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Author Topic: feeling down  (Read 4410 times)
Quickfeet
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« on: June 26, 2010, 07:07:20 AM »

My uncle and cousin just brought over some furniture. Thanks to my gout flare up I was completely useless. My uncle is in his sixties and I'm just standing there watching. I had to take vicodin so I could stand. I really would have felt like a piece of shi* if had sat there and watched. I'm paying the price for saving that little bit of pride. My foot hurts so bad I want to cut it off. I'm going to take two 10/325 norco's for the pain and then lay in bed the rest of the day. How exciting. what a great life.

On the bright side, at least not every day is this bad.
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Dianejt
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« Reply #1 on: June 26, 2010, 07:19:50 AM »

 :grouphug;
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caregiver to husband Frank

bladder cancer 1994
renal failure April 2009 due to blocked right ureter. Left kidney 20% function
November 18 2009 surgery to remove right ureter.
April 3, 2010 removal bladder, prostrate, left kidney.
June 11, 2010 started Hemo @ hospital
July 2, 2010 Embolized right Kidney due to hemoraging of tumor
September 11, 2010 RIP my love
Jean
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« Reply #2 on: June 26, 2010, 09:36:53 AM »

 :cuddle;
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One day at a time, thats all I can do.
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« Reply #3 on: June 26, 2010, 09:38:55 AM »

And that is how you have to look at it "not everyday is that bad".  Otherwise you would go crazy.  I feel bad for you and hope the Gout subsides soon.  Best wishes and hugs.    :cuddle;
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billybags
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« Reply #4 on: June 26, 2010, 11:54:06 AM »

Quickfeet, sorry but I had to smile, Quickfeet and you've got gout in them. I bet they are not very quick now, only joking. My husband used to suffer terribly with gout, he says it is so painful, he takes gout meds every day now and had to stop having a drink of bear years ago, and touch wood it has worked.I think it has something to do with uric acid in the blood and an inability of the kidneys to adequately clear uric acid from the body. Shellfish, certain medications, and an excess of alcoholic beverages may increase uric acid levels and cause gout attacks. Hope you get some relief soon.
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Quickfeet
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Mack Potato

« Reply #5 on: June 26, 2010, 01:01:19 PM »

Billybags you figured it out!  :rofl; I have had problems with gout for the the last ten years. Fatigue from CKD plus gout equals Quickfeet. I picked the name to be funny but also to give the finger to my diseases. It's that "I am not my disease" thing. My feet are quick, its the diseases that are slow.

I guess I forgot all that when I started this thread. I am not useless. My gout took me out of the game today. If my helpers were in as much pain as I was, they wouldn't be helping either. I almost never give myself credit for the strength I have. If I was weak, I would be skipping my PD exchanges. I would stop taking my 13 daily perscriptions. I would bury myself in drugs and alcohol.

You are right about all that gout info too. Medically I'm doing everything I can. I take Uloric for my uric acid (my uric acid is now almost down to a safe range). My gout hasn't shown to be sensitive to any food triggers. This particular attack might be linked to my increase in protein for my dialysis diet. I started my Prednisone so it should clear up with in a few days.
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Bajanne
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« Reply #6 on: June 26, 2010, 01:33:42 PM »

I am truly empathize!  I have had off and on gout attacks over the last years.  Sometimes it is absolutely crippling.  I am supposed to be taking allopurinol when I am not having an attack.  When I do have an attack, I take indomethacin.
Hang in there and keep on keeping on.  :cuddle;
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Sunny
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Sunny

« Reply #7 on: June 26, 2010, 02:46:26 PM »

Just do the best you can to get through the next few days. The gout should subside soon. I've had it too and know how much pain you must be having.
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Sunny, 49 year old female
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looneytunes
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« Reply #8 on: June 26, 2010, 03:27:14 PM »

QF, I sure hope things are better for you soon.   :grouphug;
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paris
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« Reply #9 on: June 26, 2010, 06:20:35 PM »

Hope tomorrow is better.  There is no way to explain to someone how bad the pain of Gout is (and I have had 4 children!!).    :cuddle;
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monrein
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« Reply #10 on: June 26, 2010, 07:18:39 PM »

Nothing worse than gout...people who've never had it simply have no idea. I hope the attack subsides soon.   :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
galvo
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« Reply #11 on: June 26, 2010, 10:03:08 PM »

Gout is the pits!
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Galvo
Jean
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« Reply #12 on: June 26, 2010, 11:53:33 PM »

Sorry you are in so much pain from this. Hope it gets better for you soon.   :cuddle;
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One day at a time, thats all I can do.
billybags
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« Reply #13 on: June 27, 2010, 12:29:23 PM »

Quickfeet, are they tapping now? Hope the gout has gone. I didn't mean to sound like I thought you were into the booze. Are you?  My husband has been on allopurinol for about eight years, is Prednisone the same thing? could not resist this.

