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I Hate Dialysis Message Board
Dialysis Discussion
Dialysis: Home Dialysis
Today's Clinic Visit
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Topic: Today's Clinic Visit (Read 2644 times)
clappedout
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Today's Clinic Visit
«
on:
August 17, 2010, 05:04:24 AM »
Quote"smile it can't get any worse"...so I smiled and guess what...it just got worse"...On CAPD..now i9nformed low transporter..cant get rid of the water..so the next step..Hemo..great..I love needles..just love em..If I was a junky I would be buggered lol!
Whats it like folks..does the Fistula hurt..do the needles hurt..does it all hurt
?
I feel like crying sometimes in relity and I hate going to see the Neph..never has anything good to say...feel like a naughty schoolboy sometimes..and why oh why do I always seem to feel guilty when I'm there ??..sorry folks need to rant a bit..hope all you guys are doing well
love steve C
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galvo
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Re: Today's Clinic Visit
«
Reply #1 on:
August 17, 2010, 05:53:53 AM »
Cheer up, mate. It's bound to get worse! Seriously, though, my fistula op gave me no pain at all. Some people seem to have some discomfit. Some are sore. The needles are nothing-have some local initially. I haven't bothered with any for months. You'll be right
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Galvo
Marina
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God Bless my donor family!! :)
Re: Today's Clinic Visit
«
Reply #2 on:
August 18, 2010, 06:35:11 PM »
Steve,
sorry to hear that.
did PD nurse suggest cycler or shorter dwell times before heading to Hemo?
I've never done hemo, from what I hear, if you follow your fluid restrictions, hemo will be so much easier on you.
I've been doing PD since 2004, but in 2007 I had an exit site infection, my dr recommended getting a fistula just in case the cath he to be removed. Luckily the infection was mild (caused by water, or nor drying the site completely). I've had my fistula since Aug 21, 2007 no pain whatsoever.
Using the fistula can be a bit uncomfortable to painful. Ask hemo techs to use a numbing cream. In fact you can ask your Dr for a prescription for it, and put it on 20-30 minutes before treatment time.
take care!!
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"Anything is possible, if you BELIEVE....." ~~~Joel Osteen
"Yesterday is history, Tomorrow is a mystery, Today is a gift..... That is why it is called the present"
*************************************************
Nov 1979 ~ Diabetes
Apr. 2004- Nov 2010 ~ CAPD
Nov 9, 2010 ~ Received the THE GIFT OF LIFE at
California Pacific Medical center (CPMC) in San Francisco, CA
natnnnat
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Re: Today's Clinic Visit
«
Reply #3 on:
August 19, 2010, 07:24:51 AM »
I hope it isn't as bad as you are expecting. My husband actually preferred HD over PD, he did CAPD for a year and then went to in centre haemo for four more years. Maybe you'll be like him? I really hope that it works out not too bad for you...
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient:
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.
Over the years: skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.
2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.
http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
tito
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Re: Today's Clinic Visit
«
Reply #4 on:
September 04, 2010, 11:32:36 AM »
Don't switch yet!!!
I am the world's slowest transporter, but working with my nephrologist and the PD nurses, we got my kt/v up to 2.02 this last time, after about a year of experimenting.
I do two dwells in 9 hours on the cycler, and one exchange during the day. The night time dwells average about 4 hours, and the day time about 6. That seems to do it for me.
Ideally, I should be on manual exchanges - whenever I travel and use manual, my clearance goes up. But I work during the day as a teacher, and have no time or place to do the exchanges. My one day time exchange is done when I get home at 3 pm.
I was just in the hospital and rehab for a hip replacement. They started doing exchanges six times a day and my clearance fell. There was a big, mean nephrologist who insisted on getting me ready for hemo. I fought back tooth and nail, alerting social workers, all hospital personnel that I did not want to be touched. He eventually backed off, and my clearance began to go up - they switched to four echanges a day with 6 hour dwells.
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