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Author Topic: kidney removal canceled, cancer has spread into pelvic area  (Read 9830 times)
Dianejt
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« on: July 02, 2010, 02:47:08 AM »

Franks surgery was canceled because the biopsy showed the tumor has spread.
Today they are embolizing the blood supply to the kidney to stop the bleeding.
I'm so distressed, my life is crumbling and watching the torture Franks been through
is tearing me up.
Now he needs to start treatment once they decied what to do. How will he survive all this??
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caregiver to husband Frank

bladder cancer 1994
renal failure April 2009 due to blocked right ureter. Left kidney 20% function
November 18 2009 surgery to remove right ureter.
April 3, 2010 removal bladder, prostrate, left kidney.
June 11, 2010 started Hemo @ hospital
July 2, 2010 Embolized right Kidney due to hemoraging of tumor
September 11, 2010 RIP my love
Des
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« Reply #1 on: July 02, 2010, 02:50:26 AM »

Diane,

So sad to hear that this is happening. I am sending cyber hugs and will pray that you both find the strength to come through this.

Love

D
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
natnnnat
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« Reply #2 on: July 02, 2010, 03:38:50 AM »

 :( :(   Worried about Frank and about you too.  You said you have family at home, fathers and sons and things.  Are they good for things like hot meals and company?
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
Dianejt
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« Reply #3 on: July 02, 2010, 04:34:45 AM »

Yes at our home there is my Dad who is 84 & in a wheelchair, our Son, wife & 2 grandchildren. We have services come in to bathe my Dad everyday. My son & daughter-in-law have been taking care of my Dad getting all his meals, shopping for him etc. I've been coming home every other day to sleep as I'm not able to sleep well at the hospital. The nurses have brought in a cot for me to sleep on but they are in & out all night long. He has had blood tranfusions (11 units so far) which if done in the room take hours & he must be watched closely. I'm so tired, scared & I'm so disappointed in the way things have gone. I feel like the doctors have shoved us into a 10x12 ft room to wait & see what they do next. He has tubes & cathaters everywhere. We cannot even hold each other as his bed is higher than the cot & not enough room for me to climb in his. They cannot leagaly give me a bed higher in case I fall out. My life is falling apart around me & I can't do anything to change that.
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caregiver to husband Frank

bladder cancer 1994
renal failure April 2009 due to blocked right ureter. Left kidney 20% function
November 18 2009 surgery to remove right ureter.
April 3, 2010 removal bladder, prostrate, left kidney.
June 11, 2010 started Hemo @ hospital
July 2, 2010 Embolized right Kidney due to hemoraging of tumor
September 11, 2010 RIP my love
natnnnat
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« Reply #4 on: July 02, 2010, 05:02:40 AM »

Will they allow it for you to bring things from home in?  Even a familar bedspread, or pictures...?  Things that might make the room into more of a safe feeling space for you both to be in?  I went with Gregory to emergency once, and saw a family come to visit a man with some serious trouble with his lungs.  They brought him a patchwork quilt from home.  I think it helped them all.
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
monrein
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Might as well smile

« Reply #5 on: July 02, 2010, 05:28:25 AM »

Diane, I felt so sad reading this about Frank and also concerned for you.  I send you a big hug and hope for any improvement possible.  I will keep you in my thoughts.
 :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Des
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« Reply #6 on: July 02, 2010, 05:37:17 AM »

Yes at our home there is my Dad who is 84 & in a wheelchair, our Son, wife & 2 grandchildren. We have services come in to bathe my Dad everyday. My son & daughter-in-law have been taking care of my Dad getting all his meals, shopping for him etc. I've been coming home every other day to sleep as I'm not able to sleep well at the hospital. The nurses have brought in a cot for me to sleep on but they are in & out all night long. He has had blood tranfusions (11 units so far) which if done in the room take hours & he must be watched closely. I'm so tired, scared & I'm so disappointed in the way things have gone. I feel like the doctors have shoved us into a 10x12 ft room to wait & see what they do next. He has tubes & cathaters everywhere. We cannot even hold each other as his bed is higher than the cot & not enough room for me to climb in his. They cannot leagaly give me a bed higher in case I fall out. My life is falling apart around me & I can't do anything to change that.