Happy feet, put on those Happy feet, come on sing along.
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peleroja
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« Reply #14 on: June 27, 2010, 12:39:38 PM »

Yeah, some days you step in it and some days you step over it!  Hope you get to feeling better soon.
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natnnnat
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« Reply #15 on: June 27, 2010, 04:41:21 PM »

Peleroja:  hee hee!  well put!
quickfeet:  sympathy, gout is soooo terrible.  When my DH gets it he cant even stand having the sheet on his feet, has to stick them out in the air.   But hopefully you're tapdancing with billybags now, all gout a distant memory once more...
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
kitkatz
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« Reply #16 on: June 27, 2010, 09:59:50 PM »

I know what you mean about feeling useless. A friend of mine is losing her house and all I could do was sort bills and paper work for her.  No heavy lifting, no moving of anything.  I make a great sidewalk supervisor.  Sigh!
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Quickfeet
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Mack Potato

« Reply #17 on: June 28, 2010, 12:53:51 AM »

Billybags, uloric is similar to allopurinol. the prednisone helps reduce the inflammation.

Quote
I didn't mean to sound like I thought you were into the booze. Are you?
Nope, just wish I was.
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Quickfeet
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Mack Potato

« Reply #18 on: June 28, 2010, 12:58:36 AM »

Quote
I make a great sidewalk supervisor.

And was that one of the days where you looked sick enough to supervise, or one where everyone tells you how great you look?
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Stoday
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« Reply #19 on: June 28, 2010, 08:58:54 AM »

Nothing worse than gout...people who've never had it simply have no idea.

Yes there is — people who say your gout is a consequence of luxurious living, scoffing lobster and foie gras washed down with aged Cognac.

Er... did you enjoy...  :rofl;

Sorry, my joke. You have my sympathy really.
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Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
Started hemo July 2010
Heart Attacks June 2005; October 2010; July 2011
Quickfeet
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Mack Potato

« Reply #20 on: July 01, 2010, 12:42:13 AM »

Thank you, everyone.

I won't say all the things I want to say because it would be too depressing. The short version; if i didn't have my daughter, I would just put myself out of my misery. I'm going to stay away from the site for a few days. I need to pretend to be normal for a little while.

Best of luck everyone.  :grouphug;
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MooseMom
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« Reply #21 on: July 01, 2010, 07:34:44 AM »

It's summer, and this is the season in which to enjoy your daughter.  Little girls love having their daddies around; it doesn't take a lot to entertain them.  Tea parties in the back garden, teddy bear picnics, watching Disney films about princesses, having lunch together...simple pleasures that don't take fully functioning kidneys to enjoy.  Have fun!  Your daughter is the best medicine that money cannot buy.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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« Reply #22 on: July 01, 2010, 11:44:59 AM »

Nothing worse than gout...people who've never had it simply have no idea. I hope the attack subsides soon.   :cuddle;
Yup you are right. We  who dont have gout have no idea. I had to look it up myelf.

quickfeet, I will pray that you feel better.

Lisa
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Check out my Facebook profile for CKD "Help Lisa Spread Awareness for Kidney Disease"

It is my utmost dream and desire to reach out to other kidney patients for them to know that they are not alone in this, also to reach out to those who one day have to go on dialysis though my book i am writing!

dx with lupus nephritis 5/99'
daughter born 11/2005
stage IV CKD 11/2005-6/2007
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CharmedMist
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« Reply #23 on: July 01, 2010, 11:46:06 AM »

My husband has neuropathy in both feet, so I can sympathize. Tasks that used to be "no big deal" are now terribly hard. IE: Mowing the lawn.

Little things hurt him, you can walk by and accidentally brush his feet and it hurts. We are all very careful.

I also know it's been hard on him watching others do things for him that he can't do. But, I always try to remind him of the things he can do.... bring laughter to our life, love us entirel and continue to fight the good fight in regards to the illnesses he battles.

Sure, he  might not have the "physical" strength of some guys, but he has more mental and emotional strength than most others. As I'm sure you do too.
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Nothing in all the world is more dangerous than sincere ignorance and conscientious stupidity.
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