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Author Topic: My introduction  (Read 1966 times)
Caroline85
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« on: May 09, 2010, 07:42:09 PM »
Hey everyone!

My name is Caroline and I'm 25. I have been on dialysis now since March 8th. I do Nxstage at home 5 days a week. I was born with only one kidney and had bladder issues too. I had kidney infections from the time that I was 2 and I have known for most of my adult life that I would need to eventually go on dialysis or have a transplant. I knew I wanted to do home dialysis cause I am a busy person....I work a week and I have a fairly hectic schedule so I knew I would hate going to a center. Plus my neph knows how anal I am about my health care so he was able to put me at the top of the list to start. I was the 3rd person to be trained on Nxstage in my clinic....I was in training for 5 weeks cause my fistula was very troublesome. MY second day of training my venous blew and my arm from my elbow almost up to my shoulder turned black and blue. It was great fun! But thankfully that is all over now! I do all my treatments by myself from start to finish so it gets to be a little much at times but I will survive! I am not at all interested in a transplant at the moment because I don't want the medicine that goes along with it. My training nurse and my neph are sure that I will change my mind lol we will see!  Anyways, I joined the forum because I really don't have anyone who understands what being on dialysis involves. My friends and family try but they just don't get it so I need some people to whine to who will actually understand what I am talking about! I will try not to complain too much lol.  I look forward to getting to know you all! I have been reading the forums for a while and you guys seem very close-knit, more so than any of the other forums that I have read.   Okay that is all the time I have for now...gotta go unhook!
 

- Caroline
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Caroline

On Nxstage since March 2010 and trying hard not to kill myself!
looneytunes
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Wishin' I was Fishin'
« Reply #1 on: May 09, 2010, 08:01:40 PM »
Hi Caroline and welcome to IHD.   :welcomesign;  It sounds like you have a great attitude and that sure goes a long way in dealing with the "Big D".  Glad to have you de-lurk and join our gang and I'm looking forward to reading your posts. 
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"The key to being patient is having something to do in the meantime" AU
RichardMEL
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« Reply #2 on: May 09, 2010, 08:05:06 PM »
Oh, sweet Caroline
Good times never seem so good

OK OK, enough of that.

Hey, welcome to IHD!! It's pretty great that you're doing home hemo all by yourself after only a couple of months - that's really something to be proud of (as much as you can in this kidney disease world). It's great you found us and I'm sure you can add to our community with some real insight from your own situation.

 :welcomesign;  :clap; :2thumbsup; :welcomesign;

RichardMEL, Moderator
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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« Reply #3 on: May 10, 2010, 12:01:23 AM »
Welcome to our community, Caroline!  I really enjoyed your intro.  I can see that you will do just fine with this group we have here.  I am of the opinion that in dealing with this renal challenge that we face, an upbeat attitude is of foremost importance, and I love yours.  No need to tell you that this is the best place on the web to be - loads of information, tons of support and barrels of fun.  I can't stop informing new members that this is more than just a forum - it is a genuine family  :grouphug; 
Just keep reading and keep posting and you will see.
Looking forward to hearing from you.




Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Mimi
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« Reply #4 on: May 10, 2010, 12:05:45 AM »
Hi Caroline and Welcome!!  I have a cousin named Caroline.  Most times it is Carolyn, but I think Caroline is a beautiful name.  Glad you joined.  Now just come on in and make yourself at home.


Love, Mimi
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
monrein
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« Reply #5 on: May 10, 2010, 04:34:29 AM »
 :welcomesign; Caroline and congratulations on taking charge of your treatments the way you have.  That was the key for me also and I started on dialysis at 26.  I'm now 56 and just started on my second transplant (Feb. 09).  I did 5 years of hemo at the start and then had a first cadaver transplant that served me really well for 23 years.
I'm glad you joined us here and hope that you'll post often with your experiences and of course questions as they arise.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
galvo
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« Reply #6 on: May 10, 2010, 04:53:56 AM »
G'day, Caroline and  :welcomesign; You've joined a good mob here!
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Galvo
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Going through life tied to a chair!
« Reply #7 on: May 10, 2010, 11:53:31 AM »
Hi Caroline and welcome to IHD.  Yes, this is the place to come and vent.  We understand and I think it is healthy to let your feelings out.

Rerun, Moderator             :welcomesign;
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Caroline85
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« Reply #8 on: May 10, 2010, 12:50:28 PM »
Thanks everyone for such a warm welcome!  :)
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Caroline

On Nxstage since March 2010 and trying hard not to kill myself!
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« Reply #9 on: May 10, 2010, 12:52:16 PM »
Welcome to the group, Caroline.  Tons of good info here, as well as great people.  Glad you joined!
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