Hi

[rebeccallana]

Hi, my name is Vikki and I am 28.  My partner is 42 and has Glomerulonephritis.  We have 5 kids, the youngest is 6 and a half weeks old.  Over Christmas my partner Jake was ill and so went to see his consultant.  He got a kidney biopsy in February and on 11th march was started on dialysis so we had no idea that it was coming.

Kids are Cameron - 15
Allana and Rebecca - 7 (twins)
Emma - 2.5
Robbie 6 weeks

I feel like I am losing my mind and found this place, it seems like a godsend already

[Dianejt]

  Vicki, 
 You have found a wonderful community here with lots of knowledge, Lovve & support.

[Jean]

  to IHD. That is rough, having the sick hubby and little ones besides to deal with. Come back often, and read, read, read and keep in touch.

[monrein]

   Vikki and I hope that this site will be as useful and supportive for you as it has been for me and so many others.  You are in a rough spot for sure and you now have many here who will be on your side through this struggle.

[CharmedMist]

You are not alone. We are here for you!

My name is Lela and my husband has ESRF. He will be 49 in October and has been on dialysis for 3 1/2 years.

We have 3 kids at home as well:
Matt is 13
Sarah is 12
Nicky is 11.

I know it seems overwhelming right now and it's hard to think straight or not cry at odd moments or just want to shut your brain off entirely. But, it does get easier in some ways and you begin to realize you take life as it comes and you are given enough strength for each day.

Welcome to the board and "family" here.

[Rerun]

Yep you have a full plate.  Hang in there and I hope things go smooth for you guys.  Lots to learn here.  Happy reading.  Would be good if your partner could read for himself.  Much better to learn first hand. 

Rerun, Moderator     

[galvo]

G'day, Vikki and .

[DianaJean6]

Hi Vicki,
I had six kids by the time I was 29 (5 boys one girl all single births) so I 'feel ya'! I know a lot of people who hear that say "Damn, how did you do it!" As you know, you do what you gotta do!  I hate that your partner has do go through this.  I would not wish it on anybody!  I have never, ever read or posted on a message board until now.  I found this site quite by accident.  I was not looking for a support group.  I googled a question about phosphate binders and was led to this site.  I am lovin' it.  I know you don't have much time to read but try to do so as much as possible.  Maybe your partner might be influenced to join.  Believe me, message boards were never my thing.  But I'm hooked on this one.  Just by reading other folks posts I get supported and often I feel, "Yea, me too!"   

Sincerely,
Diana

[CharmedMist]

I'm hooked here too. I check it at work, at home, I read and read. Laughing at the funny things like "stupid things people say" and crying at the stories I can understand so well. I get told "how it is" lovingly and honestly by those here that have been where we are. It's refreshing to get that and not people that just try to give advice that they don't really understand.

I love my sister, but every time I try to talk to her about my husband's illness, she tries to "one up" me on something of her own. Sometimes, we just need a compassionate ear and sometimes we need someone to be straight forward and say "you need to do this!"

That's what I love about this board, I get both.

[Bajanne]

Welcome to our community, Vicki!  I am so glad that you found us at this difficult time.  I know your situation cannot be easy and now complicated with this renal challenge.  But I am always amazed at the strength of the human spirit when faced with challenges, and I know you will get through all of this.  And you have your new IHD family going through it all with you,    if you let us.  Here is the place for information and support.  Here people totally understand what you are going through.  Here we even have a Spouses and Caregivers section where you can get extra support.  Just keep reading and keep posting.




Bajanne, Moderator

[jessup]

G'day and 
You certainly have found a great community here!  Lots to read and learn and of course support and understanding
 

[rebeccallana]

Thanks every one for all the great messages of support.

Wish my partner could join, but he has really bad dislexia, so relies on me to read and write everything for him.  I talk about this site all the time to him though.  I have been reading non stop!

I love what everyone does here, hope you all keep up the hard work, this is becoming my lifeline for information and it'll be the same for every other member

thanks again

 

[Poppylicious]

Hi Vikki, 

I don't have children (hopefully, one day - and I do have two attention-seeking cats instead) but I do have a husband whose kidneys unexpectedly failed so I can relate.

This place IS a godsend ... I tend to come here purely to rant, but it's good to rant with people who fully understand what I and my Blokey are going through.