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Introduction
Introduce Yourself
My introduction :)
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Topic: My introduction :) (Read 1810 times)
gothiclovemonkey
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My introduction :)
«
on:
July 18, 2010, 07:00:56 AM »
Hello, My name is Jen, aka Gothiclovemonkey, aka the Squrl
I stumbled upon this site while looking for info on pd, as i just started doing pd. I have FSGS, and no idea why. When i was 10 i lost my first kidney to a 25lb terratoma tumor in my abdomen. I found out i had kidney failure in 04, when i had my son at 5 1/2 mos due to me getting really sick.
I had been on hemo since 07, i hate it very very much. Pd has been so much better. While id rather not have to do it, im glad pd is available it really has been a life saver for me. Cant stand hemo....
I was going to davita from 07 to 09, it was a terrible experience. I ended up going to the hospital, which was in another town, the dialysis center their seemed a better fit, so i transfered, and things were much better. Then i found out about pd...
Im a single mom of an awesome little boy, im a dork, anything else u want to know u can ask me.
Nice to meet you
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Last Edit: July 18, 2010, 05:30:51 PM by gothiclovemonkey
»
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"Imagine how important death must be to have a prerequisite such as life" Unknown
HemoDialysis since 2007
TX listed 8/1/11 inactive
LISTED ACTIVE! 11/14/11 !!!
RichardMEL
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Re: My introduction :)
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Reply #1 on:
July 18, 2010, 07:13:27 AM »
Welcome Jen/Gothiclovemonkey/squrl - hmm I'm sure there are stories there, but I'm almost afraid to ask!!
Glad to have you with us, but not glad you hated hemo, but glad you found and can do pd, and hope that works for you for a long time. Thus the glads outweigh the "not glad"s, so you better stay now!!!
RichardMEL, Moderator
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!!
BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
YLGuy
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Re: My introduction :)
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Reply #2 on:
July 18, 2010, 07:44:21 AM »
This is a very good site that offers awesome insight to the many different aspects of ESRD. Glad you are here.
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gothiclovemonkey
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Re: My introduction :)
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Reply #3 on:
July 18, 2010, 07:46:43 AM »
yes there are stories there. hehe Not really sure how i got the gothiclovemonkey, but i like it anyway heh, as for Squrl, my mom... Before she died, she would call me squirrel, i changed the spelling because im fun like that
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"Imagine how important death must be to have a prerequisite such as life" Unknown
HemoDialysis since 2007
TX listed 8/1/11 inactive
LISTED ACTIVE! 11/14/11 !!!
Dianejt
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Re: My introduction :)
«
Reply #4 on:
July 18, 2010, 11:04:34 AM »
Glad you found us. I don't even do hemo as I'm my hubby's caregiver, but I hate it also & he has only been doing it since June 11th. I wish he could have tried PD but too much scarring. Hope you post often.
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caregiver to husband Frank
bladder cancer 1994
renal failure April 2009 due to blocked right ureter. Left kidney 20% function
November 18 2009 surgery to remove right ureter.
April 3, 2010 removal bladder, prostrate, left kidney.
June 11, 2010 started Hemo @ hospital
July 2, 2010 Embolized right Kidney due to hemoraging of tumor
September 11, 2010 RIP my love
galvo
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Re: My introduction :)
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Reply #5 on:
July 18, 2010, 03:22:49 PM »
G'day, Squrl, and
.
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Galvo
gothiclovemonkey
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Re: My introduction :)
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Reply #6 on:
July 18, 2010, 03:44:17 PM »
dianejt, Im surprised i got to, i have a hip to hip scar from a surgery when i was ten, and belly button to... hair line, from a c sect plus others, yet they said i should be ok....
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"Imagine how important death must be to have a prerequisite such as life" Unknown
HemoDialysis since 2007
TX listed 8/1/11 inactive
LISTED ACTIVE! 11/14/11 !!!
Riki
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Re: My introduction :)
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Reply #7 on:
July 18, 2010, 07:49:38 PM »
I was always on PD. I started young, like you, when I was 12. I've had 2 transplants so far, and I'm hoping the 3rd one comes along soon. The last time, I was on PD for almost 5 years, and I had to stop because of a really bad peritonitis episode. I seriously thought I was gonna die, it was so bad. I went on what was supposed to be temporary hemo, but about 6 months into it, they tried to place a new PD catheter, but the peritonitis had done it's damage, and there was too much scar tissue to bother. I'm actually doing better on hemo than I was on PD, although I miss the freedom that PD provides. Everyone has their good days and bad days, but I've noticed that I've had a heck of a lot more good days on hemo than I ever did on PD. Would I go back to PD if I could? In a heartbeat, but I"m doing so good on hemo, I can sacrifice the freedom I had to feel 10x better than I did before
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten
Re: My introduction :)
«
Reply #8 on:
July 19, 2010, 02:27:37 AM »
Welcome to our community, Squrl! So glad that you found us. I know that you are going to enjoy it here - a wonderful place for information, support and even fun. All you have to do is keep reading and keep posting. You are now part of the IHD family
- a wonderful group of sharing and caring people.
Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"
I LOVE my IHD family!
peleroja
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I have 16 hats, all the same style!
Re: My introduction :)
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Reply #9 on:
July 19, 2010, 08:45:12 AM »
Hey, Jen, welcome to the group. I couldn't agree more about PD. I love it and absolutely hated hemo when I had to go on it for 6 months. Glad you found us.
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