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Author Topic: Kidney function  (Read 2319 times)
KICKSTART
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In da House.
« on: October 17, 2010, 04:02:47 PM »
Ok strange question after all these years but how do you know what your kidney function is at? How is it estimated? Is it by blood results? Do you still get informed if you have any kidney function left when you start dialysis ? Im curious to know as i was never told what mine was or what it declined too.
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
BASSMAN
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WWW
« Reply #1 on: October 17, 2010, 06:21:15 PM »
You can figure it using an online GFR calculator if you know your creatinine level.

http://www.davita.com/gfr-calculator/#
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Membranous Glomerulonephritis confirmed by biopsy in  April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010

http://www.caringbridge.org/visit/phillipjohnsen
-Lady Noir-
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Where's your will to be weird?
« Reply #2 on: October 17, 2010, 07:59:31 PM »
Mikes is 5%
Kinda knew it was around there, but cheers for the link bassman!
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Expose yourself to your deepest fear. After that, fear has no power, and the fear of freedom shrinks and vanishes. You are free

..Nik..

Fiancee to Mike
Mikes 'history'....
Born September 12 1983
Seizure July 2003 [Unrelated to kidney]
Diagnosed with 'Polycystic Kidney Disease' July 2003 (Wrong diagnosis)
Diagnosed with  IgA Glomerulonephritis April 2004
On active transplant waiting list 2006
Hyperparathyroidism developed gradually
Parathyroidectomy May 2009 (Affected kidney function)
Hospitalized for hyperkalemia June 2009
Catheter inserted June 2009


Started CAPD June 2009
Stared APD September 2009

ABO Incompatible transplant 01 December 2010
Donor = Mikes father Greg
boswife
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us and fam easter 2013
« Reply #3 on: October 17, 2010, 08:16:52 PM »
hubbys 10,,, i had forgotton how that worked,,thanks!
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Marina
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God Bless my donor family!! :)
« Reply #4 on: October 17, 2010, 09:43:11 PM »
you  can  also  go to   NKF:

http://www.kidney.org/professionals/kdoqi/gfr_calculator.cfm

My  eGFR shows  on   monthly  labs.
« Last Edit: October 17, 2010, 09:44:16 PM by Marina » Logged
"Anything is possible, if  you  BELIEVE....."  ~~~Joel  Osteen

"Yesterday is history, Tomorrow is a mystery, Today is a gift..... That is why it is called the present"

*************************************************
 Nov 1979 ~ Diabetes 
Apr. 2004- Nov 2010 ~ CAPD
Nov 9, 2010 ~  Received the  THE  GIFT OF LIFE at 
California Pacific  Medical  center  (CPMC)  in San  Francisco,  CA
Jean
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« Reply #5 on: October 17, 2010, 11:41:59 PM »
Mine shows on my every 3 month visit to the neph. I wish they would just e-mail us with the results, instead of having to wait a week or longer to know how we are doing.
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One day at a time, thats all I can do.
Hazmat35
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« Reply #6 on: October 18, 2010, 04:48:38 AM »
Quote from: Jean on October 17, 2010, 11:41:59 PM
Mine shows on my every 3 month visit to the neph. I wish they would just e-mail us with the results, instead of having to wait a week or longer to know how we are doing.

I don't know where you get your LABS done for you NEPH visit, but I have to go to a seperate Clinic (Lab Corp, Quest, etc) to do my Blood Work.  You have to specifically ask the doctor to have them release the test results to you.  I just go to their website, and type in my password, and BAM, there are my results within a day or two. 

They won't release them though, without express written approval from your doctor.  At least, that is how it is where I go. 
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Brother Passed away - 1990 - Liver Disease
Diagnosed w/ Polycystic Kidney Disease - 1998
Mother passed away - Feb. 1999 - PKD
Sister passed away - Feb. 2006 - PKD
AV Fistula / Upper Left Arm - September 2009
Father passed away - September 2009
In-Center Hemo Dialysis - April 2010
Broken Knee Cap - January 2015
Diagnosed w/ A-Fib October 2017
Surgery to repair Hiatal Hernia 2018
Multiple Fistula Grams / Angioplasty's since then!


Hating Dialysis since Day 1 and everyday since then!!!!  :)
RichardMEL
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« Reply #7 on: October 18, 2010, 05:45:26 AM »
Luckily our labs are donw within the hospital pathology and are often available (at least the standard FBE stuff) before the treatment is over. I usually ask the nurses and they either yell the numbers at me, or make a printout for me. Given they know that I have a self interest in my labs, and have some understanding of the meanings of the numbers, the ranges etc, they are happy enough to share with me. It certainly helps relieve the anxiety if I'm worried about some kind of value.
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
KICKSTART
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« Reply #8 on: October 18, 2010, 10:55:29 AM »
Thanks guys , we get our labs every month and no issue with seeing them at all , i just wondered how you knew what your kidney function was at or how it was calculated. Not that it really matters for me now ..just curious ! Thanks Bassman !
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
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