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sillysar30
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« on: October 02, 2010, 09:58:57 PM »
Hello everyone I was put on dialysis in late march, after having a creatnine count of 4.2 that was steady untill two years ago when my count went to 6.2. In early march, I was told buy my doctor that I needed dialysis asap this all went down two days after my 30th birthday what a way to celebrate, lol. Oh buy the way I suffer from glomerulonephritis, I thought it would be years before I needed dialysis. Right now im undergoing hemodialysis twice a week on monday and friday. Im not taking this adjustment well at all, and that's why im glad this site exsist  :flower; :cheer:

03/25/2010 got permcath placed
3/30/2010 fistula
 
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03/25/2010-permcath placed
03/30/2010- fistula surgery
RichardMEL
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« Reply #1 on: October 03, 2010, 12:29:17 AM »
G'day Sillysar and welcome!! Sorry you've had a much sooner introduction to dialysis than you anticipated. Don't worry you can still enjoy your "dirty 30's" (alas I am just about to leave them, and still feel WAY too clean!!  :rofl;) even with dialysis. I am interested that you are initially doing 2x/week - like another member's husband was until he suffered a serious incident with way too high Potassium. That's an interesting way to introduce you to D. Do you have any fluid restrictions or anything like that? Monday to Friday is quite a stretch - as you've no doube noticed from folks here the usual for Hemo Dialysis is 3x/week, which would be Mon-Wed-Fri in your case. Still I hope you can stay at 2x!

I'm glad you're with us and hopefully we can help you adjust and make the most of this stage of life!

 :welcomesign;

RichardMEL, Moderator
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
MooseMom
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« Reply #2 on: October 03, 2010, 12:47:57 AM »
You're not taking the adjustment well?  I admire your honesty.  I don't think anyone takes it well, hence the name of this website.  But there are lots of people here who will help you through this.  I'm so glad you've joined us.  I really think we can help make things a tiny bit easier for you. 
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Rerun
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Going through life tied to a chair!
« Reply #3 on: October 03, 2010, 06:20:46 AM »
Hello sillysar30, and welcome to IHD.  I'm so sorry you have to be on dialysis, but on the bright side it is only twice a week.  I know..... that is twice more than you want to go!  Hang in there.

I do hope you come here often. 

Rerun, Moderator    :welcomesign;
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peleroja
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I have 16 hats, all the same style!
« Reply #4 on: October 03, 2010, 10:19:45 AM »
Welcome to the group.  Tons of good information and friends here.  Glad you joined!
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sillysar30
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« Reply #5 on: October 03, 2010, 11:42:28 AM »
thank you everyone I know i can handle this, I like to see myself as a strong woman who can get through pretty much anything now. I have a question though has anyone expierneced hair loss and if so how long does it take for it to come back?  :guitar: 
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03/25/2010-permcath placed
03/30/2010- fistula surgery
monrein
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Might as well smile
« Reply #6 on: October 03, 2010, 11:43:44 AM »
 :welcomesign;   
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
jg
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« Reply #7 on: October 03, 2010, 08:45:18 PM »
Sillysar30:
 :welcomesign; to the website.
There is a thread about hair loss.
Go to General Discussion then Home Dialysis.

jg      :canadaflag;
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Poppylicious
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WWW
« Reply #8 on: October 04, 2010, 08:53:10 AM »
 :welcomesign;

 ;D
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
gothiclovemonkey
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« Reply #9 on: October 04, 2010, 02:46:22 PM »
 :welcomesign;
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"Imagine how important death must be to have a prerequisite such as life" Unknown
HemoDialysis since 2007
TX listed 8/1/11 inactive
LISTED ACTIVE! 11/14/11 !!!
galvo
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« Reply #10 on: October 04, 2010, 05:38:05 PM »
G'day Sillysar and  :welcomesign;.
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Galvo
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"Still crazy after all these years."
« Reply #11 on: October 04, 2010, 08:11:45 PM »
Good to have you here!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Jean
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« Reply #12 on: October 04, 2010, 11:52:56 PM »
 :welcomesign; to IHD, good to have you with us.
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One day at a time, thats all I can do.
AguynamedKim
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« Reply #13 on: October 05, 2010, 08:45:07 PM »
 :welcomesign; 
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Pre-dialysis - Intro: http://ihatedialysis.com/forum/index.php?topic=20344.0
ChickenLittle56
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Chickenlittle and Maria
« Reply #14 on: October 06, 2010, 12:48:42 PM »
 :welcomesign;
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As I was coming out the Nephrologist office, I thought the sky was falling.
Knew I was going on dialysis since November 1999.
Had a fistula put in January 2000.
Been on 4-1/2 hour dialysis since August 28, 2001. (They took out 35Kg that single week)

Maria hasbeen on hemodualysis since January, 2005
Bruno
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« Reply #15 on: October 12, 2010, 02:33:52 AM »
Welcome friend, we are all in the same boat here, but there are many who will tell you that you can have dialysis and still have a life. But be careful with only 2 short sessions a week.
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peleroja
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I have 16 hats, all the same style!
« Reply #16 on: October 13, 2010, 12:43:09 PM »
Welcome to the group.  Lots of good information and friends here.  Glad you joined!
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