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Author Topic: starting Nocturnal.......  (Read 2324 times)
tyefly
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This will be me...... Next spring.... I earned it.
« on: July 14, 2010, 08:14:34 PM »
Well its been a pretty good summer so far......  I have been gardening and getting into plants.....  bonsai  and propagation..... fun stuff.....

  I am starting nocturnal nxstage next month....as soon as my new cartridges come..... Everything has been approved with my clinic and my Doctor and my insurance.....   I am so glad........  now I can sleep thru all those hours.......  its been hard doing almost 4 hours per day ..... now I am going to do 8  but I will be dreaming great thoughts  ( I hope ).... 

  Its been hard getting everything approved ......  Got to give a big thx to Bill Peckham and Peter Laird along with a few others who have written great things about Nxstage and Nocturnal .....  and of course my Doctor who stands behind the whole concept........  Life is good.....Now I just need a transplant.......   
   
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
rocker
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« Reply #1 on: July 14, 2010, 08:18:33 PM »
I am so jealous.  We cannot get our clinic to buy into nocturnal, at all.  I keep telling the neph - dude, all I need is a heparin pump....we can take it from there....he just shrugs it off.

Anyone with any suggestions as to how to kick a slow-moving DaVita clinic in the ass, please, I would love to hear them.

 - rocker
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Jean
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« Reply #2 on: July 15, 2010, 12:36:23 AM »
Good for you Kathy. Glad to hear it. I know you are going to be successful at this. Good luck.
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One day at a time, thats all I can do.
monrein
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Might as well smile
« Reply #3 on: July 15, 2010, 04:23:45 AM »
 :2thumbsup;  Great news.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Zach
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"Still crazy after all these years."
« Reply #4 on: July 15, 2010, 05:05:43 AM »
Excellent!
More hemodialysis is better.
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
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