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Author Topic: How Big Are the Meds?  (Read 2285 times)
renalpenguin
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« on: June 07, 2010, 07:47:20 AM »

I'm getting a kidney from my awesome cousin on June 22!  :2thumbsup;

I have a concern though- I can't swallow big pills! I can do small pills of any kind, and even medium to large-sized capsules (because they feel soft), but I'm concerned! I'll be on prednisone, generic Prograf, and generic CellCept- I've been on prednisone before and it's not a problem (the taste bothers me, so I stick it in a tiny empty capsule and swallow it- not a problem). Does anyone know how big the generic Prograf and CellCept is? Anybody have any experience having a tough time swallow pills; what was your solution?  :thx;
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August 2007- Diagnosed with nephrotic syndrome
September 2007- Kidney Biopsy found FSGS
December 15, 2009- Transplant Evaluation
January 7, 2010- I'm on the list!
February 4, 2010- Fistula and PD Catheter Surgery
March 8, 2010- Begin CCPD; My cousin will be my donor in June!
June 22, 2010- I got a kidney from my awesome cousin!
"Trust in the Lord with all your heart. Lean not on your own understanding. In all your ways acknowledge Him and He will make your paths straight." Proverbs 3:5-6
cariad
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« Reply #1 on: June 07, 2010, 08:19:32 AM »

Congrats on the transplant, RP!!!

I must ask, though - did you request generics for CellCept and Prograf because of cost, or is your transplant hospital recommending? I think most people on here will tell you that they have been warned off generics for those two most especially. Stay informed and don't be shy about speaking up for yourself.

I do not take generics, but we have all been discussing what a tiny, tiny capsule Prograf is. You're fine there. CellCept it really depends on the dose. I think you can get capsules, too, but I took the tablets. Aren't you going to be on Valcyte (or similar) and Bactrim (or similar) for a few months post-surgery?
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monrein
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« Reply #2 on: June 07, 2010, 01:43:47 PM »

I was also told that the generics for Cellcept and Prograf were a no-no...and in Canada we do rely quite a bit on generics due to cost.  Sorry I can't help you with the actual taking of them since I've been taking so many pills for so long that I throw back a whole handful and swallow them in one opening of my throat, followed by at least one, and sometimes more, glass of water.   It's a shame that circuses don't seem to have a need for this particular contortion of the body.
Good luck.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
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Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
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Rerun
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« Reply #3 on: June 07, 2010, 03:20:17 PM »

Do you have a hard time swallowing a hamburger?  How about a donut?  How about a taco?  Just put the pill  in your mouth with some water and picture a big bite of donut going down.  I can swallow a whole handful of pills if I imagine I'm eating something else.
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jbeany
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« Reply #4 on: June 07, 2010, 07:17:38 PM »

Practice with m & m's!
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Meinuk
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« Reply #5 on: June 07, 2010, 07:42:20 PM »

Picture below:

From the top:

Prednisone 5mg

Tacrolimus (generic Prograf) 5mg

Tacrolimus 1mg

mycophenolate mofetil (generic CellCept) 500 mg

« Last Edit: June 07, 2010, 07:45:20 PM by Meinuk » Logged

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Chris
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« Reply #6 on: June 07, 2010, 11:36:41 PM »

Generic Prograf is much larger than regular Prograf and Generic CellCept is not much bigger than regular CellCept, but both have color differences. I kept them when the darn local hospital tried to give me them instead of name brand without telling me.
 
The Generics were or where approved by the FDA after being tested on normal people and not transplanted people so you will have to be more vigilant with blood test. If your center is not, I would err on caution with them since this is your life. These meds are absorbed differently from what I am reading and hearing at seminars. But if it is do to cost, then be vigilant with those blood test, but if that cost is also a concern, then maybe a transplant is not the best. These are things to think about so you can keep the transplant as long as possible.
 
As far as size, I have not measured them, but will try to take a picture with a ruler with both generic and name brand side by side on the ruler to show size comparison. But these meds may not be your biggest concern, it's the other meds you may  need to take after your transplant such as meds to fight Thrush, Anti Virals, solutions you may need to drink.
 
Another point is, you don't know your exact dosage of what meds you will be on. Higher dosage of meds may come in another form and size such as CellCept. The 250 mg version is a capsule, while the 500 mg version is a larger pill/caplet. Dosage right now is a best guess till you have the transplant and your body reacts to the meds and the dosage can either go up, down, taken off, put back on.
 
I guess what I am saying is the size should be the least of your concern, keeping the transplant working should and if you can't take the meds, that is like letting a kidney go to waste and putting someone through a process that was not necessary. Just something to think about and search inside you to see if you are ready for a transplant. If you are ready, you will get past the size of the pill issue. You do not need to take them all at once with each daily dose like some of us do, but can take them one at a time at your given time to take meds.
 
Good Luck
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

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Run8
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« Reply #7 on: June 08, 2010, 08:24:24 AM »

The pills are not that bad. I used to hate taking pills. Now i take all at once. Like Chris said look deep inside yourself.
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renalpenguin
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« Reply #8 on: June 09, 2010, 07:19:49 AM »

Thanks for the responses so much!

My transplant team uses generics- I did not request them. I will talk to them about the safety today.
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August 2007- Diagnosed with nephrotic syndrome
September 2007- Kidney Biopsy found FSGS
December 15, 2009- Transplant Evaluation
January 7, 2010- I'm on the list!
February 4, 2010- Fistula and PD Catheter Surgery
March 8, 2010- Begin CCPD; My cousin will be my donor in June!
June 22, 2010- I got a kidney from my awesome cousin!
"Trust in the Lord with all your heart. Lean not on your own understanding. In all your ways acknowledge Him and He will make your paths straight." Proverbs 3:5-6
girliekick
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« Reply #9 on: June 10, 2010, 01:41:17 AM »

i am pre tx, but have always had trouble w pills. I put pills in once i have a mouth full of water.
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Chris
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« Reply #10 on: June 10, 2010, 11:19:25 PM »

I didn't forget the pictures, just have been busy. I should be able to post by the weekend.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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