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Author Topic: am I sleeping to much?  (Read 2907 times)
bette1
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My dear daughter

« on: May 31, 2010, 05:25:56 PM »

I got my transplant on monday, a week ago, and got back from the hospital on friday.  It seems like I cannot get enough sleep.  I spent most of today in bed and I am ready to sleep again.  Is this normal?
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Diagnosed with FSGS April of 1987
First Dialysis 11/87 - CAPD
Transplant #1 10/13/94
Second round of Dialysis stated 9/06 - In Center Hemo
Transplant  #2 5/24/10
Dianejt
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« Reply #1 on: May 31, 2010, 05:34:53 PM »

Oh Bette1, I was so surprized when I read that you where already home. Remember our bodies heal when we are sleeping. I don't think it is unusual to need rest, you have been through alot this past week.
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caregiver to husband Frank

bladder cancer 1994
renal failure April 2009 due to blocked right ureter. Left kidney 20% function
November 18 2009 surgery to remove right ureter.
April 3, 2010 removal bladder, prostrate, left kidney.
June 11, 2010 started Hemo @ hospital
July 2, 2010 Embolized right Kidney due to hemoraging of tumor
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cariad
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« Reply #2 on: May 31, 2010, 05:37:36 PM »

I don't know if it's normal, Bette, but it sounds exactly like me a week after my transplant. I am about 10 weeks post-transplant now, and only just starting to feel the energy return. Good luck, and congrats on getting off the machine!
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okarol
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« Reply #3 on: May 31, 2010, 05:47:21 PM »


As I recall Jenna did a fair amount of sleeping. We would try to walk a little bit each day, then she'd nap. If you're eating and drinking ok, (keep the fluids steady even if you're not thirsty) and your weight, temperature and blood pressure are stable, then I wouldn't worry too much. But this is why they do clinic visits and labs so much in the first couple of months, to be sure they don't miss anything, so tell the transplant team if you are not feeling ok.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
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RichardMEL
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« Reply #4 on: May 31, 2010, 06:02:44 PM »

You HAVE just undergone major surgery. Your body is recovering, and sleeping is one way it does that. As Karol says I think if you don't feel well/normal then talk to the transplant team about it. Indeed it can't hurt to mention it and see what they say but I suspect it is normal. You can't expect to be up climbing mountains a week later... I think yes important to try and get up during the day and do some walking/activity as you can, but don't push things too far.
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

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natnnnat
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« Reply #5 on: May 31, 2010, 06:14:14 PM »

Sleep sounds like a very good idea.  But to second Okarol's comment, when you do wake up, going on little walks is important.  Just a little farther each day, and being sensible about it.  G's transplant needed about 4 reopenings, because of trouble with getting the urethra working.  And he had his appendix out in the early 2000s as well.  He comments to me that walking is very important after abdominal surgery, and sends commiserations, because it hurts. 
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
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Heartfelt thanks to IHD, KK and ADB for your generosity and support.
cykid
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« Reply #6 on: June 01, 2010, 07:38:37 AM »

After my transplant I was in the hospital for 4 weeks (some secondary issues). I've been sleeping a lot, but it's been 2.5 years now and I'm still sleepy meaning I wake up harder than before (actually before the ESRD, but that's another story - just realizing here i've always had issues when waking up).

So all in all, the meds you are taking do have an effect and you've just been operated as everybody said.

Whadaya, flip off the bed and do a full marathon for the morning gym? You've just got operated, and you must feel like after being hit by a train. Just take it easy.
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bette1
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My dear daughter

« Reply #7 on: June 01, 2010, 11:05:54 AM »

I think I'm just a bit high strung.  I have never slept this much in my life and I feel lazy.  I talked to my coordinator today and she said that it's normal and plus I am a bit anemic.  So I pulled out my crafts and indulged myself a little bit.   : :bandance;
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Diagnosed with FSGS April of 1987
First Dialysis 11/87 - CAPD
Transplant #1 10/13/94
Second round of Dialysis stated 9/06 - In Center Hemo
Transplant  #2 5/24/10
kellyt
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« Reply #8 on: June 01, 2010, 02:04:45 PM »

I didn't sleep a lot after surgery, but my body was tired.  And I tired out pretty fast when moving around, too.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
natnnnat
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« Reply #9 on: June 01, 2010, 06:25:01 PM »

what crafts are you working on bette?  I'm a knitter myself.
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
bette1
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My dear daughter

« Reply #10 on: June 05, 2010, 02:19:06 PM »

I never could figure out knitting. I'd like to learn.  I mostly do cross stitch or embroidery.  I am working on a picture of poppies right now but I have about 6 projects waiting for me.
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Diagnosed with FSGS April of 1987
First Dialysis 11/87 - CAPD
Transplant #1 10/13/94
Second round of Dialysis stated 9/06 - In Center Hemo
Transplant  #2 5/24/10
Chris
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« Reply #11 on: June 05, 2010, 11:09:45 PM »

I am the odd one out, I didn't sleep much, well didn't sleep at all once I got home. They finally gave me sleep meds though. In the hospital, they kept pushing the morphine that made me tired and I didn't have much pain to need it, then there was the boredom there too.
 
But anyway, any concerns you have, you should be allowed to call your tx center without a problem to raise your concerns 24 hours a day for the first few months post transplant.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
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Guide Dog by end of July 2012
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Home with Guide dog - July 27, 2012
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M3Riddler
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« Reply #12 on: June 06, 2010, 02:59:48 PM »

I got my transplant on monday, a week ago, and got back from the hospital on friday.  It seems like I cannot get enough sleep.  I spent most of today in bed and I am ready to sleep again.  Is this normal?

Bette1,

As another member posted, your body is recovering from major surgery. It took alot out of you. Im sure you were not eating normally at first as well which will play a factor.
Also, you may want to see what your hemoglobin is. If it is on the lower side, this is another reason why you would be tired. This should improve over time as your kidney will be producing hormones to produce red cells.

///M3R
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