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radice_j@yahoo.com
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« on: October 03, 2010, 04:57:02 PM »
My name is John, 48 years old, I've always worked hard & played hard.
I have two great children Jessie Marie 23 & John 18.
I am newly divorced & in the end stages of spliting up the funds & selling the house. I guess its alot to go through being on D. A couple months into D I would get a bad alergic reaction like sweats & my nervous system over reacting. I realy wanted to stop D if this what my life was going to be,so after months of pleading my feelings with the doctor a nurse saw my physical reaction and changed the filter on the machine, what a difference. I still get very tired but I guess its normal.
I hope this information helps somebody because changing the filter worked.
NYU university denied me a chance of getting on the transplant list because my living arrangements are up in the ai . So I am in the process of other hospitals. I have always been a strong and kind person, I wonder if I will ever have a relationship again. On off D days I feel like going out and mingling but I feel diffrent about my self. I guss this is a normal feeling. If anyone has ideas where to meet people like us with kidney faliure let me know. I'm not complaining just trying my best to live life to its FULLEST!  Thank You for listening  John
                                  P.S. STAY STRONG
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MooseMom
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« Reply #1 on: October 03, 2010, 05:06:28 PM »
Boy, that's a lot to go through all at the same time.  I'm surprised that NYU wouldn't at least let you start the evaluation process.  Good for you for inquiring at other hospitals. 

I'm glad you've joined us...thank you for telling us about yourself.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
peleroja
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I have 16 hats, all the same style!
« Reply #2 on: October 04, 2010, 09:55:59 AM »
Hi, John, and welcome to the group.  I guess the best place to meet other kidney patients is at a support group.  If there's not one near you, start one!  I'll be happy to help.  Glad you joined.
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galvo
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« Reply #3 on: October 04, 2010, 05:41:44 PM »
G'day John and  :welcomesign;.
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Galvo
carol1987
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« Reply #4 on: October 04, 2010, 06:10:46 PM »
hi john  :welcomesign;
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Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
boswife
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us and fam easter 2013
« Reply #5 on: October 04, 2010, 06:39:49 PM »
 :welcomesign;  Wow, a lot for you to get handed all at once  :(  You sure sound like a great guy to me, and surly hangen in there through as much as your dealing with.. ANd if nothing else  ;) , you'll find friends here who really understand whats up and that will help a lot.. Keep up the good attitude and someone will worm their way into your heart again...
all the best
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Zach
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« Reply #6 on: October 04, 2010, 08:10:29 PM »
Yes, filters and/or the reuse of filters can cause different reactions to people on dialysis.

Welcome to our community!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Jean
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« Reply #7 on: October 04, 2010, 11:58:53 PM »
 :welcomesign;  to IHD. Good that the filter change was caught. See the things you learn here? Way too much to ever put into a book. You are young yet, so hang in there. You will get things squared away eventually, I feel sure.
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One day at a time, thats all I can do.
AguynamedKim
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« Reply #8 on: October 05, 2010, 08:44:27 PM »
John, so glad that filter change helped and thank you for sharing that as something that may help others.  I hope you get settled soon, spend lots of great time with your children, and are able to get ready for a transplant.  Welcome!
 :welcomesign;
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Pre-dialysis - Intro: http://ihatedialysis.com/forum/index.php?topic=20344.0
ChickenLittle56
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Chickenlittle and Maria
« Reply #9 on: October 06, 2010, 10:16:39 AM »
Welcome John, I am glad you are taking a positive step by keeping positive on everything that is happening now. ;D
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As I was coming out the Nephrologist office, I thought the sky was falling.
Knew I was going on dialysis since November 1999.
Had a fistula put in January 2000.
Been on 4-1/2 hour dialysis since August 28, 2001. (They took out 35Kg that single week)

Maria hasbeen on hemodualysis since January, 2005
Rerun
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Going through life tied to a chair!
« Reply #10 on: October 06, 2010, 02:03:38 PM »
Welcome John.  I'm so glad you found us.  I'm 49 and been on dialysis for 5 years now following a 17 year transplant.  I too am divorced.  Yeah, it can be a bitch.  I hope you hang in there.  Sounds like you are doing better. 

I'm looking foreward to your posts.

Rerun, Moderator             :welcomesign;
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casper2636
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« Reply #11 on: October 06, 2010, 05:51:44 PM »
Hi John! Sounds like you have your hands full on top of going through D! I, too, went through a divorce while being on D, because my husband couldn't stand by me and watch me being sick and needing help. Cruel slap in the face! Please know that we are here, and can be of great help and support...that's what I've found being relatively new to the site! Looking forward to seeing your posts and questions :welcomesign;
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Bruno
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« Reply #12 on: October 09, 2010, 03:27:22 AM »
I'm very interested in your experience with the filter. I get night sweats after dialysis but thought it went with the territory and nothing could be done. Please tell us more about what happened and the solution.
...and welcome!
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Bajanne
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« Reply #13 on: October 09, 2010, 04:53:16 AM »
Welcome to our community, John!  So glad that you found this wonderful place for information, support, encouragement, and even fun.  So sorry that you have had to deal with the dastardly D's - divorce and dialysis!  But you sound like a survivor to me.  And your IHD family is here to go through it all with you  :grouphug;  What you need to do is keep reading and keep posting, letting us know how you are doing.




Bajanne,Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
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