More Complications...

[Lovebelle]

Well the last time I wrote I believe I had mentioned that the Revision Surgery on the 5th went well and my initial flush after that was a success. Well unfortunately a lot changes in a couple days. Well anyway, Tuesday I went in for the 2nd flush of my PD cath and Lo and behold the darn thing didnt work. The nurse didnt have any resisitance manually pushing with a syringe but once the bag went up nothing would happen. You can imagine how upset I was considering I just went through all that and Just had a 2nd surgery to fix this problem and here I am again.

So anyway She wanted to to come in the next day to try the activase routine again. But when I left I began to experience the severe abdominal cramping again and high fever 102.9. I of course put off the inevitable all night and then finally decided to go to the ER in the morning since my temp still was high.

So here I am in the hospital. I have been here since Wednesday Morning and am so miserable. They tried everything they could to try to get the PD cath to work but it just caused more cramping and more fevers and so yesterday I went to Surgery a 3rd time and had to have the Catheter removed. They are saying it was a case of peritonitis which so bizarre to me because I never really used the catheter at all.

I was pretty upset at having to have it removed though because I was looking forward to getting trained and finally going back to work but now another setback. So it seems I am stuck with Haemodialysis through my tunnel cath for now.

Anyway just wanted to share. Thanks.

[okarol]

Wow that sounds awful. I hope you can get this straightened out. I have heard of people getting peritonitis because there's random bacteria in our systems and it can happen to anyone. It seems unfair that you've been through so much and cannot get a working catheter. Best wishes and hugs. 

[billybags]

Lovebelle. Don't dispare this is just a set back. Give it a few weeks and see if they will try again. I know it is not nice going through all this, at the end of the day it it will be better for you to go on to APD, that's my thought any way. Have you asked why this is happening? My husbands second go when he had a flush there was so much sh*t  came out from the operation, you do not know do you.

[VintageVera]

It took me 2 tries/operations to get my pd tubing right but it's been working fine now for 6 months. First time in, it kinked and second operation was to correct that. Hang in there -- home pd with the cycler is a better option that in-center hemo.

[Lovebelle]

Yeah Im trying to keep my head up about it. I know my doctors would like to place a new PD cath in a few weeks so I am hoping that will work. Im just frustrated because I had plans to go out of town for the holidays and now I am not so sure how that is going to work. This is all so sudden since I just found out I had kidney failure and started Hemodialysis all in October. When I first learned about Peritoneal at that time I was hopeful I would be up and trained by the time christmas rolled around so I could still travel. But with these complications things look grim. I suppose travel is still possible on Hemo (with some planning) but if they are doing this surgery around Christmas then Im not sure if Ill be up to the trip.

I am so thankful to come across this sitr though because I feel better knowing others have experienced the same things and this contains a wealth of info.
Thanks everyone

[rsudock]

Lovebelle it is a journey with its up and downs just keep putting one foot in front of the other. You can do it!! You know you can train for home hemodialysis as well. Be careful with the pertonitis. There is a patient in my center who got it some bad that now he has a big gaping hole in his stomach...he told me he can see his intestines...eek! i would rather get poked with needles for hemo.
take care,
xo,
R