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Author Topic: Call from the transplant unit!  (Read 2976 times)
carla13
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« on: April 21, 2010, 12:25:01 PM »
Hi all!

Just had a call from the transplant unit, my husband and i went for a cross match on monday to find out if a three way paired donation could go ahead. The results came back today and the transplant is going ahead.

I'm so in awe of those people who donate their kidneys so that their loved ones can have a chance of a 'normal' life. My husband is one of these people. I'm so lucky. This will be my second transplant and the chance of living a normal life second time around is mind blowing.

I can't quite take it all in, I'm still reeling from the call, can't quite believe that in the next couple of months I have a shot at getting some normality back in my life.

Can we on IHD (maybe we have one already...) have a roll of honour for those people who go through this for love of a relative or just wanting to help? And for those people who allow their dear loved one's organs to be used after they've passed away? I feel there should be something done for them, where we make our gratitiude known.

Wow, my head's spinning!
carla
xx
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MooseMom
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« Reply #1 on: April 21, 2010, 01:28:52 PM »
How wonderful for you!  So many people are going to benefit from this!  Please give us more details when you have them; we love sharing good news!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
okarol
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« Reply #2 on: April 21, 2010, 01:46:14 PM »
Great news Carla, hope all progresses smoothly!  :yahoo;
 :thx; I love your idea of acknowledging donors. I will create a thread to honor donors, living and deceased. Thanks!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
monrein
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Might as well smile
« Reply #3 on: April 21, 2010, 01:58:55 PM »
All donors are great and living donors especially so.  Congratulations Carla and keep us updated.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Sunny
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Sunny
« Reply #4 on: April 21, 2010, 03:31:59 PM »
Congratulations, I hope all goes smoothly.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
Jean
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« Reply #5 on: April 21, 2010, 04:00:59 PM »
Yippee!!!!!  :cheer: Good for you. Let us know how things go for you please.
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One day at a time, thats all I can do.
galvo
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« Reply #6 on: April 21, 2010, 04:46:59 PM »
Wonderful news, carla. Happy days ahead!
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Galvo
paris
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« Reply #7 on: April 21, 2010, 05:05:59 PM »
Great news!  It is an exciting time for you.  Keep us updated.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
RichardMEL
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« Reply #8 on: April 21, 2010, 06:19:54 PM »
awesomeness - another IHD transplant - make that what 3??? FANTASTIC!

I also think your idea of a honour roll is a fantastic one.

Keep us informed. What wonderful news!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
sullidog
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« Reply #9 on: April 22, 2010, 05:01:30 PM »
That's great! Good luck to you both!
Troy
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
carla13
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« Reply #10 on: April 23, 2010, 01:22:25 PM »
Thanks everyone!

No more news as yet, but I know it's going to be a three way kidney 'swap' with 6 people involved, (three giving kidneys and three recipients) Okarol, I love the honour roll! i'm really pleased that you started it up. I'll add a bit on there when I've had my transplant, (hopefully!)

Will keep you all posted! :-*
carla
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #11 on: April 25, 2010, 10:51:26 PM »
 :2thumbsup;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
carla13
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« Reply #12 on: May 02, 2010, 08:41:24 AM »
Things are looking hopeful for the three way transplant! I know that this is old news for anyone in America but over here in the UK they've only been doing them for just over 3 years, so it's all a bit new.

The unit have set a provisional date for the beginning of June. That means that this could be my last month on dialysis for a while!! (for ever fingers crossed ;D)

We have a few more tests to go through, an independent assessment to determine that I'm not paying or co-ercing my husband into donating, and hopefully in 6 weeks time (or less) it will actually be happening!

No definites and I don't want to raise my hopes too high, as anyone on here knows, nothing is definite until it actually happens, but occasionally my stomach does a little flip of excitment and I dare to allow myself a little dream of life without dialysis....

Will keep you all updated
carla
x
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galvo
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« Reply #13 on: May 02, 2010, 05:50:27 PM »
Looking good.
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Galvo
kellyt
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« Reply #14 on: May 02, 2010, 08:08:16 PM »
 :clap; :clap; :clap; :clap; :clap; :clap; :clap; :clap; :clap;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
paris
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« Reply #15 on: May 02, 2010, 08:13:24 PM »
It is never "old news" and I think it is extra special with the paired donations.  The timing of the surgeries has to be hard to work out.  We are very excited for you --for everyone involved.  June will be here very fast!     :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
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