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Author Topic: ...So let me introduce myself, my name is Humpty pronou..wait, I'm Nat.  (Read 4287 times)
natlarson
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"No ,it's not a stenosis, it's just bent"

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« on: October 11, 2010, 11:20:49 AM »

Hey ya'll!!!
My name is Nat Larson, I'm a dialysis patient from Winslow, AZ. I've been on dialysis now for a year and ten months. I had a kidney transplant in 2003, it rejected in 2008. FSGS, was the original condition that brought about my kidney failure. I'm a singer/songwriter, I record and produce my own music. I love tattoes and piercings. (eventhough I can't get either anymore) I'm the only one in my age group on dialysis in Winslow, so it's really awsome for me to be here. Noone here really knows how this is for me.. Simply because there is noone here goin through exactly the same thing in the same point in thier life....thank you for readin'
Nat
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CA-FISTU-LA
kellyt
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« Reply #1 on: October 11, 2010, 12:30:01 PM »

Welcome Nat!   :waving;     This is a great site and we are so glad you found us!  I can't wait to hear more about you.  I transplanted in 2008 and will be celebrating 2 years Nov. 5th.  I'm interested to know how or why your transplant failed?  If there even was a reason. 

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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
carol1987
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« Reply #2 on: October 11, 2010, 01:09:36 PM »

HI  :welcomesign;
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Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
Marina
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God Bless my donor family!! :)

« Reply #3 on: October 11, 2010, 02:41:53 PM »

 :waving;  Nat,    :welcomesign;
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"Anything is possible, if  you  BELIEVE....."  ~~~Joel  Osteen

"Yesterday is history, Tomorrow is a mystery, Today is a gift..... That is why it is called the present"

*************************************************
 Nov 1979 ~ Diabetes 
Apr. 2004- Nov 2010 ~ CAPD
Nov 9, 2010 ~  Received the  THE  GIFT OF LIFE at 
California Pacific  Medical  center  (CPMC)  in San  Francisco,  CA
BASSMAN
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« Reply #4 on: October 11, 2010, 03:50:21 PM »

Welcome!!!!

I do the same, collaborate, write and record my own music.  Mostly blues/ blues rock.
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Membranous Glomerulonephritis confirmed by biopsy in  April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010

http://www.caringbridge.org/visit/phillipjohnsen
Rerun
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Going through life tied to a chair!

« Reply #5 on: October 11, 2010, 03:54:38 PM »

Hi Nat and welcome to IHD.  AZ is warm....  too warm sometimes but I'd love to live there.  Be sure to come here and read and learn.  We are all different and at different stages but it is amazing what I've learned here.

Looking foreward to your posts.

Rerun, Moderator    :welcomesign;
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Zach
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"Still crazy after all these years."

« Reply #6 on: October 11, 2010, 04:29:05 PM »

Welcome to IHD!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
galvo
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« Reply #7 on: October 11, 2010, 09:38:07 PM »

G'day Nat and  :welcomesign;.
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Galvo
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TOFF (typical old Fart)

« Reply #8 on: October 12, 2010, 02:24:44 AM »

Welcome Nat, you'll like it here. Maybe you could start your own thread after a while...singing and songs sounds great. I guess AZ means Arizona ?
Bruno from Sydney
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Poppylicious
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« Reply #9 on: October 12, 2010, 07:26:11 AM »

 :welcomesign; Nat!

My Blokey (husband) is one of the youngest at his centre too (he's 34).  He's been on dialysis since June 2009.  If I ever get to cross the pond (I'm in England), Arizona is one state I definitely want to visit, despite the fact that I hate heat (and I hear it's hot?)!

 ;D
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
billybags
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« Reply #10 on: October 12, 2010, 07:52:38 AM »

Welcome to the site Nat    :welcomesign;
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gothiclovemonkey
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« Reply #11 on: October 12, 2010, 05:36:18 PM »

 :welcomesign;
hmmm... are we not supposed to get tats and peircings???
Im the youngest at my clinic only in my age group as well...
 :guitar: what kind of music???
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"Imagine how important death must be to have a prerequisite such as life" Unknown
HemoDialysis since 2007
TX listed 8/1/11 inactive
LISTED ACTIVE! 11/14/11 !!!
MooseMom
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« Reply #12 on: October 12, 2010, 05:49:45 PM »

Hiya!  I have fsgs, too.  Isn't it great!  We have something in common!  Yay! :sarcasm;

Thank you for joining us!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
monrein
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Might as well smile

« Reply #13 on: October 12, 2010, 06:59:32 PM »

 :welcomesign;  Nat. 
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Mimi
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For any who do not like me I use - prayer.

« Reply #14 on: October 12, 2010, 09:26:38 PM »

Well welcome to IHD Humpt errrr Nat.  Come right on in and make yourself at home.  Most of us are sane and totally totally undangerous. (Is that a word?)
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
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« Reply #15 on: October 12, 2010, 11:45:51 PM »

Hi Nat, glad you joined us and   :welcomesign; to IHD.
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One day at a time, thats all I can do.
peleroja
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I have 16 hats, all the same style!

« Reply #16 on: October 13, 2010, 12:38:37 PM »

Hey, Nat, welcome to the group.  I love your sense of humor!  Lots of good information and friends here.  Glad you joined.
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natnnnat
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« Reply #17 on: October 13, 2010, 05:00:24 PM »

Hey, Nat, welcome to the group.  I love your sense of humor!  Lots of good information and friends here.  Glad you joined.
Hey thanks!  Oh wait, you mean the other nat.   :(
Welcome Nat.   :beer1;
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
ChickenLittle56
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Chickenlittle and Maria

« Reply #18 on: October 13, 2010, 10:08:37 PM »

 :welcomesign;  Nat





Edited: fixed smiley error - paris, Moderator
« Last Edit: October 24, 2010, 03:07:58 PM by paris » Logged

As I was coming out the Nephrologist office, I thought the sky was falling.
Knew I was going on dialysis since November 1999.
Had a fistula put in January 2000.
Been on 4-1/2 hour dialysis since August 28, 2001. (They took out 35Kg that single week)

Maria hasbeen on hemodualysis since January, 2005
Desert Dancer
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« Reply #19 on: October 23, 2010, 09:22:56 AM »

Hello from Phoenix, Nat!  :welcomesign;
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
paris
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« Reply #20 on: October 24, 2010, 03:14:17 PM »

Welcome Nat   :2thumbsup;   Glad you found us and we look forward to reading more of your posts.  Several of us have FSGS  -- mine is idiopathic, no reason.  Did the FSGS reoccur and effect the transplanted kidney?  I am 6 weeks post transplant and the FSGS reoccurring is a concern for me.   

This is a great group. Members really care about each other. You will find great support.  I will probably be asking you more questions about your first transplant----if you don't mind!  Welcome to IHD.   :2thumbsup;


paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
cloud393
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« Reply #21 on: October 25, 2010, 11:33:28 AM »

Welcome to the family Nat!!  You'll learn alot here.
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May you live as long as you want and never want as long as you live.
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