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Author Topic: My day is Tuesday BUT...  (Read 3144 times)
renalpenguin
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« on: June 19, 2010, 07:16:47 AM »
I'm SO EXCITED... my donor (cousin- he ROCKS!) just flew in from California and we're scheduled for Tuesday.
BUT there's some issues that came up, and I'm just wondering if anyone has any experience with these...

1.) My blood pressure is 90/50... my transplant team says if we can't bring it up by Tuesday, the transplant's postponed (and probably off- I don't want my cousin to have to come 2000 miles again!) They said eat salt,use 1.5 pd fluid, and pray... any other ideas?

2.) My resting pulse is 120... any ideas to bring this down? (They aren't too worried about it, but I am)

3.) Fellow Ladies, I haven't had a period for the past year thanks to dialysis and kidney disease... guess what just started this morning! Any experience with this? They won't cancel, will they? (Surely not!)

Thanks in advanced for reading!  :thx;
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August 2007- Diagnosed with nephrotic syndrome
September 2007- Kidney Biopsy found FSGS
December 15, 2009- Transplant Evaluation
January 7, 2010- I'm on the list!
February 4, 2010- Fistula and PD Catheter Surgery
March 8, 2010- Begin CCPD; My cousin will be my donor in June!
June 22, 2010- I got a kidney from my awesome cousin!
"Trust in the Lord with all your heart. Lean not on your own understanding. In all your ways acknowledge Him and He will make your paths straight." Proverbs 3:5-6
Rerun
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Going through life tied to a chair!
« Reply #1 on: June 19, 2010, 07:49:09 AM »
Yeah, have a bag of Cheetoes and maybe go watch a scary movie!  Yikes!  I hope you get this done.

I started my period "after" my transplant but not before.  To me it means you are healthier than before.

Best of luck!    :cuddle;
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sullidog
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« Reply #2 on: June 19, 2010, 07:17:25 PM »
Soup!
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
jbeany
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« Reply #3 on: June 20, 2010, 07:27:55 AM »
Break out the nacho chips!

I don't think anything is going to lower your heart rate until you can calm down, so try a few deep breaths, and just go with it.

No reason whatsoever for them to stop the surgery because of a period.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
renalpenguin
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« Reply #4 on: June 20, 2010, 08:00:50 AM »
Sunday Morning Update (2 More Days...)

Blood pressure up to 140/90  ;D (Never thought that would be a good thing  :rofl; )
It seems a little too high to me, but that was the target they gave me last week- apparently it's easier to bring it down than up during surgery.

Pulse is down to 110... still high but I guess better.

Logged
August 2007- Diagnosed with nephrotic syndrome
September 2007- Kidney Biopsy found FSGS
December 15, 2009- Transplant Evaluation
January 7, 2010- I'm on the list!
February 4, 2010- Fistula and PD Catheter Surgery
March 8, 2010- Begin CCPD; My cousin will be my donor in June!
June 22, 2010- I got a kidney from my awesome cousin!
"Trust in the Lord with all your heart. Lean not on your own understanding. In all your ways acknowledge Him and He will make your paths straight." Proverbs 3:5-6
kellyt
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« Reply #5 on: June 20, 2010, 06:22:34 PM »
Congratulations!  I'm sure your BP will be up the morning of check in.  :)   I don't think your period will be a problem.  Not 100% sure on that, but they never asked me when I checked in.  I did start a few days after and I had to wear this ridiculous mesh underware with a giant pad (HUGE!  Bring your own pads with you)  the remainder of my hospital stay and it was gross, but no big deal.  I was told I couldn't use tampons after transplant for a while.  I waited about 1.5 years before going back to tampons.  Talk to your doctor about that.

