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Author Topic: Hating hemo and my timeSe  (Read 1613 times)
ESRD Survivor
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« on: November 19, 2010, 11:09:21 AM »
Seriously, I hate hemo (but then who really doesn't).  The worst part is I was on PD for 8 years then got a transplant that failed in less than 2 years.  Because of the scar tissue I can not do PD.  When I started hemo I was on 3rd shift (2:45pm) and hated it.  I finally got a 6:00 am time and loved it.  Well in trying to get on PD (4 surgeries later) I lost my early time spot because PD work for like a week, then stopped.  Now I am back on the 3rd shift and hate hate hate it.  It makes me emotional for some reason.  Everyone is home and I am at dialysis.  I call to see if they have an early opening (they used to all the time) now they don't seem to.  I try to have a good attitude, but its not working.  How can I handle this well?  Suggestions?
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Desert Dancer
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« Reply #1 on: November 19, 2010, 12:45:51 PM »
Quote from: ESRD Survivor on November 19, 2010, 11:09:21 AM
Everyone is home and I am at dialysis.  Suggestions?

Have you ever considered training to do hemo at home? Then you could be at home AND at dialysis.
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
ESRD Survivor
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« Reply #2 on: November 19, 2010, 01:00:58 PM »
I hope to do that next year.  I don't have a fistula yet.  I have a cath right now because I was hoping to do PD, so I never had a fistula placed.  That is a whole new fear because I have such small veins and their is no promise of an AV fistula so I can do the buttonhole.  Needles scare me to death.
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greg10
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« Reply #3 on: November 19, 2010, 07:38:14 PM »
Quote from: ESRD Survivor on November 19, 2010, 11:09:21 AM
..Now I am back on the 3rd shift and hate hate hate it.  It makes me emotional for some reason.  Everyone is home and I am at dialysis.  I call to see if they have an early opening (they used to all the time) now they don't seem to.  I try to have a good attitude, but its not working.  How can I handle this well?  Suggestions?
You are statistically better off, in terms of mortality, to be in the afternoon shift because it has been shown that patients who have dialysis early in the morning have slightly higher incidence of vascular/cardiac events.  So tell yourself that you are better off in the afternoon, and in fact you are (by about 25%).

http://ihatedialysis.com/forum/index.php?topic=20916.msg347509#msg347509
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Newbie caretaker, so I may not know what I am talking about :)
Caretaker for my elderly father who has his first and current graft in March, 2010.
Previously in-center hemodialysis in national chain, now doing NxStage home dialysis training.
End of September 2010: after twelve days of training, we were asked to start dialyzing on our own at home, reluctantly, we agreed.
If you are on HD, did you know that Rapid fluid removal (UF = ultrafiltration) during dialysis is associated with cardiovascular morbidity?  http://ihatedialysis.com/forum/index.php?topic=20596
We follow a modified version: UF limit = (weight in kg)  *  10 ml/kg/hr * (130 - age)/100

How do you know you are getting sufficient hemodialysis?  Know your HDP!  Scribner, B. H. and D. G. Oreopoulos (2002). "The Hemodialysis Product (HDP): A Better Index of Dialysis Adequacy than Kt/V." Dialysis & Transplantation 31(1).   http://www.therenalnetwork.org/qi/resources/HDP.pdf
statesidela
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« Reply #4 on: November 19, 2010, 07:48:18 PM »
Damn Greg that an interesting bit of info!!!...glad I on third for sure but I do understand were ESRD is coming from I used to be on 1st shift now 3rd but I sure don't hate as much as you do

ESRD can you not talk to some other people in there see if you can get them to switch with you might be worth a shot?

Hope thing get better for u ASAP
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