First time writer, long time patient

[DinSD]

Ok, well where to start?  Let me apologize in advance for my post.  I'm not very good at this and hope its not to hard to read.  My name is Mr. F and I live in San Diego.  I've been on and off dialysis since I was 13 in '93.  I'm on Hemo at the moment, with a AV fistula.  I was on Peritoneal for a while starting in '93, the beginning of my dialysis journey.  Then Hemo since then.  I've had 2 kidney transplants since '96.  My recent transplant rejected about 3 years ago, and been on dialysis since then.  My kidney disorder is called Alports syndrome, which I inherited from my mother.  Ok, well that's me in a nutshell.  Thanks

[Elly50]

Hi Mr F,
I am too new here and have a kidney that is failing.  My problem is FSGS and now igA, which also returns after a transplant.  I have been ill since 2000 though my kidneys did not fail until 06 then I had  a transplant in 07, but off on Friday to have a new fistula 
I really feel for you having problems so young, at least my problems did not start until I was 40,
 so had had a good part of my life to enjoy.
Are you able to work at all ?  I am working part time now in prep for dialysis.  When I was younger I was always trying to get out of work and now would give anything to be able to!  Each time I have had a job something happens I become ill and end up losing it, so have lost all confidence in myself and abilities.
Which type of D do you prefer or are both bad in different ways   I found it hard to make up my mind which type to choose this time.
Take care Elly

[RichardMEL]

g'day Mr F - you did a great job of posting - no problems whatsoever!!!!

WELCOME!

 

You've certainly had a long journey with kidney failure and dialysis, specially during your teens and 20's, and that totally bites. Luckily you are in San Diego, one of the more pleasant places on earth to live - I have spent enough time there to know I love it

It's good to have you with us - I am sure you can offer your perspective and experiences on a number of topics that can help a lot of us!

RichardMEL, Moderator

[lola]

  my husband also has Alports, and our daughter( also is suffering from it............

[cloud393]

   Welcome aboard!!

[peleroja]

Welcome to the group, Mr. F.  Lots of good information and friends here.  Glad you joined!

[galvo]

G'day Mr. F and  .

[Jean]

Hi Mr. F and     to IHD. Glad you joined us.

[DinSD]

Thanks everyone for all your replies.
-Elly50, I've not been able to work for the last 2 years.  These last 2 years have been kinda hard for me.
If I had to choose a D, it would have to be Hemo.  With CAPD you have an access that has to be constantly cared for and covered just to go in the shower.

[Bajanne]

Welcome to our community, Mr. F!  So glad that you found us and decided to join this wonderful family   This is a great place for information, support and encouragement.  I am also on haemodialysis, as this is the only possibility in the territory in which I live (British Virgin Islands).  It is not the best thing, but it is definitely keeping me alive and I appreciate that.  I am also very grateful for my IHD family - I have gotten to meet some absolutely special people.  So you just keep on reading and keep on posting (in the appropriate sections, of course!), so we can know how you are doing.




Bajanne, Moderator