Sounds like your on the track to transplant Tuesday!  Good Luck!!!  Let us know how it goes!!   :2thumbsup;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
bette1
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My dear daughter
« Reply #6 on: June 20, 2010, 08:13:51 PM »
Good Luck.  I'll be thinking of you on Tuesday and I hope everything goes smoothly for you.
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Diagnosed with FSGS April of 1987
First Dialysis 11/87 - CAPD
Transplant #1 10/13/94
Second round of Dialysis stated 9/06 - In Center Hemo
Transplant  #2 5/24/10
st789
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« Reply #7 on: June 20, 2010, 08:34:12 PM »
Good Luck. 
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RichardMEL
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« Reply #8 on: June 20, 2010, 08:38:11 PM »
I'm glad you got the BP up. I bet your pulse is high with the stress/worry about what is going to happen. I wouldn't worry so much about that but yeah try and keep calming thoughts and relaxing if you can.

Good Luck!!   :bow; :bow; :bow; :bow; :bow;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
renalpenguin
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« Reply #9 on: June 27, 2010, 08:16:05 AM »
Hey everyone! Here's an update...

The transplant went very well... I was able to bring my bp up and pulse down (the period wasn't an issue). I'm five days out now... very anemic, but other than that my awesome cousin and I are doing great!  ;D Hopefully I will "escape" the hospital tomorrow and stay at a (nice!) hotel across the street from the hospital for a few days. Also, I was the one who was afraid to get a transplant due to FSGS- my risk was very high, and I was told that it would come back, it would hit hard and kill the kidney right away. It did not relapse yet- I guess I'm not out of the woods yet, but I'm feeling very hopeful considering what my doctor's predictions were.

Thank you for the support- this is the best site on the Web! I honestly don't know if I would have taken this step if it weren't for you guys' support. Thank you!
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August 2007- Diagnosed with nephrotic syndrome
September 2007- Kidney Biopsy found FSGS
December 15, 2009- Transplant Evaluation
January 7, 2010- I'm on the list!
February 4, 2010- Fistula and PD Catheter Surgery
March 8, 2010- Begin CCPD; My cousin will be my donor in June!
June 22, 2010- I got a kidney from my awesome cousin!
"Trust in the Lord with all your heart. Lean not on your own understanding. In all your ways acknowledge Him and He will make your paths straight." Proverbs 3:5-6
Lillupie
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wedding 12-10-11

WWW
« Reply #10 on: June 27, 2010, 08:25:28 AM »
Wow Congrats. I am happy for you. I am also jealous that you went a year without a peroid! UGH! I wish I could do the same! Been on dialysis for 2.5 years and have not missed a single one!

Lisa
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Check out my Facebook profile for CKD "Help Lisa Spread Awareness for Kidney Disease"

It is my utmost dream and desire to reach out to other kidney patients for them to know that they are not alone in this, also to reach out to those who one day have to go on dialysis though my book i am writing!

dx with lupus nephritis 5/99'
daughter born 11/2005
stage IV CKD 11/2005-6/2007
8/2007- PD cathater inserted
9/2007- revision of PD Cathater
10/2007 started PD
jbeany
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Cattitude
« Reply #11 on: June 27, 2010, 11:00:29 AM »
 :bandance; :bandance; :bandance;

I love good news!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
paris
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« Reply #12 on: June 27, 2010, 11:36:42 AM »
This is so wonderful.    :yahoo;   Every transplant gives the rest of us such hope.   Your cousin is a hero!   Rest, recover and go live life large!! 
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
natnnnat
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WWW
« Reply #13 on: June 27, 2010, 04:31:39 PM »
Good work, penguin! 
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
monrein
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Might as well smile
« Reply #14 on: June 27, 2010, 07:31:49 PM »
So glad things are going well and send all best wishes for this to continue always.  Congratulations.   :flower;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
kellyt
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« Reply #15 on: June 28, 2010, 10:33:10 AM »
Congratulations!  I'm so glad it went well!!!    :bandance; :bandance;    And we are never out of the woods.   ;)
Logged
1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
billybags
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« Reply #16 on: June 28, 2010, 10:48:22 AM »
That is fantastic, both of you stay well.
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