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Author Topic: off peritoneal- start hemodyallisis  (Read 3268 times)
wolfken
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« on: May 27, 2010, 05:45:55 AM »
Hello, People

after my fourth bout of peritonitous, im back to hemo, first week of hemo a total of 10 kgs
of fluid was taken off, feeling up and down, when will this ride end?, ended up in the physc
ward with thoughts of suicide, medications all messed up, 2nd week of hemo and suicidal thoughts blamed on medication- Lyrica.....still fighting.... wolfken
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MooseMom
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« Reply #1 on: May 27, 2010, 11:34:08 AM »
How awful for you!  I just can't imagine!  I'm so sorry that PD didn't work for you.  How do you feel about going back on hemo?  Is it a big disappointment or a big relief after your battles with peritonitis?
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Sunny
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Sunny
« Reply #2 on: May 27, 2010, 03:21:02 PM »
I feel for you and all of the pain you've been through.
Let's hope the hemo will start becoming effective soon so you can begin to feel better again.
Hang in there.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
kevno
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« Reply #3 on: May 30, 2010, 06:17:35 AM »
I have a good idea how you feel. I came off CAPD around ten years ago now. It does take a while to get used to hemo. But you will get there. I had to come off capd because of EPS and had to have my peritoneal removed. Hemo is better for patients who are on long term. Has I found out. I was on for 13 years Capd changing those bags 4 times a day.

Plus the pain of peritonitis is something only a renal patient who has had it knows. :stressed; At least you will not have to go though that again. 

We all go  through ups and downs with dialysis, sometimes seems more downs. But we usually come through the other side. I am sure you will feel better soon. :thumbup;

Yours
Kevno
(Plus remember!  RENAL PATIENTS NEVER GIVE UP!!!)
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But this little saying keeps me going!!

"RENAL PATIENTS NEVER GIVE UP!!!!!!"
Jie
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« Reply #4 on: May 30, 2010, 12:13:22 PM »
Well, 13 years are a long time for dialysis. Few dialysis patients, PD or HD, can survive 13 years.
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monrein
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Might as well smile
« Reply #5 on: May 30, 2010, 01:49:57 PM »
Sorry for your latest round of troubles wolfken...but glad to see that things are being attended to and especially glad that the fight is still in you.  Let us know how things go and know that you have us behind you.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
KICKSTART
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In da House.
« Reply #6 on: May 30, 2010, 02:22:10 PM »
Hope each day is getting easier for you .
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
Dianejt
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« Reply #7 on: May 30, 2010, 05:39:54 PM »
Sorry to hear you have been through all this. It does get you down when things are not going the right way. Glad you are back posting to us, be sure & let us know how things are going. It can be a tough road some people live. Hope you are back creating art & living your passion.
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caregiver to husband Frank

bladder cancer 1994
renal failure April 2009 due to blocked right ureter. Left kidney 20% function
November 18 2009 surgery to remove right ureter.
April 3, 2010 removal bladder, prostrate, left kidney.
June 11, 2010 started Hemo @ hospital
July 2, 2010 Embolized right Kidney due to hemoraging of tumor
September 11, 2010 RIP my love
Poppylicious
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WWW
« Reply #8 on: May 31, 2010, 08:05:16 AM »
Keep fighting, Wolfken ... *hugs*
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
Quickfeet
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Mack Potato
« Reply #9 on: May 31, 2010, 09:09:42 AM »
 :grouphug;
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