I had to drag just about everything I own out to the garage, rip out my carpeting, tack strips, staples, remove baseboards, etc. I worked my tail off! During it, my mom asked regularly if I was planning a trip back to MN during my sabbatical. I reminded her I was there in May and it was their turn to come to visit me. She always said she was too old to travel.

The end of my sabbatical came. On the Sunday before I returned to work, Mom asked how it was going. I told her I'd still be painting for a long time since it would now have to be a weekend-only project. She said, "We should have come out to help you." I pointed out that I invited them repeatedly, but she always said she was too old to travel. Now that the opportunity is gone, she isnt too old anymore!?  :Kit n Stik;

Back to my younger sister.... She has two vacations planned. One a family vacation to Mexico (understandable, but what happened to wanting to see her sister?) The other is a "girl-trip" next summer. She put it on Facebook that she wants to go to Napa Valley. I responded to her facebook posting that Portland is a nice travel destination. She suggests I join her and her friends in Napa Valley if it isn't very far from Portland (apparently geography isn't one of her strenghts). If she'd suggested I join them up-front instead of only inviting me after the fact, maybe I'd be interested, but it sounds like a "pity" invitation.

My brother has never been out to visit, but I'll cut him some slack because he also never hounds me to come back to see him.

My older sister keeps trying to tell me to come to visit, too, and I don't accept it from her very well, either. She can't afford to travel now, but when she did travel, she went to Florida a couple of years in a row to visit friends, but never out here.

So here's to them all!  :sir ken;

Rant mode off.
Logged

Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
thegrammalady
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3788


« Reply #1 on: November 19, 2010, 10:33:50 AM »

sorry things aren't going better family wise.  i'll come visit  :2thumbsup; i feel bad that the last 2 times i was in corvallis, i didn't even call. i'll probably be around in jan or feb, we'll have to see what we can do.
Logged

s
......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
Deanne
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1841


« Reply #2 on: November 19, 2010, 10:39:31 AM »

Thanks GrammaLady! Don't feel bad about not calling! I know you're very tied up with your family when you're in Oregon. When I go back to MN, it'd be impossible for me to meet up with anyone outside of the family. I'm kind of held hostage in a town of 600 there. I hope your Dad is doing ok.
Logged

Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
looneytunes
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2071


Wishin' I was Fishin'

« Reply #3 on: November 19, 2010, 10:49:34 AM »

Oh Deanne...how well I know your story.  My home has always been the gathering place for family and friends....that is up until hubby started dialysis.  Now it seems like it is THE place to avoid.  We both have family living withing a few hours of here and a lot of friends but it's only at holiday times that we have much company.   
Logged

"The key to being patient is having something to do in the meantime" AU
Deanne
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1841


« Reply #4 on: November 19, 2010, 11:15:53 AM »

Your story is very sad looneytunes! Is it that they're fearful of catching kidney disease, or are they trying to make sure they don't burden you by visits? Do they at least stay in touch by phone / email?  :Kit n Stik; either way!

I keep trying to figure out if it's something I've done / am doing to make them not want to visit, but I don't want to ask them about it because then if they did visit, I'd feel like I guilted them into it. I don't want anyone to visit me out of a sense of responsibility or guilt.

My sisters did both offer to donate, but I wonder if they assumed that this would mean I'd go there for the transplant and they'd change their minds when they found out the transplant would need to happen here. It isn't something I'll ever find out. My neph said my siblings are ruled out as donors because a genetic link has been discovered, making the the chance of recurrance too high.
Logged

Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
del
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2683


del and willowtreewren meet

« Reply #5 on: November 19, 2010, 02:39:42 PM »

Sounds like my family Deanne.  They don't come visit or call or contact me on facebook. Only time I even talk to them is when I make the effort.
Logged

Don't take your organs to heaven.  Heaven knows we need them here.
kitkatz
Member for Life
******
Offline Offline

Gender: Female
Posts: 17042


« Reply #6 on: November 20, 2010, 12:22:25 PM »

Good grief!   :Kit n Stik; :Kit n Stik;
Logged



lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
looneytunes
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2071


Wishin' I was Fishin'

« Reply #7 on: November 20, 2010, 01:15:09 PM »

Agreed, Kit.  And Deanne, I did tell a few of them that ESRD is NOT contagious but the sarcasm didn't seem to register.  Yesterday a 24 yr old nephew who lives in this same area called, wanting to know if we had anyone deer hunting on our farm.  I told him no, we had decided not to allow hunting this year.  He said to me (with that whiny little voice) "not even family?"   I was so p@ssed off....what family?  We don't hear from him unless he wants something.  No offer to help cut wood for us, work cows, or anything else.  And he didn't even ask how his uncle was doing.....grrrr...
Logged

"The key to being patient is having something to do in the meantime" AU
okarol
Administrator
Member for Life
*****
Offline Offline

Gender: Female
Posts: 100933


Photo is Jenna - after Disneyland - 1988

WWW
« Reply #8 on: November 21, 2010, 12:18:28 AM »

These same issues come up every year for me around the holidays. Family's can be so disappointing.
Embrace your good friends, the ones who really come through.
Make plans and have fun. That's what I am doing. (Trying my best anyway.)
 :cuddle;
Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
rsudock
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1351


will of the healthy makes up the fate of the sick.

« Reply #9 on: November 21, 2010, 03:18:54 PM »

sorry to hear this deanna!!
Logged

Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Joe Paul
Elite Member
*****
Offline Offline

Gender: Male
Posts: 4841


« Reply #10 on: November 25, 2010, 10:05:06 PM »

We can pick our friends but we cant pick our family......
Logged

"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
rsudock
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1351


will of the healthy makes up the fate of the sick.

« Reply #11 on: November 26, 2010, 03:07:02 PM »

Just wanted to add something else about how inconsiderate families can be....for Thanksgiving dinner my mom says, "oh I made you pumpkin pie and lima beans..." and i looked at my mom and said, "ma I can't any of that stuff. is it too much to ask for you to try and understand the renal diet? we have been sick our entire lives...better late then never."  she said to send her some recipies and she'll look into it....so we'll see what christmas dinner will look like...finger crossed!  :pray;
Logged

Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Pages: [1] Go Up Print 
« previous next »
 

Powered by MySQL Powered by PHP SMF 2.0.17 | SMF © 2019, Simple Machines | Terms and Policies Valid XHTML 1.0! Valid CSS!