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Author Topic: A few transplant questions  (Read 2633 times)
-Lady Noir-
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Where's your will to be weird?

« on: July 18, 2010, 04:31:57 PM »

Hi..

My finace's parents are both up to become donors. His mother is O blood type [same as Mike] but his father is A. We were initially told that his father couldn't be a donor for Mike because of this, but they have still continued all the rest of the tests..
Is it possible for an A blood type to donate to an O?

Also, his father is living in Australia, and we are in New Zealand.. can they do a transplant or do they both have to be in the same country?

I would ask the transplant co-ordinator but we can never get hold of her. Infact, we have never even spoken to her before!  :banghead;
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Expose yourself to your deepest fear. After that, fear has no power, and the fear of freedom shrinks and vanishes. You are free

..Nik..

Fiancee to Mike
Mikes 'history'....
Born September 12 1983
Seizure July 2003 [Unrelated to kidney]
Diagnosed with 'Polycystic Kidney Disease' July 2003 (Wrong diagnosis)
Diagnosed with  IgA Glomerulonephritis April 2004
On active transplant waiting list 2006
Hyperparathyroidism developed gradually
Parathyroidectomy May 2009 (Affected kidney function)
Hospitalized for hyperkalemia June 2009
Catheter inserted June 2009


Started CAPD June 2009
Stared APD September 2009

ABO Incompatible transplant 01 December 2010
Donor = Mikes father Greg
cariad
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What's past is prologue

« Reply #1 on: July 18, 2010, 06:15:38 PM »

In terms of Mike's father donating, yes they can do it, but it should be a last resort. Donating across incompatible blood groups is complicated, much harder on the recipient (similar to desensitization) and does not seem to be as successful long term. Perhaps they are considering Mike's father for a list exchange, paired exchange, or any of those other trades that are done.

I'm sure New Zealand has ways of making this work with an out-of-country donor. They would be crazy to let this opportunity to get a citizen off dialysis pass by. I would go with the mother as donor if she is willing and in good enough health.

Hope this helps! Good luck to you and Mike. :flower;
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
-Lady Noir-
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Where's your will to be weird?

« Reply #2 on: July 18, 2010, 06:37:02 PM »

Hey thank-you for that information cariad  :2thumbsup;

His mother, says she is willing.. but it's pretty obvious she feels she has to donate. It's a very confusing situation, she seems like she doesn't really want to. I just wish she would be honest.
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Expose yourself to your deepest fear. After that, fear has no power, and the fear of freedom shrinks and vanishes. You are free

..Nik..

Fiancee to Mike
Mikes 'history'....
Born September 12 1983
Seizure July 2003 [Unrelated to kidney]
Diagnosed with 'Polycystic Kidney Disease' July 2003 (Wrong diagnosis)
Diagnosed with  IgA Glomerulonephritis April 2004
On active transplant waiting list 2006
Hyperparathyroidism developed gradually
Parathyroidectomy May 2009 (Affected kidney function)
Hospitalized for hyperkalemia June 2009
Catheter inserted June 2009


Started CAPD June 2009
Stared APD September 2009

ABO Incompatible transplant 01 December 2010
Donor = Mikes father Greg
natnnnat
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WWW
« Reply #3 on: July 18, 2010, 07:22:03 PM »

Maybe she really wants to donate, but she is honestly showing her fear of the operation.  I'd be sh***g myself.  And cranky.
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
-Lady Noir-
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Where's your will to be weird?

« Reply #4 on: July 18, 2010, 08:15:20 PM »

Could totally be so.
I would understand if she was scared. Heck, i would be too. She told us she had to have 6 months off doing the tests for the transplant cause she had to have an operation.. we have heard nothing of it since  :waiting;
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Expose yourself to your deepest fear. After that, fear has no power, and the fear of freedom shrinks and vanishes. You are free

..Nik..

Fiancee to Mike
Mikes 'history'....
Born September 12 1983
Seizure July 2003 [Unrelated to kidney]
Diagnosed with 'Polycystic Kidney Disease' July 2003 (Wrong diagnosis)
Diagnosed with  IgA Glomerulonephritis April 2004
On active transplant waiting list 2006
Hyperparathyroidism developed gradually
Parathyroidectomy May 2009 (Affected kidney function)
Hospitalized for hyperkalemia June 2009
Catheter inserted June 2009


Started CAPD June 2009
Stared APD September 2009

ABO Incompatible transplant 01 December 2010
Donor = Mikes father Greg
kellyt
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« Reply #5 on: July 18, 2010, 08:27:47 PM »

They could be testing him in case y'all are interested in "paired donation".  ???   Good Luck!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
RichardMEL
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« Reply #6 on: July 18, 2010, 09:15:46 PM »

Aus/NZ are pretty much one country these days anyway so I don't think that will be a big deal, apart from where the actual transplant is done and getting the donor in etc.

Indeed the transplant/donor registry is known as the Australia New Zealand Organ Donor Registry: http://www.anzdata.org.au/
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
-Lady Noir-
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Where's your will to be weird?

« Reply #7 on: July 18, 2010, 10:07:18 PM »

Thanks Rich  ;)

What is paired donation?
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Expose yourself to your deepest fear. After that, fear has no power, and the fear of freedom shrinks and vanishes. You are free

..Nik..

Fiancee to Mike
Mikes 'history'....
Born September 12 1983
Seizure July 2003 [Unrelated to kidney]
Diagnosed with 'Polycystic Kidney Disease' July 2003 (Wrong diagnosis)
Diagnosed with  IgA Glomerulonephritis April 2004
On active transplant waiting list 2006
Hyperparathyroidism developed gradually
Parathyroidectomy May 2009 (Affected kidney function)
Hospitalized for hyperkalemia June 2009
Catheter inserted June 2009


Started CAPD June 2009
Stared APD September 2009

ABO Incompatible transplant 01 December 2010
Donor = Mikes father Greg
RichardMEL
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Posts: 6154


« Reply #8 on: July 18, 2010, 10:45:07 PM »

Paired Donation is something we're looking at for me.

Basically it's where you swap kidneys between incompatable donors.

So say I have a donor, but he's not compatable with me, and you have a donor, but they're not compatable with you, but your donor would match me, and my donor would match you, then they do both transplants and basically swap the organs.

It's only just started here, after a trial for a while in Western Australia. My neph(who I am seeing tomorrow with my incompatable brother) is quite keen on a paired donation I think. He's definitely more keen on that than ABO - I think he doesn't quite trust the technology (a bit old school).

Also see: http://en.wikipedia.org/wiki/Organ_transplantation#Paired_exchange
« Last Edit: July 18, 2010, 10:47:07 PM by RichardMEL » Logged



3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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