hiya all pd starting very soon

[karina]

hi my names karina im 35 found out in 2000 that iv got polycystic kidney diease  which my mother also had iv got 1 sister and 2 brothers but none ov them av it only me wen i found out in feb that my kidney function was only 12% i was shocked cos i had no symptoms ov my kidneys gettin worse but i knew i had 2 do somthing 2 help myself cos ive got 4 children 20,13,10,4 it wasnt easy at all tellin my children that i would have to start treatment asap inwhich i choice to have capd not hemo cos my mother had hemo for few yrs which  always made her very tired the days she had, i had my pd catheter fitted on the 7th sept everythin went really well with that up until my second flush then it wouldnt drain so i was sent for xray to find out it at moved abit so then i was told to take picolax for 2days then went back for another flush only to find its moved abit but still wont drain but if i jump up n down or move back n forward then its comes out really slow im being told that it anit blocked cos they can get stuff in just not out any other ideas ov what it could be getting really worried now cos they are talking about taking this catheter out then putting another 1 in it seems like i think yeah i can do this and i get 1 step closer only to be knocked back to the start all over again i feel so alone at times and really i aint iv got a wonderfull husband friends and family who am here for me but they dont really understand what im going through even tho they have all been fantastic .

[peleroja]

Hi, Karina, and welcome to the group.  Tons of good information and friends here.  I've been on PD for 7 years, so if you have any questions, just ask!

[karina]

hi peleroja thank you ive got a question if you dont mind me askin iv been told my catheter as moved but when  i went for xray the nurse said she as saw loads ov people with there catheter in the same place as mine and theres drain very good,  but for some strange reason mine is takin forever and a day 2 drain if i rock back n forwards it comes  out a little faster any ideas what could be wrong .

[Bajanne]

Welcome to our community, Karina!  It is a good thing that you found us at this time.  Though I know nothing about PD, there are lots of members who do and who can give you advice.  This is the top site for sharing information, support and encouragement.  Please think of us as your new family    Please continue to post and let us know how your PD is going (using the appropriate section, of course).
 Looking forward to hearing from you.





Bajanne, Moderator

[komomai]

Aloha Karina, welcome I'm also brand new here and also will be starting PD today so I'm very interested in how your doing with your PD.  Please keep us updated on your progress.
Aloha,
Komomai

[cloud393]

Hi Karina.  Have they tried giving you heparin in case theres fibrin causing a problem?  Unfortunately, I did PD for 5 months with no problem and then I had nothing but problems.  They had to replace cath because it shifted a couple times, I got a hernia in my abdomen twice so had surgeries for them and then decided that was enough.  I  switched to hemo and now am using NxStage for home hemo.  I don't mean to worry you or anything, just telling you my
experience.  If it weren't for the problems, I would still be doing PD.  I wish you luck.  Let us know what you find out.  Welcome to the site.

[galvo]

G'day Karina, and .

[Poppylicious]

  Karina!

My Blokey had no end of problems on PD; like you he had (major) issues with draining (and Picolax became his bosom buddy!).  Unfortunately he had to go back to haemoD ... I really hope they can sort out your issues with it though. 

*fingers crossed*

[karina]

thank you all for this nice really hope they can sort it out for me poppylicious cos i dont want to go on haemo d saw my mom on it for 2yrs which didnt go to well for her ie she was very tired all the time got no energy to do anythin so me seeing all this as kind ov freaked me out to be honest.

[Rerun]

Hi Karina, I hope you find your answers here.

Rerun, Moderator