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Author Topic: Topaz transplant update.  (Read 2451 times)
topazbeauty
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« on: May 03, 2010, 04:24:02 AM »

Hi All!

Thanks for the warm wishes and prayers for my self and my mom during our transplant. Overall everything went without a hitch. The transplant was preformed early on Wednesday morning and we've been doing recovery every since. They had me out of the bed and walking that night! And the crazy thing was the amount of urine! Obviously I was on an IV and I had a Foley catheter, but the first day I produced 5 liters of urine! I don't think I've every come near to that in my life!. I've been so used to 600 mls a day so to see my catheter have to be emptied multiple times was pretty cool.

My mom actually went home on Saturday. She's still having a lot of pain but is glad to be in a soft bed and eating home cooked food (she's staying with my grandparents until her post op in a few weeks). I was suppose to go home yesterday  :( but my creatinine started stalling and actually went up a little so they are keeping me a little longer. They think that it's my Tac level, cause I jumped from 6 to 14 overnight, so we lowered it and hopefully the labs look better today (just got them pulled a few minutes ago so we will see). The only big thing I'm waiting on now is to get my hemo catheter removed! Right now it;s nothing more than a whole in my chest, as they can't even draw blood out of it anymore. So hopefully out soon. The pain hasn't been too bad until last night, I think my body finally realized that I'm not in my bed and that this bed is really uncomfortable. So today we are struggling with lowering my blood pressure and getting my pain back under control. Again, hopefully just too high of drug side effects. As far as the drugs, I'm doing well on all of them. I have been having some minor tremors, but they think that they may go away with time.

Weirdest thing is the nerve "damage" that I have. My mom had a huge (way bigger than anyone thought) kidney and so it lays across a few nerves in my groin. It's weird getting use to not having feeling in the pocket of my leg or the top of my thigh. Other than that what everyone keeps telling me is how much color I have! It's crazy how much you don't realize it yourself. I had been hiding my pale complexion for months with tanning and bronzers but to have everyone walking and tell me how much color I have is a real treat!

Have to head back to sleeping now to try to get over this pain. I'll try to update more later.




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Jes 23
MPGN-1 '98
Remission for 10 years!
12/1/2009 - permacath placed and first round of Hemo
12/2/2009 - transplant center recieved all my documents! Waiting for appointment
2/2010 - approved for transplant
3/18/2010 - Dad not approved due to medial reasons
4/28/2010 - Living tranplant from Mom
Darthvadar
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« Reply #1 on: May 03, 2010, 05:02:38 AM »

Glad things are going well(ish) Topaz.....

Nice that your mum's out of hopspital and on the mend!...

God willing, you'll be home soon....

Darth....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
jbeany
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Cattitude

« Reply #2 on: May 03, 2010, 08:08:46 AM »

I shook like a leaf at the beginning, too.  It took a while, but it's completely gone, now, so hang in there and yours should get better too.  I had a nerve damage numb spot on top of my left thigh after, and that faded away, too.  Hope you have the same luck!

Everyone says that about color to me too.  I guess we don't realize how toxin-yellow we are until it's gone!

 :bandance;

Get those numbers back down and feel fab soon!

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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

Jean
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« Reply #3 on: May 03, 2010, 10:23:09 AM »

So happy to hear the good news that all went well for you and for your Mom. Hope you are home in your own bed soon.
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One day at a time, thats all I can do.
monrein
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Might as well smile

« Reply #4 on: May 03, 2010, 12:48:29 PM »

Great update and I hope that things keep on improving and you get home soon and back into your own bed.  The numbing of the nerves is pretty common and does eventually regain sensation but it can take quite a while.
I hope the transplant gives you many many years of a new life.   :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #5 on: May 03, 2010, 02:12:57 PM »

 :clap; Great to hear from you! Tell your mom hello - she's a hero in my eyes!  :bow;
Hopefully you can go home soon - there's NOTHING like being in your own bed!
 :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kellyt
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« Reply #6 on: May 03, 2010, 08:31:59 PM »

 :2thumbsup; :clap; :clap;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
galvo
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« Reply #7 on: May 03, 2010, 10:06:27 PM »

Good stuff!! All the best to you and your mum.
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Galvo
topazbeauty
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« Reply #8 on: May 04, 2010, 08:49:24 AM »

I get to go home today!
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Jes 23
MPGN-1 '98
Remission for 10 years!
12/1/2009 - permacath placed and first round of Hemo
12/2/2009 - transplant center recieved all my documents! Waiting for appointment
2/2010 - approved for transplant
3/18/2010 - Dad not approved due to medial reasons
4/28/2010 - Living tranplant from Mom
MooseMom
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« Reply #9 on: May 04, 2010, 01:36:33 PM »

oh, that's terrific!  I can't wait to hear more from you once you get home and all settled in.  Post often, OK?
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #10 on: May 04, 2010, 10:23:20 PM »

 :cheer: :cheer: :cheer: There's no place like home!
« Last Edit: May 04, 2010, 10:25:49 PM by okarol » Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Chris
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« Reply #11 on: May 06, 2010, 07:56:06 AM »

Glad your doing OK and home now.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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