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Author Topic: Into an abyss...  (Read 2562 times)
Stoday
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« on: April 22, 2010, 08:43:53 PM »

This month has been really bad for me so I reckon it's my turn for a rant.  :rant;

I feel as though I'm walking into a deep and dark valley — into an abyss. Soon I shall no longer see even a glimmer of the sun and I'll struggle through gloom for the remainder of my life. MooseMom said she read a book when she felt down — I can't even motivate myself to do that.

Maybe I need to start the big D. Tyefly gives me hope — she got her fistula the same month as me and she seems to be doing well...
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Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
Started hemo July 2010
Heart Attacks June 2005; October 2010; July 2011
galvo
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« Reply #1 on: April 22, 2010, 09:47:44 PM »

Get onto Dialysis, you old coot!
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Galvo
Rerun
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Going through life tied to a chair!

« Reply #2 on: April 23, 2010, 10:23:51 AM »

Stoday, you are feeling dread and that is normal.  I think once your start D, the fear of the unknown will be over.  You will deal with what comes your way and get into a routine and be able to pick up that book.

Make some decisions.  You are in a rut.           :cuddle;
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paris
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« Reply #3 on: April 23, 2010, 11:04:02 AM »

I think we all understand the "dark valley" feeling. I have been heading down that path this month. I had a dream the other night and all I can remember is the phrase "impending doom".   Thank goodness for IHD and all the people here.  You are right about Tyefly. She is a great role model and seems to be doing so well.  I don't have any words of wisdom.  Just wanted you to know you aren't alone and we are here for you.   :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
MooseMom
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« Reply #4 on: April 23, 2010, 11:10:27 AM »

Today can be your day to rant and ours to listen. :cuddle;  Tyefly gives me hope, too!  And books help me up to a point, usually up to when the main character fiinds out she has fsgs and will soon need a transplant. :rofl; 

When you say this month has been bad for you, what do you mean?  Has something bad happened, or is it just that you feel your health and your mood deteriorating?  If it is the latter, it might be an idea to discuss it with your neph.  I've read posts from so many people here on IHD that reflect this depression as a signal to start D.  It is a huge decision, one that might be made for you.  It's a crossing of the Rubicon, a physical admission that you have an incurable (though NOT untreatable) illness, and that is a difficult admission to make.

I know exactly how you are feeling, and I don't blame you one bit for feeling this way.  Rerun has made some good points.  Once you start D, it will become a part of your life and you will just get on with it.  It won't be easy, but it's amazing the stuff we get used to just because we have to.  But it IS a difficult first step to make.  Full of dread..."dreadful."
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
paul.karen
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« Reply #5 on: April 23, 2010, 12:01:53 PM »

Well im thinking it could be your pet bird making you feel that way.  Them vultures come with a stigma even though they are pretty in there own way.

Hope you get to feeling yourself soon.  Could be time to start the big D.
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
monrein
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Might as well smile

« Reply #6 on: April 23, 2010, 03:09:27 PM »

 :grouphug;  Sorry you're down Stoday.   :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
kitkatz
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« Reply #7 on: April 24, 2010, 09:18:32 PM »

I have dropped into that pit of despair, but there is light at the end of it all, I know there is, somewhere.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Mimi
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For any who do not like me I use - prayer.

« Reply #8 on: April 24, 2010, 11:27:44 PM »

I think everyone just starting D feels like they are falling into an abyss
and believe me those abyss's are the pits. 
Go on and get on D and I believe  everything will get better.  Your body and mind are reacting to all those toxins.  Listen to me and I haven't even started D yet.  But I have fallen into several abyss's during
my lifetime.
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
Stoday
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« Reply #9 on: April 26, 2010, 06:36:46 AM »

Thanks for all your kind words.  :cuddle;

I'm feeling my old self again now. It just that in March I had one bad day a week or so but this month it's two or three a week.

I've got a consultation with my neph tomorrow, so I'll be having quite a chat I think.
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Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
Started hemo July 2010
Heart Attacks June 2005; October 2010; July 2011
paris
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« Reply #10 on: April 26, 2010, 07:20:13 AM »

Glad today is better.  Let us know how the "chat" with the neph goes.   :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
MooseMom
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« Reply #11 on: April 26, 2010, 08:04:29 AM »

I am VERY eager to hear about the big chat tomorrow.  It may well be a life-changing day, hopefully for the better.  You just hang in there.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
looneytunes
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Wishin' I was Fishin'

« Reply #12 on: April 26, 2010, 07:59:49 PM »

Glad to see you're feeling more like yourself Stoday....hope the chat goes well! 
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"The key to being patient is having something to do in the meantime" AU
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