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Author Topic: Just got here, glad I found ya  (Read 1997 times)
FineWhine
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« on: June 08, 2010, 08:56:44 PM »
I have Polycystic Kidney Disease and massive cysts in my liver too. Just got a hook up with an AV Fistula on the second try. In denial and proud of it. Debating where to go for transplant. Love my nephrologist because he actually listens to me. Very diet conscious, staved off dialysis for 5 years. I don't know exactly how to use this forum, but willing to learn.
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monrein
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Might as well smile
« Reply #1 on: June 09, 2010, 04:32:09 AM »
 :welcomesign; to IHD.  I'm glad you found us too and hope that you'll find the site as helpful for support and information as so many of us have.   Read around and throw out any questions you might have.  Your own experiences are valuable to us too.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Rerun
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Going through life tied to a chair!
« Reply #2 on: June 09, 2010, 04:07:05 PM »
FineWhine!  I love your name!  I wish I had thought of that for myself!  Instead, I'm Rerun, originally named because I'm on dialysis for the second time and it just seemed like and old TV show Rerun (same ol crap different day).  Then I found the Avatar of this little guy who is Lucy and Lioness little brother named Rerun.  Basically, Lucy felt the same way I did after finding out she was having another little brother so she named him Rerun.  Sorry.... I got to rambling!

Welcome to IHD.  It is fun here and questions get answered.

Rerun, Moderator            :welcomesign;
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RichardMEL
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« Reply #3 on: June 09, 2010, 06:18:29 PM »
Welcome FineWhine!!! Love the name! You can't be totally in denial if you found your way here and are willing to learn more and share with us. This is a good thing! Hopefully we can help you undertake your journey and make it a bit less of the unknown and more something you can handle OK! Look forward to hearing more from you!

RichardMEL, Moderator
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Jean
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« Reply #4 on: June 09, 2010, 11:40:01 PM »
 :welcomesign; to IHD, glad you found us.
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One day at a time, thats all I can do.
galvo
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« Reply #5 on: June 10, 2010, 12:13:19 AM »
G'day, FineWhine and :welcomesign;.
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Galvo
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Wishin' I was Fishin'
« Reply #6 on: June 11, 2010, 12:10:17 PM »
Hello FW and sure glad you did find us.  Welcome to IHD where all the members will become like your family.  Hope to see you posting.   :welcomesign;
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"The key to being patient is having something to do in the meantime" AU
FineWhine
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« Reply #7 on: June 12, 2010, 12:13:11 PM »
Wow, I am learning the site and just found your kind messages. Now I'm so verklempt! Going outside to play (garden) back tomorrow
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