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Author Topic: Let the testing begin!  (Read 2015 times)
Teepo18
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« on: July 19, 2010, 08:29:52 AM »

Hey guys,

Well just to let you know whats happening with moi on the transplant stuff, my mum and brother had their blood taken on thursday and we got the results back today(so quick! ^^) and it looks like they are both a match! W000T finally a bit of good news for once for me. Im A+ and well they are both O+ so yay so happy lol. Now i think the next step is DNA tests or something so fingers crossed that they are a match for that too! Ill let ya know what happens and such.

Adam
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lou
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« Reply #1 on: July 19, 2010, 12:44:09 PM »

Fab news so far adam!! :2thumbsup; fingers crossed next bit goes as well for you. keep us updated...
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Dianejt
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« Reply #2 on: July 19, 2010, 02:23:22 PM »

 :pray; hope the next step is great
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caregiver to husband Frank

bladder cancer 1994
renal failure April 2009 due to blocked right ureter. Left kidney 20% function
November 18 2009 surgery to remove right ureter.
April 3, 2010 removal bladder, prostrate, left kidney.
June 11, 2010 started Hemo @ hospital
July 2, 2010 Embolized right Kidney due to hemoraging of tumor
September 11, 2010 RIP my love
cariad
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« Reply #3 on: July 19, 2010, 02:46:20 PM »

Hey Adam,

 :yahoo; Great to read this update. They are most likely checking for what sort of antigen match you have (they look at the most important six antigens out of the hundreds that you have). You mum should be a 3/6 match since you receive half of your DNA from her, but in rare instances the match could be better. Your brother could be a perfect match (you have a 25% chance of that).

I wish you loads of luck with this entire process.
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
natnnnat
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« Reply #4 on: July 19, 2010, 05:57:36 PM »

So far so good!  :thumbup;
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
Teepo18
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« Reply #5 on: September 09, 2010, 11:22:12 AM »

Hey guys very sorry that i havent been online. I've not been able to get on the site for agggess! No idea why it wouldnt work but seems ok since the recent update so w00t!! I do have some news on the transplant side though ^^ my mum matches 4/6 :D and my brother matches all 6! YAY! But we have decided that my mum is going forward for the next set of tests. Hopefully the kidney will last a while and when it fails my bro will give me his. If it was my bro going first and it failed well my mum would be alot older and it wouldnt be good for her so lets wait for the next tests to begin and ill let ya know what happens!
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lou
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« Reply #6 on: September 09, 2010, 02:13:08 PM »

Brill news Adam!!  :2thumbsup; :bandance;
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Sunny
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Sunny

« Reply #7 on: September 09, 2010, 03:04:46 PM »

I am very happy for you. I hope things can move along quickly for you.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
Teepo18
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« Reply #8 on: September 10, 2010, 03:50:24 AM »

Does anyone know how long the next set of tests take and what they involve? My mum who is going forward said she will start the tests after her holiday so probably the begining of October but im not sure how many tests there are. I hope it doesnt take forever >.< only been doing dialysis since end of january and omg i cant stand it anymore. No idea how people cope when they have been doing it for years!
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Sunny
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Sunny

« Reply #9 on: September 10, 2010, 02:56:13 PM »

Once my sister had the blood matching test done, they started in on the physical testing to make sure she was healthy. All told, it took a total of 8 months with the testing beginning in January and finishing in August. A lot of it has to do with the potential donor finding the time to schedule the tests. Plus, one test gets done, then the doctor checks to make sure the donor passes, then the next test is conducted. At my center,the donor has to pass each test prior to being ok'd for the next.Makes sense because they don't want to waste anyone's time and $. I have read it could take as little as 6 months if things go smoothly. Good luck to you and your Mum.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
edersham
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« Reply #10 on: September 10, 2010, 03:41:19 PM »

Tepo 18

It really varies from center to center. At Mayo in Phoenix they did all my donors testing in 5 days and the transplant happened 7 weeks later. It would have been a month sooner if not for a sister of my donor who tried to stop the process. I hope yours happens fast. I was on dialysis for 2 1/2 months and it seemed like a long time. I too salute those who have  done it for many years.
Best wishes
Ed
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Teepo18
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O_O

« Reply #11 on: September 11, 2010, 03:29:20 AM »

Ahhh i see. Well i suppose i can wait a little while longer. Cant have anything done till february anyway because of the auto-immune disease i had. Need to make sure its gone!
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kellyt
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« Reply #12 on: September 11, 2010, 09:00:08 AM »

My donors did blood first to check blood type and match.  Once that was determined they were admitted to the hospital for an overnight stay.  The hospital no longer does this and donors do all their testing outside the hospital.  Anyway, they do more blood work (they were stuck every 30 minutes or so for a few hours (that was the worse part), they did blood pressure checks regularly (or constantly it seemed), they did multiple urine tests, they progressed to the chest x-ray the next morning if all went well the first day, then they did whatever the test is they inject the dye into the veins and they get real hot.   Can't remember what that's called.

That was about it I think.   Good Luck!!!!!   I hope Mom's super healthy and can proceed with a safe surgery for both of you!   :clap;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
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