This is so sad . I wish I can have all the hurt to just go away for you. Hold his hand and kiss him and put your head on his pillow (sitting next to him) 

Bring lotion in and rub his feet (or anything else that you can reach) Talk to him and bring his favourate music (softly) My heart goes out to you and the family.
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
galvo
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« Reply #7 on: July 02, 2010, 05:47:20 AM »

Diane, I feel for you in your sorrow.
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Galvo
RichardMEL
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« Reply #8 on: July 02, 2010, 07:20:39 AM »

Oh Diane, that is a cruel blow your hubby (and you) have suffered. I really don't know what to say. I can't even begin to imagine how you must feel and even me, who is usually so positive about stuff, feels deeply sad about this setback.

My best wishes and thoughts at this time that somehow, someway, some kind of miracle occurs for you and hubby can improve and fight this latest setback.

 :grouphug; :grouphug; :grouphug; :grouphug; :grouphug;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #9 on: July 02, 2010, 12:32:40 PM »

 :( I am so sorry. If they don't have a concrete plan, would it matter if you brought him home? I don't know if that is impossible or not, but I understand about not being able to hold each other. That's the worst, because you both need it now. Best wishes and HUGS for you both.
 :grouphug; :grouphug; :grouphug;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
cariad
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What's past is prologue

« Reply #10 on: July 02, 2010, 01:39:02 PM »

I am heartbroken for you, Diane. I'm keeping a good thought for you and Frank that he is able to push through this and come home. :grouphug;
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
Dianejt
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« Reply #11 on: July 02, 2010, 07:36:59 PM »

The embolizing of the kidney went well today. All his vitals are stable & his pain is lower than before the procedure. He was so very tired when he got back. 4 hours of D then 2 1/2 hour surgery with 3 hours in the recovery.
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caregiver to husband Frank

bladder cancer 1994
renal failure April 2009 due to blocked right ureter. Left kidney 20% function
November 18 2009 surgery to remove right ureter.
April 3, 2010 removal bladder, prostrate, left kidney.
June 11, 2010 started Hemo @ hospital
July 2, 2010 Embolized right Kidney due to hemoraging of tumor
September 11, 2010 RIP my love
cariad
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What's past is prologue

« Reply #12 on: July 02, 2010, 07:49:11 PM »

Diane, I am so glad that things have gone well and that Frank has less pain. Wonderful, encouraging news. A full dialysis session followed by surgery? My hat is off to him. :bow; That is one grueling day and I hope you both can get some good rest now. :grouphug;   
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
Jean
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« Reply #13 on: July 03, 2010, 12:05:23 AM »

So very sorry Diane.   :grouphug;  :grouphug; :grouphug;
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One day at a time, thats all I can do.
RainingRoses
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« Reply #14 on: July 03, 2010, 08:29:01 AM »

Diane, lighting a prayer candle for you and yours today. I am so very sorry.
Pete
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Finally Diagnosed 6/2001 Alport's Syndrome
CAPD 10/ 2006
Listed on UNOS 7/2007
CCPD  10/2007
Peritonitis & Hemo 10/2009
CCPD 2/2010
Marsh
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« Reply #15 on: July 03, 2010, 06:03:04 PM »

Diane, you and Frank are in my thoughts and prayers!
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Mimi
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For any who do not like me I use - prayer.

« Reply #16 on: July 06, 2010, 05:36:23 PM »

Oh Diane, that's the thing about life.  Just as you get your parade set
up, it starts to rain.  My heartfelt thoughts and prayers go out to you and Frank.  This is a hard, hard, time.  Stay close to Jesus, He knows what you are going through.

Love Mimi
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
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