post transplant medications

[jennyc]

tac 5mg x2
cellcept 500mg x 4
prednisolone 20mg
resprim x1
Valcyte x 1
nilstat (anti thrush mouth wash) 1mg x 4
somac x 1
metoprolol 50mg x 2 (for tachiacardia)
plus 250mg antibiotic 4 x daily due to wound not being closed properly (too much free fluid in peritoneal cavity from being overloaded and on PD for so long.. they body just keeps dumping excess fluid there as though it's still on PD rather than passing all of it).

I had no idea about the valcyte might bring that up at my biopsy tomorrow with the Doc and see what she says

[rookiegirl]

As of my appointment today I am off Bactrim, Valcyte, Folic Acid, half my bp meds, lowered glipizide and added Vitamin D....I'm liking this road!

 

March 20th will be my 1 year kidney anniversary.  I have an appointment on the 30th.  So, I hope I will be off Bactrim too since I was told I only need to be on it for 1yr.

[kellyt]

You probably will be taken off, especially if you're not having any issues with your WBC.  I dropped to 2 mg of Prednisone yesterday.   

[rookiegirl]

Congratulations for dropping to 2mg of Prednisone.  I'm still on 5mg and gained 42lbs of FAT so far.  I'm really trying.  I think I'm going to duct tape my mouth and only leave a small hole for a straw.

[kellyt]

I've gained almost 30 lbs, Friend.  And if all you gave me was a straw, I'd drink sugar colas all day.  I gain weight watching the Food Channel.  I stopped gaining about 6 months or so ago and that's good, but I haven't dropped any.  I'm thankful for not gaining, but I am miserable from head to foot.  Back is killing me, feet are killing me, and to make it all worse the hot, hot days of summer are coming.  ugh.   Fat and hot is a horrible combination.

Let's do it, Girl.  Let's drop this weight!!!   

[jennyc]

i've watched a friend gain over 100kgs (almost 200pounds) through really high dose pred (100mg) for asthma, i refuse to allow that to happen to me. I gave up smoking cold turkey 7 years ago and i'm determined to use the same strength to not gain too much weight (esp after losing so much before transplant). I find that eating a really big lunch with a good bit of starch fills me up enough so that i don't eat huge amounts at dinner (risotto is really good). Fingers crossed i can do it

[rookiegirl]

I've gained almost 30 lbs, Friend.  And if all you gave me was a straw, I'd drink sugar colas all day.  I gain weight watching the Food Channel.  I stopped gaining about 6 months or so ago and that's good, but I haven't dropped any.  I'm thankful for not gaining, but I am miserable from head to foot.  Back is killing me, feet are killing me, and to make it all worse the hot, hot days of summer are coming.  ugh.   Fat and hot is a horrible combination.

Let's do it, Girl.  Let's drop this weight!!!   

I would say "I hate Prednisone", but it's helping keep my new kidney.  So, I deal.  Everything you described, I'm feeling.  I can't fit any of my clothes, even the ones I wore when I was on PD.  I had to buy a whole new ward robe b/c I couldn't fit anything to wear for work.

So now I have clothes for Pre-dialysis, Post-dialysis and Post-transplant.  Regardless...I'm still a happy camper.  Why? because my 1 yr anniversary is coming up and I'm ALIVE!

[kellyt]

You said it!     But there are lots and lots of transplant patients that are either off Prednisone all together (and doing well) or were never on it to begin with.  I'll deal if I HAVE to stay on it, but I am praying hard that I can get off with no problems!

I don't even buy clothes.  I have been living in my husbands XL t-shirts and whatever I can find to fit on the bottom.  I have about 4 pairs of jeans that are good and the rest is sweats or a couple pair of short.  I need to go do some summer shopping, but I keep telling my self to wait until I lose at least 10 lbs.

[TeenHatesDialysis]

Jaclyn is on the following meds 10 month post-transplant:
4.5 mg prograf am and pm
360 mg myfortic am and 180 mg myfortic pm
225mg (1/2 tab) valcyte
4 mag 133mg each
bicarb (basically baking soda)
tums (lower phosphorus)
Patch for vomiting and/or zofran
EPO

The transplant was a piece of cake compared to the meds. Her meds have been switched up so many times. She had bad experiences at LPCH/Stanford from EBV to PTLD to serious viral and bacterial infections to vascular rejection and she still has her kidney.  LPCH/Stanford and UCH are both monitoring her. She is still more lethargic 9+ months post-tx than she was on dialysis (UGH) and I think the myfortic is making her vomit. She has tried Cellcept and same issues.  Anyone else feel very lethargic and vomit post tx?

[kellyt]

I took my last Prednisone yesterday!  I pray that I'm off FOREVER!!!! 


Although, funny thing, the drug I hate the most (Prednisone) was just given to my 14 year old Greyhound who was in horrible pain this last week (hips) and he is doing wonderful!  Pain free!   I shouldn't hate Prednisone as much as I do.  It is a "wonder drug".

Yea me!!!