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Author Topic: Lessons Learned  (Read 2083 times)
Kitty Cat
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Lila & Smudgie

« on: August 06, 2010, 11:30:54 AM »

So, since my last rant, things had improved, I wasn't (still am not) allowing people to walk on us and had had enough with the In-Law (out law is more appropriate). My husband has now been home for 2 weeks since the colonoscopy has been reversed, while he was in the hospital my mother in law did something so offensive that I truly blew a gasket and told my husband that he now had to make a choice, me or her. I told him she was no longer allowed to visit him when I was home, I don't care if it's a holiday or not (not like she'd make the effort, but still....) I was so angry I was actually calm. He was completely dumbfounded. We will have been married on the 19th of this month for 27 years. I will no longer tolerate her nonsense and I will not be a 3rd wheel in my own marriage. He was to get her out or I am leaving. No if ands or buts. So far, it's been very nice. He no longer discusses what we are doing or that I even exist. His calls with her are very short.  The world of a dialysis patient is hard enough without somebody who couldn't care less causing as much grief as possible. I don't care if it's his mother or a complete stranger. We DO NOT have time to waste on such senseless nonsense.

Now on the other side, when he came home from the hospital, they hadn't closed up the wound which was 13 inches long and 4 inches wide. The reason was because he gets pretty bad infections so easily, they were hoping this would avoid one. It worked!  I had to learn quickly how to pack this wound twice a day. The first few times, I had to leave the room, take a deep breath then come back and start over. Now I can help change this fairly quickly and when the surgeon saw him, she told him that we were doing an excellent job. The incision is now 8 inches long and 2 inches wide!!! I guess I can learn to do anything I need to do. Right now I can't get near him as I have some summer virus which has kept me home from work for 3 days now, my doctor says that I should start feeling better in a couple more days. I can't chance passing it on to my husband. I'm not complaining because what he goes through is a thousand times worst.

It's amazing what I've learned on how to take care of my husband, I wish it wasn't so, this disease is horrible. It doesn't pay a sliver of attention to how it affects people or what it does to people. But, what I'm discovering is that the people that stand by you are the priceless friends to keep. My husband lost almost all of his friends because he had gotten sick. It used to break my heart when he'd call one of them and they wouldn't take his calls. He's no different than before, just now has an extensive medical history. At the same time, the few people who come around are so special to us. He goes into the hospital, they want to know what they can do to help out and they take the time to call and/or visit him. I guess in the end, being sick from this disease has brought out the best in some and driven others off. We take what we're given and run with it!

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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: August 06, 2010, 12:18:41 PM »

Great post. It's true, stick with the people who nurture and support what you're going through. The rest are just not worth worrying about. Best wishes to you both - hope your bug goes away and hubby's wound continues to heal well!
« Last Edit: August 06, 2010, 05:07:42 PM by okarol » Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Dianejt
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« Reply #2 on: August 06, 2010, 03:00:11 PM »

 :flower; Keep up the great job, take time to get better. It is amazing what we learn to do. Let's send a bill to the insurance companys for our work.
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caregiver to husband Frank

bladder cancer 1994
renal failure April 2009 due to blocked right ureter. Left kidney 20% function
November 18 2009 surgery to remove right ureter.
April 3, 2010 removal bladder, prostrate, left kidney.
June 11, 2010 started Hemo @ hospital
July 2, 2010 Embolized right Kidney due to hemoraging of tumor
September 11, 2010 RIP my love
paris
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« Reply #3 on: August 06, 2010, 08:18:53 PM »

You are so good at putting words on paper.  Your post was great.   I have had to let the negative people in my life go and surround myself with positive people.  I hope things keep improving.   Take care of yourself, too.   :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Poppylicious
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« Reply #4 on: August 07, 2010, 02:40:47 AM »

Awww, Kitty Cat, it's amazing what we can do when we have to.  Hope the MiL issue continues to be good and that you feel better soon!

 ;D
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
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Everything was beautiful, and nothing hurt.
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