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Author Topic: Transplant Scheduled for August 12th - a new road  (Read 9956 times)
paris
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« Reply #50 on: October 30, 2009, 06:13:09 PM »
Nice to hear good news    :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Phraxis
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« Reply #51 on: November 16, 2009, 09:07:55 PM »
November 16th, 2009 update

60 days post transplant feeling great but for a a minor case of neural toxcity from the tac covered in an post. Rain is limiting my walking but I am doing stairs.

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Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #52 on: November 17, 2009, 02:38:09 AM »
Wow.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
Phraxis
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« Reply #53 on: February 27, 2010, 09:35:50 PM »
Coming up on six months, And everything is going great. Going to return to the gym and even start yoga as I promised Tif (sister who gave me this uber kidney)

I have to express my gratitude to all participants in the forumn, you have all  been a great comfort and facilitator of learning for me.

THANKS!
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Chris
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« Reply #54 on: February 27, 2010, 10:42:15 PM »
Phraxis, just start slowly and work your way up when doing ab work. It maybe painful at first, but the more you build up to, the better and easier it will be.
Good Luck
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #55 on: February 28, 2010, 02:54:21 AM »
 :yahoo; Great! Best wishes to you and Tif!  :2thumbsup;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
monrein
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Might as well smile
« Reply #56 on: February 28, 2010, 05:57:57 AM »
So great to hear how well you're doing..and the yoga is a terrific idea.  All the best to you and your sister. 
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
sico
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wheres my bike gone?
« Reply #57 on: March 01, 2010, 11:30:33 PM »
I can only hope my outcome will be something like yours post transplant. Thanks for the update.
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Brad      "Got myself a one way ticket, going the wrong way" - Bon Scott

6/11/08 diagnosed with ESRF, dialysis that day

HD and PD

8th of April 2010 Live kidney transplant from my father.
Phraxis
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« Reply #58 on: March 16, 2010, 08:00:28 PM »
Six months, and all is going great!

Was sent home from clinic with exhortation to keep doing what I am doing, and "don't screw it up!"

Thanks again for all your kindness.
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #59 on: March 16, 2010, 10:34:42 PM »
 :thx; Love hearing the update! :2thumbsup;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Phraxis
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« Reply #60 on: August 25, 2010, 03:36:23 AM »
Despite the warning that nothing has been posted in the thread for 120 days, I am going to share the celebration of approaching 12 months post transplant.

Tiff celebrated by completing the 125 km Great Canadian Death Race. Her team finished in 18 hours. Nothing says "recovery" like a brisk 22 km run through the mountains . I was on babysitting duty.

Swam for the first time -- wow I never thought 100 m could be so far.

Kidney function and all levels described as "perfect, just like always".

Tiff was honoured at our local Kidney Walk  (she was teased about her lack of preparation as she showed up with gladiator sandals but then as above she did not really see the 5 km as much of a challenge)

I will repeat my gratitude to all who post here and add their support, it has been a great help to me this past year.
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Sunny
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Sunny
« Reply #61 on: August 25, 2010, 01:12:27 PM »
Wow!
Sounds like you and your sister are doing very well. Gives us all hope.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #62 on: August 29, 2010, 02:03:26 PM »
 :thumbup; :thumbup; :thumbup; Congrats to Tiff - she's an amazing person - LIVING DONORS ROCK!

I am so happy to hear how well it's going!  :yahoo;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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