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statesidela
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« on: November 18, 2010, 12:25:20 PM »
Hi there,

My name is Brendan thank you for all your posts they have help me out tremendously back on a positive track thanks to all you guys....it all started around April I got what I thought was a simple case of the flu and me being me I take care of it myself so anyways long story short I stay at home for 2 weeks constantly throwing up I figured I would take a non prescribe antibiotic to help kick it unfortunately I had an allergic reaction to the antibiotic and not to long after I finally gave in and went to hospital by the time I got there I was in bad shape could not walk hardly could talk they put in a neck access to get dialysised a couple of weeks after that they get my levels to a reasonable point...then comes the removal of the neck cath and a chest cath put in then I am released and told to do in center dialysis 3x a week 4 hr sessions so a few months of that they tell AV time!!!! Grrrrrrr....it's been three months and doc says it's almost ready to use I am so looking forward to getting stuck just because I know it's not to long till I get this shit out my chest I hate it more than dialysis. I try not to get to down about it all because I feel lucky compared to most folk... I still pee a lot and I don't seam to hold fluids my neph gave the order to not draw fliuds that's a fight in it's self making sure staff read doc notes and set machine accourdingly they forget somedays and draw fluids make me feel bad for two days aaaaaarrrrrrgggggg so this is where I am at now I guess they put me on transplant list I am so scared of that surgery but what can we do.....anyway I hope to talk more with u guys and hope you will accept me into your wonderful supportive family here something that I do not have in real life...it's have been so uplifting to find you guys and I will do anything In my power to help all you guys out

Big love n hugs to you all
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Desert Dancer
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« Reply #1 on: November 18, 2010, 12:38:26 PM »
Hi, Brendan and  :welcomesign;  It sure does sound like you've had a whirlwind of a year! Pull up a chair and catch your breath!  :grouphug;
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
statesidela
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« Reply #2 on: November 18, 2010, 12:47:30 PM »
Thank you so much dancer it's been crazy for sure but what don't kill us makes us stronger right? that's what I am sticking to anyways  :2thumbsup;
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Zach
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"Still crazy after all these years."
« Reply #3 on: November 18, 2010, 01:03:28 PM »
It's real good to have you join our community!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
statesidela
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« Reply #4 on: November 18, 2010, 01:24:31 PM »
Cheers Zach!!!  :beer1;
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monrein
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Might as well smile
« Reply #5 on: November 18, 2010, 01:40:25 PM »
 :welcomesign;  Glad you decided to join us here.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
statesidela
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« Reply #6 on: November 18, 2010, 02:02:33 PM »
Thanks monrein it's great to be here :yahoo;
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Jean
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« Reply #7 on: November 19, 2010, 01:32:26 AM »
Hi, and YES, we are happy to have you here and   :welcomesign;  to IHD. This is the place to learn all you ever wanted to learn about dialysis.
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One day at a time, thats all I can do.
RichardMEL
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« Reply #8 on: November 19, 2010, 02:17:27 AM »
g'day Brendan & welcome to IHD!

You certainly had a pretty quick and unhappy introduction to dialysis - I hope when you can use your fistula (or is it a graft?) that you can get more stable, and get rid of that catheter!!

Glad to have you with us!

RichardMEL, Moderator
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
galvo
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« Reply #9 on: November 19, 2010, 03:44:24 AM »
Welcome aboard, Brendan.
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Galvo
billybags
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« Reply #10 on: November 19, 2010, 06:13:12 AM »
Welcome Brendan, I agree this site is great, it has helped many of us out, it has kept a lot of us sane.   :welcomesign;
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looneytunes
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Wishin' I was Fishin'
« Reply #11 on: November 19, 2010, 10:40:34 AM »
Hello Statesidela and welcome!  Ditto to Billybags comments...this site has been the best therapy for a lot of us.  Hopefully you will get some good tme after the catheter comes out.   :welcomesign;
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"The key to being patient is having something to do in the meantime" AU
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

WWW
« Reply #12 on: November 19, 2010, 05:47:37 PM »
Welcome to our community, Brendan!!  I really loved your intro, especially since you have really got it about what IHD is all about. 
Quote
.....anyway I hope to talk more with u guys and hope you will accept me into your wonderful supportive family here something that I do not have in real life
   You are already part of our family  :grouphug;  one of the best group of sharing and caring people anywhere.
I expect to hear much more from you.  Let us know how your dialysis is going (in the appropriate section, of course)




Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #13 on: November 19, 2010, 05:50:25 PM »
Hello and Welcome to IHD!! Check out the transplant section of the forum lot of good info there!

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
statesidela
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« Reply #14 on: November 19, 2010, 07:04:19 PM »
Thanks very much again everyone for your very kind warm welcomes

Much appreciated

Bren
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chook
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Born to be a Granma!
« Reply #15 on: November 19, 2010, 07:54:57 PM »
 :welcomesign; from me! It is scary how quickly healthy kidneys can suddenly go downhill and start to make you  :puke; Great to hear fluid retention is not an issue. All the best
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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
boswife
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us and fam easter 2013
« Reply #16 on: November 19, 2010, 08:07:27 PM »
whew!!  and Wow!  what a spin you went for!  i too am one who would have just tried self treating so you already have given some advice here :-)  Welcome, and a great family you have found!
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
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