new member

[livnlet]

Hi everyone,

My name is Elisabeth and I am the wife of a dialysis patient and I would like to know if I can participate on this board. My husband is not inclined to do forums or chats.
He is not doing well, always has a fever after dialysis.
Is anyone else having this problem.
He was in intesive care for one week with blockage of heart graft, flash pulonary edema and congestive heart failure. He will have more tests done next week and then more stents placed.
He is so tired all the time and I am getting scared.

Thank you for any replies.
Elisabeth

[meme8583]

Hi Elisabeth,
I am so sorry to hear that your husband is going through so much pain. How long has he been in dialysis? I have been on dialysis for 5 months and I can tell that it has been very hard on my family so I know how you must feel. I hope for the best for the tests next week and the stents that will be placed next week. Take care

[MooseMom]

Of course you can participate on this board!  This board is for anyone who has any interest in dialysis, whether you are a patient, a spouse, a family member, a friend or just a next door neighbor!  If your husband does not want to drop by, that's OK because you can tell him about all of the witty and wise and supportive people on here!

There was a thread not too long ago posted by someone who has problems with fever after dialysis...the mods are better at doing such searches than I am.  If you do a search for "fever after dialysis" you might get some info.  I'd do it myself but I have to go pee...and that's a good thing!

Welcome!

[peleroja]

Welcome aboard, Elisabeth.  You're a great caregiver.  I hope we can answer all your questions.

[galvo]

G'day, Elisabeth and . You've just become a member of a caring family.

[Bajanne]

Welcome to our community!  Of course this is the place for you to be.  We have a large group of caregivers and loved ones here.  Our admin Okarol joined the site because of her daughter Jenna.  You are welcome to read everything and post anywhere.  And there is also a special section for caregivers where you can interact with others who know EXACTLY what you are going through. 
Your husband sounds like most of us who just started dialysis.  After a while his body should adjust and things should get a bit better.
Since he is not a forum person, you can be his eyes and ears here.  Please take full advantage of this website.  You will soon find that this is a real family
Let us know how your husband is doing.




Bajanne, Moderator

[Rerun]

Livnlet, hello and welcome to IHD.  Yes, we would love you to participate on this board.  It is scary when your loved one is on dialysis and neither of you know what is going on.  Come here and ask questions and we will help if we can.

Rerun, Moderator         

[livnlet]

Thank you all for the warm welcome.
My husband started Dialysis on Feb. 19 2009. It has been a rough ride. His first fistula on his wrist never quite worked right. Then they put a graft in his arm. It clotted out and they did a de-clot. He said it was the most pain he had ever experienced. The also put a stent in his upper arm, inner shoulder area. It stopped working then they put a catheter in his chest when they  put in a new access in his upper arm.
Thank god this one seems to be working OK. He is on 9 different meds for BP, heart and of course the renal vitamin and phoslo. Right now he is also taking plavix, adult aspirin and pletal because of his clogged arteries.
Today he was just totally worn out from just doing little things. He used to love roses but can not do yard work anymore. Now he is into orchids and of course I spoil him rotten with unusual species. 
We have been married almost 43 years and can not imagine life without him. Am I being to worried?
Sorry if I do not answer right away but I am on two other boards for myself. chronic pancreatitis, SOD and joint issues. What happended to the golden years? hmmm I think they turned to Tin.....

Thank you all,
Elisabeth

[Jean]

Well, Elisabeth, you are not alone. We are a bunch of sick people here, but for the most part, we have brains that function, even tho our kidneys dont. Welcome to IHD  and Yes, this is the place to be.

[looneytunes]

Hi Elisabeth and I also would like to say "welcome to IHD".   Like you, I'm a caregiver to my hubby and it IS a rough ride at times.  But, learn all you can, ask lots of questions and feel free to just vent if you need to.